Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Archives for March 2018

Update
My consult went very well. I expressed my concerns about the biopsy being unsuccessful and not having answers to what we were burning out. The DR said there will be a pathologist in the room with us that will verify that we have enough to send to pathology before they continue with the ablation. That made me feel good.…
NED me too!
I had my 4th follow up since surgery and I am still NED! Just wanted to share! Thanks for all of your help and encouragemenr.
Pancreatic Lesions
Diagnosed with RCC in 2014. 2cm. Partial nephrectomy. Stage 1. Contained in kidney. Just got report from most recent CT scans. 2 lesions, 5mm and 9mm appeared on pancreas. Weren't noted on previous year's MRI's. Can't see doctor for a week and a half. My understanding is that RCC very rarely spreads to pancreas. Hoping…
three weeks our partial nec
Hello all! I remember when I was first diagnosed and had a certain fear (as I am sure we all have gone through) and this forum was such a godsend. My lesion was caught completely at random (basically checking for a UTI, which turned out to be prostatitis) and there it was. It was so early (it was in the 2cm range) and I…
NED!
First scans since surgery 6 months ago came back clear!!!
Finally approved
You guys probably won't understand this. I have a friend who had kidney cancer years ago and it went to his brain. He has been a major help getting me through this. After my surgery, I had bad dizzy spells and always wanted them to scan my brain. Just once, to look and be sure. After 2 or 3 other attempts, it has finally…
RCC Pathology Report
Greetings Everyone! I am new to the group and would like to share my story. Diagnosed with RCC(2 tumors) one tumor was Clear Cell Renal Cell Carcinoma and the second was Epithelioid Angiomyliopomas. I had Right Robotic Assist Partial Nephrectomy in Oct 2017. The Dr. said everything went well and he got all the cancer.…
Ablation
So my consultation for my ablation is Friday. I know it's just a consult but it makes me anxious. Although my DR seems to think that this is another primary tumor it's in my remaining kidney. I just can't believe my luck. I'm trying to keep my anxiety in check. I have my yearly "woman" appt on Wednesday. Before my cancer…
Surgery tomorrow
Tomorrow I will finally be having surgery. I think the wait is the worst. I will let you know whether or not it is better than a colon resection which I had 2 years ago. Been so busy this past week am looking forward to a rest. haha if Your so inclined please send prayers.
Shower Phobia
Because (hopefully) some of you will understand. Since my surgery, I completely HATE taking a shower and have to psyche myself up for a few minutes before I can take one. My surgery was one month ago today (2.19) and, really, considering there was a complication, I've been healing really well. But, because of that…
Moderate surgery risk
I was just diagnosed less than 2 weeks ago with a 3.2x2.8 cm mass in my left kidney. I am scheduled for surgery 3/22/18. I am diabetic (type2) and have high blood pressure, and mitral valve regurg. My mass was found incidentally during an ultrasound to see why my blood pressure kept going up despite multiple meds. I was…
2 days until Surgery
After a rollar coaster ride of scans tests and appointments my surgery date is almost here. On the 21st I will have my partial Neph on my left Kideney. Been a heck of a few months but I am ready to get this over with. Doctor thinks I will be ready to return to work on 4-20. Keeping my fingers crossed that all goes well and…
1st Follow Up
So....my first follow-up appointment is this Thursday! I had my scans and bloodwork last month, but don't see the oncologist until this week. I am not nervous, but not looking forward to it. I guess it is because it is just a reminder of all that has happened. The dreaded "we found something call", all of the appointments,…
Who would have thought - searching for information
Apologize for the length in advance- What started as hematuria and diagnosis of a UTI has turned in so much more. About two weeks ago had a strange feeling and notice blood in the urine. I work in the business office of a large medical organzation and went to our urgent care. The provider seemed concerned as I did not have…
It's finally done
Hi all, Had my surgery on Monday. Everything is kindof a blur.... I do know that the Dr. had to clamp the artery for 27 minutes. My sister was with me and she said the Dr told her that the "fat cap" on the top of the tumor, was unaffected and was in one peice when removed with the tumor and he was very pleased about that.…
Bloating. Constipation
week 5 after surgery developing some disconfort on belly, constipation... I fell full all the time even with water I asked my dr and he told me that maybe its for all the pain meds sometimes I feel I am going to explode anybody else with same symtoms?
On my mind
I had a radical left nephrechtomy on 11/27/17. The mass was 2.5 cm stage t3a grade 2. No lymph nodes involved , clear margins. My Dr.felt first scan in july, six months after surgery was right for my situation. It was stage t3a because the tumor was located in the renal sinus. I hope he's right-what do you think?
Once upon a time.....
Seven years to the day, I woke up to be told, "Congratulations Mr Fox. We got it all!" Only to be told a few weeks later that I probably won't make it through the summer. But here I am. Please everyone, get second opinions. 4 cancer centers told me that they could not help me. The 5th saved my life. Good luck happens to…
Scanxiety hitting me hard this time
Had my CXR and CT yesterday and I'm just out of my mind. 5-1/2 years post-op. Since I had the flu a month & a half ago and coughed myself silly I have felt strange pings & pains on my left side. The primary doc made mention of adhesions and couldn't answer my question regarding the possibility of the coughing causing…
Anyone else having trouble quitting smoking
I had a partial in March 2017 an I’m having a hard time quitting smoking, I’ll do good for a while an end up smok’ing for a couple of days an quit for a while an repeat.
MRI new scan results today
impresion : Further interval increase in size of enhancing left upper pole renal neoplasm. Partial nephrectomy changes in right upper pole without recurrent enhancing mass.( had robotic partial nephrectomy rt kindey(8 1/2 hrs in surgery) in May 2015. At that that time renal cancer also detected in left kidney. Possitive…
Partial or full kidney removal
Hi, new here but not to cancer. It's only 1-3 percent of survivors of Breast cancer get a totally different type. As a precaution for breast cancer, you should probably know I had a double mastectomy although only the left breast was involved in the end. Now I have kidney cancer in my left kidney. Right kidney in good…
Second opinion. Who would you see?
My Mother in law is wanting me to see a nephrologist to get a second opinion. My Urologist wants to do a scan at 6 months, 2 years, then 5 years. Has anyone with clear cell RCC seen a nephrologist? Or should I look into seeing a Oncologist? Stephanie
Dealing with nerve pain.
I'm 7 weeks post op now. I'm still taking tramadol and ibuprofen to help with pain. I bend down wrong i get that cramping feeling or sharp pain near my incision site and deep with in from right side abdomen even to my back. ( I had a open right partial nephrectomy). It takes my breath away. I'm ready to just put this all…
Let's talk
Let share our experience with others ....who did you find you have cancer? did you have any symptoms ? what kind of treatment you had ? tell us how you feel? Do you worry about your future? Let's talk
Chromie Testing
i am due my first six month scan after my LPN in Sept 17 i have been put on a low risk regime which means first scan will be a US panicking: 1) they find something 2) how much will a US really see 3) will it detect lymph nodes if swollen I will be demanding more tests after this... the fear is off the scale Annie
Immunotheraphy Blog
I am a 34 year old that just had a 10cm tumour, my kidney, and adrenal gland removed on December 20. I have recently started a clinical trail for immunotheraphy in hopes to stop any cancer from coming back. I have decided to start a blog to document the process in hopes to help anyone going through the same thing. My blog…
Lungs feel weird
So a few days ago all of a sudden my lungs felt weird. I could be sitting or be walking didn’t matter. I can take deep breaths. Nothing raspy nothing hurts. It’s not all the time either. I wish I could explain it better. I am taking amoxicillin for a sinus infection and I take my anxiety medicine. I had my 3 month checkup…
Feeling Uneasy
Had partial right neph Sept 2016. Clear cell 3.5cm, stage 1A grade 2. Going for my review CT 12 Mar. After 1.5 years follow up I still got this worry. Is this normal feeling this way?
Anyone else have a mass on an Atrophic Kidney?
My right kidney is atrophic (about half the size of the Left). The Urologist believes it's only functioning about 5%. Because the left is a little larger than average, he believes it's been that way my whole life since that only happens when the other one never really worked. Anyhow, the mass started on the lower pole of…

Kidney Cancer

Discussion List