Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Archives for November 2019

Newly diagnosed
Hi. My name is Mary and I was recently diagnosed with 7.5cm tumor on right kidney with small thrombus in renal vein (T3b stage?). I am 59 year old female. I am scheduled to have robotic assisted laparoscopic nephrectomy on Monday. It has been a crazy few months. I had gastric sleeve surgery in August, followed 3 weeks…
Yervoy and Opdivo Therapy
My oncologist is trying to get insurance approval for me to start Yervoy and Opdivo therapy soon. We like to travel by RV, he said I could never be far from a good medical facility and certainly never out of cell phone coverage, that some of the potential side effects are sudden and deadly. We know our trips will have to…
Vit C IV (Kidney Cancer)
Hey all, I’m trying to find Vit C IV. I am in the UK and would much rather one of my friends (a nurse) to admin it rather than going into a clinic where the cost has been considerably bumped up. If anyone knows, please get in touch. I’ve also researched that Tapioca, Camu Camu and other natural forms of vitamin c is more…
Trail closing -63 months NED
I dont post much anymore, but wanted to share this one, and actually get some feedback. I have been in a Sutent-Nivolumab trial since Feb 2013, I was stage IV with lung spots and an adrenal tumor. I have been NED since August 2014. I have continued to take Nivolumab infusions and 37.5 mg of sutent for maintenance since…
Follow up blood work - concerned.
Hello, team. I'm not a doctor, and I don't pretend that any of you are. Some follow up bloodwork was done on me and I just want to compare notes. I have an upcoming appointment with my nephrologist. Background: I had a nephrectomy in March. Tests performed approximately two weeks ago: * Glucose - High 117 * Bun - 19 * eGFR…
I’m Back!
I joined the prostate cancer forum Fall 2009 just before my robotic, radical prostatectomy. My PSA was undetectable for 5 years. Then I ate some bad duck in late summer 2014, got campilobacter infection, caused renal failure, creatinine went to 6.7. After 4 days in ICU they decided to scan my kidneys to see if there was…
Questions about robotic retroperitoneal partial nephrectomy
Hello, I am a woman in my 40s and recently found out I have a 2.2cm kidney tumor. It does not appear to have spread. The doctor said there is an 85% chance it’s cancerous but they won’t know until it’s removed so of course I’m hoping it is benign. The first surgeon I met with said he could not operate robotically due to…
Iceman question.
What standing alone always lowers your kidney function,(GFR), but is a good thing to do? icemantoo
Husband check in, checkmate immunotherapy.
Husaand had scan two weeks ago. No new growth, srinkage of bone tumors. We are at 1.5 years. He is feeling better since we stopped the bone hardening additive. Blood work looks great.
NED today!
So today I was cleared for another 4 months. God is so good. Whoop Whoop, Roar!!!
22 months NED
Had my 3rd 6 month post-op scan today. Not one single thing in either kidney. Starting this journey, I had 4 in my right (they took one out) and 2 in my left. Happy news......EXCEPT....they think it's Mets to my C7-T1 area of my spine (neck) incidental find of course. MRI on Dec 2 and go from there. Rad Dr was pretty…
All is well from Disneyland
yAs most of you are aware I had my surgery to remove my Prostate in Orlando back on September 30. Today I got the resuly of my 6 week post seugery PSA whych was undetectabl or for lack of a better worh, Ned. My wife thinks seeing a Urulogist regularly as a result of Kidney Cancer led to earlier detection and may have saved…
NED !!!
4 years NED THANKS for all the support
Prostatectomy 2 years ago and now this
2+ years after a prostatectomy and still showing a non-detectable PSA now I'm faced with a 4.6 cm mass in my right kidney. Consultation next week with my urologist as to which direction to go. Partial or total . Given my history I want it all gone but I suppose I should wait and see what he says. He called me early today…
Video
Thank you icemantoo for the informative video. I have found that the more I know the less anxiety I have. In 2017 I had an MRI r/t microscopic blood in my urine in which a small 0.5 x 0.6 x 0.5 cm tumor on the lower pole of my left kidney was found (unrelated to the blood in my urine-which I recently found out has…
Video for Newbies
https://vimeo.com/371401433?fbclid=IwAR1O4RIXwEE2g_-_H3AUEqey6b02kuU5CTST_c54G1jotHgCvKc_9g4oHy4 icemantoo
lower back pain when sleeping flat
Before surgery, I was told I wouldn't be able to sleep on my regular bed, so I bought a reclining bed and I was sleeping on the reclining bed for a few weeks after surgery. As I start to feel better, I go back to my regular bed and sleep flat. However, every night when I sleep flat, I wake up with bad lower back pain. If I…
Breakthrough as scientists create a virus that can kill EVERY type of cancer
https://www.dailymail.co.uk/news/article-7664927/Breakthrough-scientists-create-new-cowpox-style-virus-kill-type-cancer.html Hope this is something we all have been waiting for! Let's stay healthy
NED!!
Latest scan Ned!!

Kidney Cancer

Discussion List