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Translocation Renal Cell Carcinoma XP11.2
Happy Easter everyone! I hope you all enjoyed your day with family. I had a wonderful day with my family. My 3 1/2 year old twins were so much fun to watch on their egg hunt and opening their baskets. So I posted about a week and a half ago that my doctor called and said the pathologist was going to send my tumor off to…
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Surgery tomorrow
My Surgery is tomorrow afternoon. I was given Diagnosis on St Patricks Day and the Kidney is being removed on Easter Monday..kind of ironic in a Divine Intervention way. The Sciattica pain from the Herniated Disc which led to Diagnosis has lessened through PT..I can now sleep a few hours in bed before going to recliner.…
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I'm back
Had a couple on non RCC incidents and wounf up in the hoapital and rehah. Hope to get back icing down the newbies in the next few days, Icemantoo
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Two Days Post-surgery
Its two days post-surgery and I want to share my story. Back in October 2016 I had bad lower left side cramps. My doctor sent me for a CT scan to confirm diverticulitis and to make sure I did not have a blockage. This CT scan found a 11 mm solid, enhancing mass in the lower pole of the right kidney represents a Bosniak 4…
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Post Op follow up
Well we go to our Post op follow up with the surgeon who did my wife's partial robotic today. Yesterday was 5 weeks. I'm assuming that he will release her to resume normal activities and go over the Path report ( which we've already had a physician look at it) but I want to hear his take on it to confirm the good news and…
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Diet Soda
I'm curious as to how many of us under 50 who've been diagnosed with some form of renal cell carcinoma (mine was chromophobe renal cell carcinoma) were moderate/heavy diet soda drinkers?
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2 weeks post surgery
Today we went and my husband had his staples removed, all 56 of them! He is healing well and I am so blessed to have him with me! He looks better than before surgert, he has an appetite again and he has a smile! We will see his surgeon on May 4th for pathology report and such! A bit worried but so thankful he is alive and…
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NED!
Hello, I can report Uncle NED's visit to my husband today! Abdominal ultrasound - all clear. Chest x-ray was done in December 2016 (due to suspicion of pneumonia), also clear. We are very-very lucky. I am relieved, however, it is not an overwhelming joy as it usually is. Guess it is because of Mark and Footstomper. Almost…
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My Turn
Well Tuesday is my turn. I am having a Robotic partial right side. I want to thank all of you who have shared your journey with us. They have helped answer lots of questions and taken a little of the fear "of the unknown" away. I think I know a little better what to expect. Still having lots of emotions but I will get thru…
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Question about after surgery pains
Happy Sunday everyone! So this may be a little TMI but I am just curious if this happened to anyone else. I noticed about 2-3 days after my partial nephrectomy that my pubic bone area and into my groing area it feels bruised. I honestly didn't think to much about it because I figured it may of been a nerve or something to…
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One month on votrient
well it's been one month on votrient, and I have to say so far so good. Only side effects that I've had are nausea, an occasional headache and some fatigue. I have been monitoring my blood pressure tho and it has been getting high the past few days . I'm not supposed to see doctor till the 24th, not sure if I should call…
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Good news about a local friend
Another of those trips to a PC for something else. No clear Dx so was referred to a Urologist. He ordered a CT, called her the next day and said I'll see you in surgery in a week. She had an encapsulated, baseball size tumor on her kidney. Had surgery on 3/23 and I saw her at her PC"S office yesterday, out and about. I…
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Surgeon's History of Surgeries
Is there a website that shows what type and how many surgeries a surgeon has peformed?
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Eight Week Update
I got blood test results back today from eight weeks after surgery. Units are Australian. I'm not sure who's system we copy. Probably UK or Europe. Urea 8.1 mmol/L (3.0 - 8.5) Creatinine 109 umol/L (60 - 140) eGFR 66 mL/min (over 59) Haemoglobin 132 g/L (135 - 180) The Hb is the only result that is (just) outside the…
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Thank You seems Inadequate
I have just finished the Preliminary Surgery Scheduling and Insurance paperwork for Surgery April 17th for Left Kidney Removal. In my first Post I detailed the finding as Incidental to Herniated Disc. As I cannot do as much Physically as I would want because of Sciatttica pain. I have been reading past Forum Posts. The…
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New Symptoms
Hi everyone, Hope you all are having an enjoyable evening. Me, kind of, LOL! So today 9 days post surgery I started peeing a little blood, nothing crazy, but also passing clots. I am not in pain, I am not feeling unusual and I called my doctor and they seem to be not concerend at this moment but told me to let them know if…
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After surgery pains
Hi all! I am 1 week post surgery and the past two days have been my best feeling days. I am not in any real pain, not super tired, probably because I slept so much the first 5-6 days it was crazy! So I am a very active person normally and I have been walking around my house as often as I can and me and my husband decided…
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Pathology Report
So my doctor just called me and let me know that all margins were clear, however, the pathologist doesn't think it's a clear cell carcinoma and they want to send it off for additional testing. I thought he said transitional tromopho, (honestly I am not quite sure what he said now) or something about the chromosomes needing…
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Diet
Question.....after surgery were you given a specific diet or list of stuff to avoid?
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Two months out - lots of emotions
Hi. I’m Gary. I’m new to this group and glad I found you. Mid-to-late January I went to my doc because of bloody urine. They ran tests, saw no signs of infection or any obvious cause, and thought it was probably kidney stones. They said we’d redo the test in a week. Less than a week after that, I was in severe discomfort…
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Flank Bulge
I've become very anxious about my open partial in 3 days after reading about this underreported condition called flank bulge. I'm even thinking of cancelling and talking to a few robotics surgeons first despite having all my pre-op testing and support team ready to go for surgery on Thursday. Don't mind the scar but a…
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Struggling to get a grip...
Hi, I am writing on this forum in the hope to get some answers to my questions after I was told that have about 1 cm lump in my left kidney. I saw my GP for very frequent urination, 20-30 times /day in August- sept 2016. It was so bad that I was feeling nausea as soon as I had a little urine in my bladder. My urine was…
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Struggling to get a grip...
Hi, I am writing on this forum in the hope to get some answers to my questions after I was told that have about 1 cm lump in my left kidney. I saw my GP for very frequent urination, 20-30 times /day in August- sept 2016. It was so bad that I was feeling nausea as soon as I had a little urine in my bladder. My urine was…
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Emotions and story - from the sidelines
I am not sure where to begin, but the past weeks have been a blur of emotions! Finding out that my husband was diagnosed with kidney cancer was only the start of an emotional rollercoaster that I don't ever want to ride again! As my poor Rob was undergoing all testing I sat there helplessly watching the pain and fear in…
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9 days since surgery
well, I'm 9 days in and doing pretty well. I walked around the neighborhood this beautiful spring morning for almost an hour. There is just one place on my stomach giving me problems. There is an incision between the one by my belly button and the one on my right side where they took out my kidney. Maybe there is a muscle…
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thanks
About a year ago, I made my first post, and lots of you answered questions for me. My husband had been diagnosed with kidney cancer, with a 13 cm tumor around his left kidney, and several nodules on his lungs. We tried so hard to get a doctor in St. Louis at Barnes-Jewish Hospital. We heard they did miraculous things for…