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Newbie here!
Hello! I'm new here, so I'll tell you a little my story. I'm 35 years old and living in Spain (there is why there are will be some differences in procedures and sorry for my english). About 8-10 years ago I was diagnosted with miomas in my uterus, and finally, in november 2016 I had practices total histerectomy (I still…
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Should I be seeing oncologist
Hi, I had my left kidney removed due to cancer July 2016, my urologist said everything was clear. I had a 9 cm tumor, stage 2. I have only seen the urologist since surgery, he orders every 6 months CT scans, and says, see you in 6 months. Should I be seeing a specialist, my urologist is great, buy, extremely busy, and I…
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One year ago today.
One year to the day, just about this time......my wife was grtting ready to undergo her partial nephrectomy on her left kidney. Trying to decide who was more scared would be hard to do. Honestly, I think it was me. I'm the worrier. I'm the guy that goes over the what if's. I'm the guy that thinks 3 steps ahead of where I'm…
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Do they find out about reccurence sooner than I have symptoms?
It's been 3 1/2 years since surgery, last C.T four months ago and clear results, all last years any little pain makes me worried, every pain reminds me of possible Cancer reccurence, well, after all clear C.T reports I'm much more confident now than ever, don't lose my mind over little pains and ashes. But it still comes…
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7 weeks since surgery
7 weeks y'all!!! And I'm on my second week back at work.. All is well and I feel wonderful! I haven't felt this good in 5 years. Fishing my first tournament this coming up Saturday. Been back in my boat the past two weekends and haven't had any issues since I started taking my multi vitamin and iron supplements. I've…
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My experience
In April 2017 I discovered a small growth on my face. I went to the skin doctor to have it removed. The doctor had the growth biopsied and it came back kidney cancer. I was then refered to an oncologist. The oncologist ordered several scans of my entire body. The ct scan showed a tumor in my left kidney. In May 2017 the…
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My 6 week follow up
My follow up was good. I'm still having my right side flank pain and back pain. I'm hoping its mostly muscular. I started this morning doing some stretches and going to start yoga again. It feels like I have a gas bubble on my right side haha. I press on my lower back and I feel a sharp pain in my abdomen. I dunno, doctor…
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New here--RCC metastasized to lungs
Greetings. My husband, age 58, was diagnosed last year with Kidney cancer--clear cell kind. His kidney was removed. At same time small nodules were seen on lungs. Later scans showed growth in the tumors in lungs. Biopsy confirmed cancerous. They cannot be removed. Good news--we are told that these tuomors are very slow…
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Uncle NED on vacation?
So its gonna be kinda a long post so here it goes... I had my first set of post op scans on Friday coupled with my yearly mammogram and the results are in.......... My mammogram showed a cyst that we are just going to monitor and do another ultrasound in 6 months. My chest xrays and bloodwork are good. My CT scans on my…
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Pathology. FINALLY!
After a two week wait the pathology finally came back and it seems to be good news! Carcinoma with negative margins present in a background of multiple cortical cysts Tumor size: 3.4 cm (smaller than we thought) Tumor Focality: Single Focus Histologic Grade: 2 Tumor Exension: Tumor limited to kidney Margins: All margins of…
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over the counter painkillers
I have recently been diagnosed with renal cell carcinoma, luckily only 2Cm. Will be getting it removed in April. In January, I had major shoulder surgery and am now starting PT on that. After reading, I asked my GP if I should stop Acetaminophen (which I'd been taking about 3000 mg for a long time since an accident in…
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Tolerating treatment
I hate to be a downer today, but I'm having a rough go of things right now. Started Votrient 10 days ago and have been reduced from 800 to 600. SEs are really starting to kick in. GI issues, BP, chills, fatigue, bad headaches, and just feeling generally "yucky." For those of you who are, or have been on it, how long did it…
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3 weeks after open partial
every day I feel better. Every now and then I have some minor headches and backaches but I sm sure is all related to the lack of exercise. Also , I am felling some pain around the incision area and goes all the way down to my pelvis. Its not allthe time and is like a burning sensatio in my skin.My dr told is normal unless…
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Nephrectomy scheduled- feeling anxious
This is my first time posting on the boards, although I've been lurking since February. In July 2017 I thought I was having gallbladder issues. I had an ultrasound done and they discovered an atrophic right kidney (congenital, it's only 5.5 cm). My left kidney is a little larger (12.5 cm). At the bottom pole of the right…
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Opinions about Scan Frequency
My husband just had another set of 3 month scans and they were NED. It will be a year tomorrow since he had his kidney removed. It was stage 3 due to one area of microscopic outer fat invasion, no other areas contained cancer. The doctor was ultimately able to achieve a large clear margin with a radical nephrectomy. His…
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Cabo
My Mom just Had her second spinal surgery on 2/13 to the C4&5, currently in rehab & started radiation today, 5 treatments needed.She will be starting Cabo 60mg as soon as she finishes Radiation . This is her first line of treatment since diagnosis on Dec 6, besides 2 surgeries and radiation. I've read about the side…
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Just diagnosed
Not sure if this is all going to make sense, but i'm still a little in shock. I have had kidney stones for the past 15 years and have passed about 8-9 in that time. I had another bout at the end of January and thankfully had a CT scan in the ER and it showed not only a small stone, but also a complex cyst on my kidney. Saw…
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Best of times, worst of times
Life has been a bit of a wild, crazy time lately and this forum, as important as it is to me, had to go on the back burner for a while. It'll take me a while to catch up, for sure. I'll start with the worst of times, we lost 3 friends in 3 weeks. Talk about grieving, my goodness, my husband and I can't remember crying so…
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Did anyone experience pain before diagnosis?
Hi, I'm wondering if anyone experienced pain before being diagnosed with kidney cancer. If so, can you please describe the pain and where you felt it? Thanks so much.
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lenvatinib
I continue to fight my fight with 4th stage kidney cancer plus initially extensive bone mets. I have never had a comprised kidney function, or had an actual kidney tumor. Only extenstive bones mets that bioposied at kidney cancer which ofcourse if unique. I used Sutent, and an immunatherapy over the course of the first…
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Question in regards to pathologic stage
Hey there! I found my pathology report and it said rcc stage 1 grade 2 T1a and NX. I was wondering if anyone had some info on "NX".. I know it means lymph nodes cannot be assessed. Is that because my lovely tumor wasn't near a lymph node or they just didn't biopsy it. Or however it works. I was just curious. . Thank you!…
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Checking In
Sorry for the long delay in posting. I know how important these posts are for all that have had the unfortunate need to seek out this website. As an update, I am still working full time and I am at the 6 year stage 4 RCC mile marker. Still on 800mg of Votrient daily. Medicine has kept my lung nodules relatively steady yet…
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11 Days till surgery
Hi all, Well the count down has begun. 11 days till this will be over. (Permanently I hope). Trying to get everything in order, my sister is going to come and stay with me for two weeks. (I live by myself on my farm). Chest X-ray, EKG, and lab work is done. Have almost kicked the smoking habit..... Anyhow, did any of you…
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Newbie 1.3cm CCRCC? Wait? Biopsy? Get 3rd opinion?
Dear all, Firstly, thank you all for your candor and gentleness on this forum. Through the past weeks I've been using the forum to help me make decisions, especially on a doc who I had my first consult with two days ago. Need advice and information from you all, as I believe you are experts just as the doctors are in this…
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Super scanxiety! Pain 6 months after surgery
Havent been back since hubbies diagnosis 6 months ago.. we are 26 imagine the shock ... still hard to believe. complete kidney removal in the end of July 2017.. we had 6 month follow up and hubby tells doc he is still having low back and hip pain which is definitely cause for concern. He was clear on pet scan after…
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The mountains.
I'm going to the mountains this weekend with my family. I'm very happy. This is my healing place. Clean air, cold streams maybe a bear or two. Maybe a beer or two. Clear my mind on a mindless trail and nothing else will matter.
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partial nephrectomy questions
64 year old male having partial nephrectomy next week. How bad is the after surgery pain? How long of a hospital stay did you have? If you had a drain tube how long was it kept in? WAs drain tube in side or back? How soon after surgery did they have you out of bed walking? Any responses much appreciated.
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Shook up a little- 4mm nodule
I received my 3 month scan report. Urologist states no evidence of spread but I do have a 4mm nodule on my lung that the report says does not require any follow up? I'M LOST...Base line scan's CT of Pelvis and abdomen and xray of chest..I did not get the xray yet and this soot was found on what little part of my lung was…
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Just hit five years post-nephrectomy
I have not been active on this board for some time, but the support I received early on in my journey was crucial. I wanted to give an update and to also ask for some guidance. After minimizing the significance of blood in my urine for WAY too long, I was diagnosed with a tumour in my right kidney. I was scheduled for a…
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Blood Found in Urine
Hi All, For the past month or so, I have been having pain in my right side that comes and goes. Thinking it was kidney stones, I went to see my internalist that sent me for an ultrasound, urine analysis and blood work. He stated that they found nothing in the sonogram, liver was good, no stones in kidney or gallbladder, no…