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new member - just discovered mass on kidney
So, I just found out that the cyst on my kidney is malignant and I have to get it removed. Anyone know what I can expect now? I've read everything from no worries to horror stories. I go to the urologist next week to discuss treatment. I think it's 3.5cm...at least that's what I was told from an x-ray. Not sure if the CT…
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In recovery mode
I had my surgery on 1/26, so I am a little over 2 weeks post-op. Everything went as expected, and my pain has decreased everyday. I have had more pain last night & today with no real explanation as to why, but I am just trying to rest more. Having my 3 year old home with me is trying, and she is with her dad for a few days…
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Darth Tumour
Avastin is a wonderful anti cancer drug just out over the last couple of years. Taken as an infusion every fortnight it has absolutely no side effects whatsoever, it seems to have one teeny little flaw. Darth Tumour, leader of the Mets, has increased in size by a third. In England this is what the queen would call 'A bit…
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Stage 4 renal starting on Sutent
Finally after 6 weeks and 3 biopsies they found that the nodulars on my lungs were from mets of renal cancer. Starting Sutent on Monday and would like to hear from others who started on this chemo and the dose and results. My doctor thinks this is the best one to start with because the nodulars are very small. I am afraid…
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Torisel and Xgeva
Hi everyone, We took my duaghter to Cleveland Clinic yestereday, and they agree that the Torisel and Xgeva are fine to start. We will be doing so closer to home, with the oncologist who first diagnosed her. Hoping to start the first of next week. Has anyone had any experience with either of these? The Dr. at Cleveland…
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Six month CT scan is NED
i am thrilled to find out my six month scan is clear. I am also confused by GFR which is 48 and creatinine which is 1.2. All the info I have read says that is stage 3 chronic kidney disease. Is this correct? If so is there anything I can do to make this better? My GFR was normal before nephrectomy.
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John (OnePutt)
It is with deep regret that I have to inform everyone: John Oneputt has passed away last week. It was very sudden and unexpected as John was in good health regarding his cancer. Alice informed me that it may have been a sudden heart attack. His doctors have also attended his services. Alice is not in the frame of mind to…
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Treatments
Ok, the Dr. who origninally diagnosed my daughter is suggesting TORISEL? and XGEVA. We are heading to Cleveland Clinic later today, so we will see what they have to say. Prayers please! Thanks
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Dancnbear Update and Question
Had another round of CT scans and unfortunately it showed the cancer growing and spreading which means no more votrient. That puts me at one clinical trial, sutent, radiation, and votrient over the last 3 years. The good side up to recently was that the total volume of cancer has stayed pretty much the same over this time…
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Town to live with good cancer hospital
Hello all, Comming to terms that I may well need to move my family from SE Mexico to SOMEWHERE, USA. This is for very important insurance/financial considerations. If we do this, it will be like a brand new start for my wife and kids who have never visited the states. I want to shop around a little in various states and…
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New Member
Hello, My member name is Baw41 and I am a male age 41. Sometime in August 2015, I started feeling symptoms of a protatitis and went to see my family doctor. One of my symptoms included large amounts of blood in my urine. The doctor provided antibiotics for a few months and nothing seemed to get better. My doctor then…
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Sleep Problems and Kidney Cancer/CKD
I've been having sleep problems for years. I have sleep apnea and have been using a CPAP for many years. The past week I've been having a terrible time with my sleep. Allergies or a cold/sinus infection always makes it difficult for me with my apnea. Anything that blocks my nose makes it hard for the CPAP to work. A friend…
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Stage 4 Renal
New here. My 33 year old normally very healthy daughter was just diagnosed stage 4. It has spread to her bones... We are just getting started. She had her biopsy yesterday, and we are awaiting a phone call from a Dr. who specializes in this. Any help would be greatly apppreciated, as all of the information on the internet…
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Superbowl 50
During Superbowl I Icewoman was in labor and I was in the father's waiting room. How well do each of you remember Superbowl I? 1. How many years ago was Superbowl I? 49, 50 or 51 2. How many Kidney's did I have at the time? two, too or to 3. The highest price ticket for the game was? $6, $12 or $24 4. The cost of a loaf of…
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New patient with additional concerns of dvt, pe, and IVC filter
Hi! I'm a newly diagnosed patient scheduled for surgery 2/9/16. Not sure yet if it will be open or robotic it will depend on bleeding/ clotting issues. I have been on anti coagulant therapy for 9 yrs with no known cause for dvt and pe. I came off recently because it was thought I did not need them and developed a dvt…
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Funny bonz by Garym
http://csn.cancer.org/node/250632 .I think that should bring you to some of gary's jokes. There are people there that I miss.
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New wrinkle
Sorry I have been out for a bit I was feeling pretty ill for several days, I even had to go to the hospital that sucked. So I do like my new port, if anyone is considering it do it, the port is so much better for accessing veins. When I did my Opdivo on Monday I found out I am mild to moderatly anemic now. I was wondering…
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Surgery Done
sitting in my hospital room, had my 2fer gallbladder removal and right partial neph. the universe is a jokester yesterday my home heater died and it was 18 degrees outside in Utah. So I spent the day dealing with that. In hindsight that was probably a good thing because it kept my mind off of today. When I had my pre…
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PET results, now we have a plan
Seems like months since I have been here, but it has only been about 2 weeks! Amazing. This is such an up and down process I really value everyone's comments, it has really helped get a grip on this "thing". My PET results were surprising. The growth on the pancreas turned out to be false...nothing there, apparently…
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anyone help explain what a frozen section is?
Hi all, I have tried to research this, but thought I would see what you guys know too. On my paperwork for my upcoming surgery on 2/16, it says "frozen section". I seen on internet its done during surgery? What exactly are they doing it for? Pathology? Sorry, I am still on a learning curve. Appreciate any input. Kim
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3 Months Post-Op Questions
Hello, I am very happy to have found this board. I have questions that I am afraid to contact my doctor about, and am hoping someone has experienced the same as I and can offer some advice. So, here goes. I am 48. I was diagnosed Stage 1 RCC (4cm tumor) in May 2015. I had a lap robotic assist partial nephrectomy in July.…
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4 months and 2 CTs on Votrient....results inside
Results of my 2nd monitoring scan. Stage IV Grade IV Kidney removed 9/1/15 Began votreient Sept 23 Last scan Jan 27 Continuing shrinkage/stabilization of major tumors. Lower Right Lobe 2x1.9cm Sept 15 1.8x1.6cm Nov 15 1.5x1.5cm Jan 16 Left Center Lobe 1x1cm Stable Center Right Lobe 1x1 cm Sept 15 .8x.8cm Nov 15 .5x.5cm Jan…
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Lump
hi all! i was diagnosed with rcc in July 2015. I had a laparoscopic nephotomy in November 2015. I know it's only been three month but I still have numbness from the top of my thigh all the way up to my chest. i am over weight but since my surgery I have the dreaded lump that I have read others have since their surgery.…
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Three year anniversary from date of surgery
It was three years ago today that I slept through the removal of my kidney, adrenal gland and 15 to 20 lymph nodes. Oh, and the removal of a sizeable tumor. I understood the surgeon to classify it as stage 4. He did not leave my wife and I with a cheerful prognosis. It's three years later, and I'm still here. In fact, with…
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PET scan vs CT scan
I have recently become covered by Medicare (I also carry a supplemental policy). Today, I learned that Medicare apparently puts a lifetime limit upon the number of PET scans which one can receive in connection with any single cancer. That is, I can be dealing with RCC for years and be limited by Medicare to 3 or 4 PET…