Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Archives for July 2020

18 years on Saturday since my Neph.
A big day for our family. I will celebrate by wishing my Grandson well as he takes his MCAT's on the big day as well. Didn't see that 18 years ago as he was approaching 3. icemantoo
Two Strokes and Stage 4 Kidney Cancer
Hello, This post is for my mother. She is 58 years old and suffered two strokes this year. The first one was in March and the second occurred in June. The doctors didn't know what caused the first stroke but with the second they found tumors in the brain. A full MRI body scan showed they originated from a mass on her…
Surgiversary
My Sweetie reminded me that today is my four year surgiversary. Usually I am laser focused on the date, but actually forgot this time. I guess that's good. I certainly feel better today than four years ago. So for this day: extra dancing with wild abandon, and even more gratitude than usual. Take care -
Here we go again
Well I hate to post this, but it looks like my left kidney wants in on the action now. Back in 2015 I had a right partial nephrectomy, remove two tumors removed from my right kidney kept most of my kidney. Now let’s fast-forward to 2018, a 5mm spot was found on my left kidney. In 2019 it had grown to 8mm. Now in 2020 it…
If it ain't one thing
So I am now at 7 years since neph. and it's time to see my doc for annual check up. At the beginning of this month I sent in my orders for CT scan w/o contrast. Called today for status and told that order has been refused and sent back to doc as insurance protocol only allows CT for the first 3 years. Strange they should…
2.5 year check-up - NED!
Hi all - it's been awhile. Happy summer! Quick update from me...met with my urologic oncologist this week for my 2.5 year test results/check-up. Renal ultrasound, chest x-ray both NED! Bloodwork and kidney function all normal! The best results possible. Doing well personally...completing virtual HIIT workouts at home,…
I was Ned today
Had my scans done and I was Ned
First scans next week
Im a little worried about my first scans every pain I feel I think did it come back.i know god is watching down on me I got to believe everything will be ok.
Bosniak Type 3 mass
Within the past week, MRI with and without contrast showed Bosniak Type 3 with nodular enhancing component, looks suspicious. Of course primary doctor on vacation. Got call from NP who is referring me to a urologist. Has anyone had or heard of this. I've done the internet research, but guess I'm looking for someone with…
Here goes another NED
Hello everyone! Husband finally got his ultrasound done, 5,5 years after surgery. It is NED! Chest x-ray was last November for unrelated reason, all clear, so need to repeat it at the moment. I am so glad for him and all those other NEDs reported recently. But to be honest, I am the happiest for Amy Jo, who is…
Catching Up with Good News
Hi guys I have been away for sometime now. I had alot going on in my personal life. One can only handle so much. I was diagnosed 2/18. Had my kidney removed 3/18. Shortly after my cancer metastasized to lungs liver lymp nodes and spine. Causing me to have compression fractures at L spine and T spine. Along with 2 blood…
"Good Thought Exchange" date and time....
What started off as an idea to celebrate NED status for the 2016 group has evolved into what I'd like to call a "Good Thoughts Exchange". Let's plan on Saturday, July 11 at 6 pm central time to toast, send good thoughts, eat a pizza (Jazz--a great way to remember Fox), send a prayer--whatever you like. My hope is that each…
Solitary kidney with stones and cyst
Hello all. I was wondering if anyone else has encountered this. I was born with one kidney and I have stage 3b kidney disease. I have had a cyst on the remaining kidney that continues to grow. It is now 7.8cm. I have an appt with a urologist in a few weeks, but since I only have one kidney, what would be my options? Any…
First folow-up after partial Neph.
I just got the results from my first post partial nephrectomy (January 2020) MRI and all is well. Coupled with finding out a couple weeks ago that ,at 33 months post prostatectomy, I am still showing undetectible PSA I'm feeling pretty good. (Until the next tests are due )

Kidney Cancer

Discussion List