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Kidney Cancer

Archives for February 2018

BP: How high is concerning?
Had four doses of Votrient so far (started Saturday) and was a bit surprised to see my BP jump so quickly. (I've looked at past threads here and seen that it can be an indicator that it's working, but still needs to be closely monitored.) Yesterday, my best reading was 136/94 with HR of 94, with other readings showing…
Scans this morning
Going to get my first set of scans since PLN in November. I pray all is well- NED please! A little nervous, could not sleep well. Starting over on my deductible. How does everyone pay all the Bills that go along with this ride? It always trying to get at me- mentality , emotionally, financially--WOW ALWAYS something ! I am…
RCC Warriors
Ok the line up for my week is as follows... ~ Today.. Mentally prepare for the rest of the week. ~ Wednesday... 8 AM surgery to remove skin cancer from my nose and skin graft from my ear to my nose followed by pre scan bloodwork. ~ Thursday... Try not to dwell on what my face looks like. SCANXIETY!!!!!!!!!!!!!!!!!!! ~…
News!
Life is busy and I’m ok with that! I have two bits of good news to share with my friends here. First, I am now officially a tenured professor! Getting tenure is incredibly exciting. However, getting a clear scan and officially moving from 3-6 months to yearly scans is even better! I hope you all are well. I may not post…
Joint replacement
I am a 5 year stage 4 kidney cancer survivor. I have a Knee that needs to be replaced. I cannot walk or stand more than 15-20 minutes could hardley get in or out of car. I am on Sutent(chemo) for 3.5 years my oncologist said that should not be a problem. I have tried a few "Good Doctors at major hospitals in the East"…
Difference Type vs Grade
anybody??
Pathology
Left renal mass Renal cell carcinoma, conventional clear type Surgical parenchymal margin is negative for carcinoma Tumor size 5 x 4.5 x 4 cm , 45.5 gr margins uninvolved by invasive carcinoma Fuhrman nuclear grade 2; G2 , Nuclei slightly irregular, approximately 15µm , nucleoli conspicous and eosinophilic at 400x…
Bowel Perforation from Sutent or Votrient ANYONE??
Managing Votrient Side Effects
I just took my first (800 mg) dose of Votrient last night. Today, we'll be going out to get some "supplies" for managing side effects. Among the things suggested are: * Biotene - it was suggested to use that before mouth sores start to help either prevent them or to manage them when they do come around * Bag Balm - for…
Nodules in the Lung
My main question has anyone here had a resection of the lung and what was the surgery and recovery like? My backstory is that i had an 11-12 CM stage 3C tumor remover in October 2016. I had one year of NED CT scans and life returned to normal. Januarys scan revealed to very small nodules in the left lower lobe. 4mm and…
Well, this has been INTERESTING!
So, I go in this past Monday (2/19) for a radical neph via laproscopy. Two or three hours then done. After about five or six hours, my loved ones started getting a bit concerned. The doctor finally come out an tells them he opened up an artery and could not get to it to clamp it shut - so I started bleeding out profusely.…
Stent removed!
Had an open partial neph on my right kidney on 1/26. During the procedure, my ureter was cut. My surgeon repaired it and put in a stent. It irritated me over the last month, but not horrible. I had it removed today. Wow. That wasn’t fun. How long does the burn last during urination? I burns the same as the stem being…
Bent over to change a diaper, now in pain.
I am almost 5 weeks post op from my open partial nephrectomy on my right kidney. Yesterday I was changing my 2 year olds diaper on the bed and I got a sharp stabbing pain in where the incision site is. Almost like a punch. Ever since then my whole right abdomen has been in pain, especially on top of the incision site. My…
Is there a Doctor in the House
preferly one experienced in Renal Cancer you would think one would be lurking somewhere..not that I would wish this on anyone But an second opinion now and again would be amazing And yes I am aware of the issues/problems Annie
I'm looking for o
Finals on test results
From the 1st CT in Sept., I had the gift that kept on giving!!! Within the past two days, I got to review results of the gastroscopy and US follow-up on the mammogram. NO Cancer and come back in 3 months for a regular check. Talk about a 4 1/2 month emotional roller coaster. Besides the many visits to Dr's, the hospital…
Question about pelvic C.T scan
Hi everybody Anyone knows whether hips skeleton is being checked out in an abdomen and pelvic C.T scan without contrast?
Scheduled
Well my surgery is finally scheduled. I am having a robotic partial Neph on my left kidney on March 21st. I really wanted to do it sooner but this is when they can fit me in. My question is to others that have had a robotic partial.. what can I expect? I had a robotic partial hysterectomy on Dec. 20th, but I think this…
Is this normal??
So I have my first set of scans coming up next week and besides my anxiety being through the roof... I have noticed that my Dr has ordered a CT SCAN of my abdomen and pelvis with barium not IV contrast and a chest xray not CT?? He has ordered bloodwork before probably to check function of kidney...just wondering if this…
most effective treatment available
Nivo or votrient each morning? Maybe opioids or a bowl of sativa to soften the fear and distress? Then again several times a day prn? You gotta have enough but not too much. None of those remain as my first choice. Because I've got a better way. No script needed. No worry of an overdose. Every morning I make my way…
Lump
Had a painful lump come up on my throat this weekend. Swollen glands are nothing new to me, but this one is painful and seems harder then normal. Probably smaller then I'm thinking but seems huge. Going to wait a couple days. Has me a little worried.
Swelling
Hey all!!! I am 3 mths out from my radical nephrectomy (laparoscopic). The dr obviously did a lot of digging during the surgery to remove my kidney and check all of my other organs. I know swelling is normal, but I am wondering how long I can expect it to happen. It isn't every day. I mostly notice it after I do sit ups (I…
Tomorrow is the Day
Surgery tomorrow at noon - a radical neph via laproscopy. Anxeity level right now is an easy 9.5 out of 10. Thanks to everyone here that has shared their stories because reading them has definitely made waiting for this a bit easier. I'm going to be so glad when i wake up tomorrow afternoon and the waiting is behind…
Red spots
After my surgery I have noticed some red spots in my pee. It's that normal? Please advice
New here...in pain and worried.
Good morning everyone, In January of 2017, an incidental 'mass' was found during a CT for abdominal pain. It measured 9mm in the right renal pelvis. It was noted as hypodense, Hounsfield 22, and NOT a simple cyst. The urologist stated that although it was in a 'bad place', he just wanted to follow it unless I started to…
Scan Results
Hello CSN Friends...I had my annual scans at MD Anderson on Feb 12th. My chest x-ray was clear. But the MRI found a 6mm indeterminate enhancing lesion on the lumbar region of my spine. It says it is isointense on the precontrast T1 W images. (I don't understand MRI terminology). They said it was too small to know for sure.…
3 weeks post-op yesterday
3 weeks post-op yesterday. Went to surgeon for check up. Scheduled CT scan mid-May to make sure right kidney is healing and working properly as well as to see what the tumor on my left side is doing. Growing means another surgery asap. No to little change, we will discuss best option. Still on pain meds 2x per 24 hrs, so,…
Pins and Needles
I had an open partial of my right kidney on 1/26. My incision is healing up nicely, but sore. I knew I would have nerve issues at the incision. My question is about my right thigh. From my hip to my knee, it feels like my leg is falling asleep. Pins and needles feeling. Sounds like possible nerve compression. Anyone…
Grade 2 clean margins
After my open partial left nefhro, they reomve a turmor with type 2 cancer, the dr told she reomved all . Also she mentioned somehing about clean margins Ok i was half sleep when she told me this and she is coming back today to give a better explanation do anybody knows what does she mean?
I'm a newbie ...
What is NED? I see it in different posts and don't know what it means haha Thanks, Stephanie

Kidney Cancer

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