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Kidney Cancer

Archives for October 2018

36 w/renal mass & liver lesions - thoughts & advice appreciated
Hi everyone. I feel like I have no one to turn to who understands what I am going through. I have a small solid mass on my right kidney that was discovered incidentally on a CT scan in March 2017. I had an MRI and the radiologist said it could represent a renal oncocytoma, metanephric adenoma or renal cell carcinoma and…
RCC back
After 2 years 3 months and CT scans every 3 months of being cancer free, its back! Just found out Wednsday on my birthday the 24th I now have a 12mm lesion on my liver. I have an appt with my oncologist on the 29th, she knows nothing about this as of yet, only my PCP. Any ideas of what I will be going through now? Surgery…
normal for partial nephrectomy folks?
Hi, I just joined and i think I posted this initially on the wrong thread; sorry. :( I'm a woman, 65, who had a stage 1 tumor in my right kidney, removed via partial nephrectomy 3 1/2 years ago. Just had my annual scan and it came back clear. YAY. Question: when I looked at the accompanying urine/blood work online, it…
What makes you happy?
So.. I lost 2 co workers over the summer. 1 from cancer at 62, the other cardiac event at 59. Lost 2 friend's here. Niece had stroke at early 30s with no known markers. And several other medical issues with close family. Got call from co worker I haven't heard from in 4 years to go striper fishing . It was 5 of us and a…
Ipilumimab
My son alerted me yesterday to the discoveries of James Allison and his Nobel Prize Award. Google his name for more information. i have ordered the book The Breakthrough written by Charles Graeber. i have learned that ipilimumab is being used to treat melanoma and is in clinical trial to treat other forms of cancer…
Update on son-in-law
I'm happy to report that after being diagnosed about 2 1/2 years ago with Stage IV, grade 4 60% sarcomatoid RCC (13.5cm tumor) he has now been NED for four scans. He and my daughter just had their third child four months ago which is another miracle. He is not on any cancer meds (was on immunotherapy most recently). As a…
Scanxiety
Going for my 2 year CT tomorrow. Anxious and not sure what to expect. Hope all goes well. Sept 2016 partial neph right kidney stage 1A grade 2 clear cell.
I'm here
thanks all. It is too hard to believe how sick and weak I am. Just consider me quiet for awhile as I continue to work on my rehab. I will never be the same but as long as I am safe, I am happy. Believe in yourself and work hard. New treatments are effective and tolerable. This allows concentration on training recoverable…
To Fox
Fox: know you are either reading or having someone read to you; so, I want you to know how much I think of you and that I am sending you karma in huge doses. Sarah
Complex Kidney Cyst
I was recently diagnosed with a complex kidney cyst. It is located in the lateral region and is showing minimal vascularity. Size is 2.3 cm. The cyst is also presenting with interal septation - although the report does not specify the extent of the septation. There is no calculus or hydronephrosis. I go for an MRI this…
To all my friends on the board
This study done between 2009 and 2012 you can imagine the huge success in the past 6 years pleas watch this video right To the very end it will help you https://youtu.be/blUI-ZzcViE
And another Ned visit
Thank you all for your support and good thoughts and wishes. I had a visit from Uncle Ned. Love to all of you!
Open radical nephrectomy - right kidney
I haven’t had UTI in years but a painful UTI with horrific pressure to urinate and nothing coming out got me to the Er on 9-7-18. I’m a 53 yr old mother of 2 and am a type 2 diabetic as of 10 yrs ago. While waiting for ER Dr I managed to obtain a urine sample. Dr came in and prescribed a stronger Rx and wanted to check to…
One year down...
It was one year ago today that I heard the words - "you likely have kidney cancer - in each kidney." The immediate days after that were all a blur. Luckily, I found this site which brought some hope and a lot of perspective. I learned through my own research that there was a highly regarded, NCI/NIH trained urologic…
Uncle NED is here!
Just visited my Urologist for the year 2 scan report. I had been having scanxiety since the CT scan in September. So glad that it is NED and I can finally relax a bit. It is the first set of CT scan after my surgery in 2016. There will be US and Chest X-ray in 6 months, I don't want to move to the annual scan yet because…
Ned
Just had my six months scan and it was Ned. Blessings to all who are struggling with this disease.
Some positive news!
I've been on Votrient since February of this year, and just had my latest scans and follow up with the doc. No new growth or progression! I was more anxious this time around than usual - probably because of the reduced dose I was on for two weeks while on vacation. It felt like a weight lifted off of me today. My "spousal…
Small bowel blockage
Just more things we have to deal with. So three weeks ago I started having lower back pain, then two days later woke up middle of night with pain from my head to feet. Then next night bad pain again plus chills and low fever. Had all flu symptoms. Went to doctor, he tested me for everything. Ordered CT scan, I had the…
Well, it's that time of the year
Going to NY tomorrow for my 4.5 year check up. US, CT, and blood work on Thursday and meeting with onc on Friday. Please wish me luck and a nice visit from Uncle NED. I'm really nervous. Love you all, Andi xo
translocation rcc Ned
hi all just wanted to let folks know especially one with translocation rcc That I am NED now after 16 months. Diagnosed may 2017! Keep up the fight my friends. next Scans in feb.
I'm back
Hey, guys, Very cool to see so many of you doing so well. I've been absent, only popping in here and there over the last couple years. To be honest, a lot of things have fallen by the wayside (but in a good way). Our son has been diagnosed on the autism spectrum and is still nonverbal at 3 years old. He's a great kid, but…
hardo718--Donna??
We've just learned about BDS, which was a sad outcome. Since we're checking on members, I've been worried about Donna (hardo718) . I sent her a couple personal messages to check in on her mid and late July without a response. She was last online June 1. I understand that people come and go on many boards, but she was such…
Fantastic experience at Mayo, MN - partial nephrectomy
Hi all: I have been meaning to post here for some time. To anyone facing the terrifying diagnosis of possible or even confirmed kidney cancer, I highly recommend the Mayo Clinic Urology Dept. in Rochester MN. In 2016, a small tumor on my right kidney was discovered incidentally (as most are). I consulted many surgeons here…
Urine test
I am scheduled to have a partial nepherectomy at the end of the month for a stage 1, 3.7 cm tumor. The tumor is located near the collection system but we are unsure if it is interfering with it. I am experiencing painful swelling in my feet, hands and other joints. My rheumatologist thinks the swelling is either Lupus or…
Follow Up CT
I just had a follow up CT for severe pain throughout my entire right side (I had nephrectomy on R side in April 2018) and it came back normal My Dr. is wanting to put me on Gabepentin to see if that helps as even my skin is sensitive..... I will have a follow up ultrasound in 6-10 weeks for a large cyst that they found on…
Hope
I read this post (link below) the other day and it is just too good not to share with you all. I know that many of us Stage IV survivors are on the immunotherapy treatment mentioned in this article (IPI/NIVO). This story gives me hope that the scientists and doctors are closer to a cure than we may realize. Keep fighting…
My husband was recently put on Immunotherapy. What can we expect?
Hi, My husband was recently put on a combination infusion of two different types of immunotherapy (Yervoy and Opdivo) for Stage 4 kidney cancer. We've read all of the documents that the doctors gave us, but a lot is still unknown. Is anyone else on this treatment? If so, how long have you been on it, and do you have any…
Dad diagnosed with clear cell RCC pT1a grade 1. Experience? Advice? Anything.
hi, My Dad (64yr) is diagnosed with RCC clear cell, PT1a grade 1. He went through partial nephrectomy one week ago. Any survivors? Any advice? I am worried sick.
BDS?
I'm sorry I don't login and post a lot. I do lurk and read from time to time. BDS had some great information and I don't remember seeing him on here in awhile. I'm just wondering if he is ok. Does anyone know anything?
I am nervous
Hello, I am new here. I had an abdominal US 3mos ago and they accidentally found two cyst at the upper pole on my left kidney measuring 1.0x1.2x1.3cm and 1.0x1.2x1.4cm each. They are demonstrating internal echogenic septation. i had another one today and can’t stop worrying about it. The doctor doesnt seem fussed but I…

Kidney Cancer

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