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Some of us feel like We are Survivors (unless of course you disagree with that term)
Thank you all for sharing your stories. I was hesitant to post because of a bad experience on another message board, I felt like my tumor didn't "really" count because it was so small and fixed so "easily". Well you know what? I am a cancer survivor! I had a 3.2 cm tumor in the middle of my right kidney. It counts! I had…
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2 years ago, Grade 1 Stage 2 diagnosed.
9 months later partial robotic right. Now 9 months NED. HOWEVER, they are watching a place on my left.
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What kinds of follow ups do you do?
I was wondering what kind of follow ups do you do. I'm new to this, only 1 month out of surgery. I had a partial nephrectomy to remove a 5 cm RCC off my right kidney. Initial assessment is that it was all removed with nothing outside the kidney. I will have a repeat CT scan in September and probably yearly scans after…
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That Time of the Year
No. It's not Christmas time. It's annual scan time. I went for my chest X-Ray today. Tomorrow is blood test time. Then on the 11th, it's CT time. And finally, the all clear from the doc on the 17th. I was originally scheduled for all of this in July, but we were able to score some good award flights to Japan and Thailand…
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Losartan
Now that I'm home recovering from a nephrectomy I'm sitting around watching too much TV. I'm seeing all these legal firm ads about Losartan and cancer. Googling around I'm seeing a lot more on the subject. Apparently there have been any number of "bad batches" produced. I thought we had an FDA. My doc put me on Losartan…
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What works for you to feel positive?
Hi, I had a partial nephrectomy in March and I am experiencing many of the symptoms that others have mentioned here, including pain and some bloating. The surgery was much more traumatic than I expected and the diagnosis came as a total shock to me since I had no symptoms and it was diagnosed via a routine ultrasound…
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Passing urine 1 month after surgery
Hello to all. I'm a new poster although I joined a month before my surgery which was last month. On April 25th I had a 5 x 4.5 x 3.5 tumor removed by partial nephrectomy on my right kidney. It was a clear cell RCC. The pathology report, which I don't have with me right now, indicated that it was fully removed with clear…
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NED :-)
Hello everyone, finally my husband found time for another follow up scans (US and chest x-ray). He was really overdue, supposed to have them in January-February, but never bothered much. I love his calmness and optimism :-) NED! Belated, but NED, as expected. Next scans in a year. He is 4,5 years from surgery. Happy for…
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65 GFR
Eight or nine years ago when I had gout and was a bit heavier my GFR went down to 39 or so. It is now up to 65 and I will be 76 years young in a few months. Over the past 5 years I have lost 75 pounds and put back 20 or so. I really think losing weight is the best way to get your GFR up to a decent level. Much of the…
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First two consultations with urological surgeon
I had consultation individually with two urological surgeons in past week on treatment for a mass in size 10x4x15mm at my left kidney. Both surgeons recomended three options as the same as what was recommended by another urological surgeon when I was with Kaiser, but I insisted to have a robotic partial nephrectomy to get…
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Open Radical Nephrectomy on Tuesday
Man, am I not looking forward to this, but we do what we've gotta do. Any tips, tricks or wisdom for getting through this and minimizing the pain?
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Anyone with recuurent cancer back in another kidney
Hi Guys, Anyone in this forum who had cancer recurring back to another kidney? what kind of treatment did you took and what are the prognosis after this? Did anyone go for a kidney transplant? I have heard immunosuppresants given during kidney transplant really brings your immune system down and there is very very high…
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Low Back Pain
About a month ago, I developed a pain in my low back/hips. If I lay down in bed, even for a short time, and I stand up, it's there. Kind of a knot with shooting pain. After being up and around all day, it slowly gets better. By the end of the day it's pretty much gone and I start over again the next day. It's been so bad…
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WHO/ISUP grade vs Fuhrman
Happy Friday peep! I'm not sure if this has been already discused here, but pathology reports over the last 5 years or so have embraced the WHO/ISUP grade for the surgicl tumor as opposed to the Fuhrmans which was pretty much the norm for ccRCC. I have observed that a lot of research data (including nomograms) for…
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A confession to make...
I will be lying to you all if I said that I am doing exceedingly well. Oh, I am well. Still hurtin' from the surgery, but well enough. Previous to the surgery, I was a heavy drinker. Not necessarily a cause of the RCC, but a contribution to it for sure. You know, the type of guy that would drink in excess more often than…
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Why don't people listen?
As a cancer patient and now survivor, I've learned alot as far as being a survivor. I've learned to be my own advocate, I've learned where to get information. I've learned generally what to expect with scans and how people react. It's funny what happens when you tell someone you have cancer. I wish I would have had someone…
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2nd kidney also has lesion
Grandfather had kidney cancer @73 — didn’t do any operation but just took homeopathy and survived for more than 10 years My father got diagnosed with highly aggressive lungs cancer at stage 4 and survived hardly for an year i was not so lucky Nd got diagnosed at 28 with left kidney RCC by chance had no symptoms got left…
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New here
Hello peeps. 35 years old and newly diagnosed since RCC took advantage of my welcoming nature to find refuge in my right kidney. Fortunately, it was caught before it could wreak a complete havoc. Incidental find was based on pelvic floor muscle tightness trigerred urinary issues (I have some series muscle issue going)…
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2.5 years for my cystic ccrcc
Hi all, I have been having some pretty bad scanxiety this time causing some physical issues like loss of voice and gum infection. I have never known stress can contribute to such a problem. High ferritin perhaps from my fatty liver and etc. The good news is my 2.5 years scan (this time chest X-ray + US again) came back…
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laparoscopic partial pain
almost 3 month passed after LPN. still have pain from time to time sometime very discouraged. My doctor ordered ct and after reviewing result told me that it is nothing to do with a surgery because laparoscopic partial could not cause this pain. he said that disc regeneration trigered this pain. I do not believe him.…