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Switching from Votrient to Axtinib
I have been on Votrient since 3/1/2013 to treat RCC on right and left kidney plus lesions on my pancreas. The Votrient reduced the tumors on both kidneys and on my pancreas in the first two or three months of treatment and then I held steady until this Summer. After my last MRI the lesions on my pancreas increased enough…
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Personal Growth when you have cancer
To all of you, I am so moved and impressed, by the outpouring fo sincere sentiment and mourning upon finding out about Nano and DJ. There is a special bond that seems to develop amonst individuals who have cancer and more especially, those who share the same diagnosis, i.e. kidney cancer no matter the sub-category. I…
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Scared
Hi, My name is Regina just recently diagnosed with stage4 rrc with mets in lungs. I have been taking Votrient for about 2weeks with a few side affects. Just wondering if it's true about a 6 months survival rate. Scared to death about this disease. I'm 54 and in good health. I have had high blood for many years. Any info…
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Hello
Found this forum a few days ago. Thanks for all the great information. Me, My name is Mark. 50 years old. The doctors found 11cm RCC tumor on My right Kidney in Jan 2015. Removed same month. Recovered great and feeling good. No meds, as of yet. Surrounding tissue and lymph nodes where clear but did have what they call…
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New to this
Hi all, I am so grateful to have found this site. I had an MRI for a uterine fibroid and they found a mass on my left kidney. A week later I had laparoscopic hand assisted nephrectomy. a 5.2 cm stage 1 grade 3 tumor was encased in the bottom of my kidney, margins were clear and pathology stated the it had to be grade 3…
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squamous cell carcinoma of the kidney
My family member has recently been diagnosed with squamous cell carcinoma of the kidney. His kidney was removed after a long standing history of kidney stones, and since, a large tumor grew in its place and has also been removed. He will be receiving chemotherapy. Does anyone know any other option for treatment ?
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Scan day-NED
my excitement about sharing my scan results took a slap in the face when I read about Neil. It is a harsh reminder that we are up against an ugly disease. I will always be grateful for his support and nutrition expertise. His knowledge is almost irreplaceable. Be well all, my prayers are with Neil's family tonight first,…
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Just found out
I just discovered in the past few weeks that I have kidney cancer. I am scheduled to have my kidney removed next week. I have been lucky till now and have never spent a night in the hospital my entire life. Now I am terrified. I am lucky and have a great group of friends and family for support. But I could really use some…
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Nanosecond has passed
The sad news just came across on SmartPatients that Niel F.(NanoSecond) has passed. His wife says he had been declining severely the last few weeks. He is another one that was such a rock and was always there to try to help anyone and everyone. I knew his treatment was not working and knew this day would come, but it is so…
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I have cancer and it sucks
Hello all, Just feeling a bit anxious and need to vent here a bit. Tomorrow I go into oncologist to find out the results of all my scans he wanted. As you know I am stage 3 chromophobe. I have so much anxiety thinking about tomorrow. Ive always though of myself as a optimistic person but since this cancer diagnosis I am…
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New Member with Kidney Cyst's
Hello to everyone, I am 57 years old male. 14 days ago I started not feeling well and had a med amount of pain around my right back rib area along with low-grade fever. I went to the doctor and she ordered a battery of tests along with an abdominal ultrasound. I was called back into the office a couple of days ago so the…
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Has anyone had Stereotactic radiosurgery??
Going to have my left kidney removed Thursday. They found some spots on my lungs and said I might have to have Stereotactic radiosurgery. That is when they pin point the cancer in the lungs and treat it with high, exact does of radiation. Has anyone had this type of therapy before? Thanks kathyStereotactic radiosurgery???
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End of Days Decisions
I met with my doctor today and we had a talk about the end time. I am not nearly there yet, but after reading an article the other day that was posted earlier this week stating people with advanced RCC rarely make it to five years 12 percent I believe was the number. It got me to thinking since I am now one year with stage…
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Follow up MRI Report
So I initially posted that they found a kidney mass (small 1.1 x .5) which showed "probable enhancment". I was told to get a f/u MRI in three months to see if the mass grew at all, because the radiologist & urologist couldn't guarantee that it was maligant. Had my f/u MRI on 7/21 and I got a hold of the report. I don't…
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Partial and Cryoblation
Hi there, I was wondering if anyone that has had a partial if their doctor also told them that they performed cryoblation during the surgery? Has anyone heard of both procedures being done for parial patients? Thanks
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Votrient working wonders in only 2 months
I had my 1st CT scan after being on Votrient for only 8 weeks. It was VERY good. On 400 mg a day. My nodules in kidney, liver and both lungs have either disappeared or shrunk. Some as much as 50%! No new spots. Side effects minimal. High blood pressure in first week but lowered dose from 800mg to 400 mg and now under…
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Waiting on Surgery to remove left kidney and already living with a j-pouch from UC
Hi everyone, My name is Ginger and I have been diagnosed with cancer on the left kidney measuring 6x5.8. I have not been told what stage this is but I do know that from the MRI with contrast that all my surrounding organs are fine and my chest ct scan is normal as well. My surgery has been scheduled for Aug 11 and now I am…
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Don't you love it when
The insurance conce company phones up and tells you you cant have a CT scan cause they have less expensive options. "And are they in the top 50 hospitals at treating my kind of cancer? I ask No. Then I'll continue with the treatment my oncologist recommended, where he he recommended. Bloody bean counters trying to dictate…
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Confused about the staging & stress for the path results tomorrow.....
Hi there, As I told before, my partner had a radical nefrectomy (left) one month ago. One lymph node was clearly swollen on the scan, and also the blood vessels surrounding the kidney marked positive on the contrast. They removed the kidney, the adrenal gland, and the lymph nodes and blood vessels. They called that a stage…
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BIG news in treatments: Opdivo study halted EARLY, and another drug coming too!!!
Stopped a clinical trial of its drug Opdivo six months early after the therapy kept kidney-cancer patients alive longer compared with those taking a standard treatment. In the late-stage study of 821 patients who had been previously treated for advanced renal cell carcinoma, Opdivo met the primary goal of improved…
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Anybody hear anything about Djinnie?
The last time I heard from Djinnie was June 17th. She wrote me that they didn't find a brain tumor - they did several tests to make sure - and that she was returning home from hospital the next day. I have heard nothing more, and I have emailed her several times. If anyone has heard from her since June 17th, please post.…
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Alternative Medicine
Has anyone with advanced RCC that has spread to the lungs turned to alternative medicine? If so what, where and did it worK? THANK YOU IN ADVANCE!
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Scan Frequency Post Partial Nephrectomy for Low Risk Patients?
I had a partial in July 2014. I was in the low risk group. I had scans at 6 months and 1 year, both clear. My next appointment is 1 year from now. I thought I would get scanned every 6 months for 3 years. But the guidelines from the American Urological Association say: "Abdominal imaging (US, CT, or MRI) may be performed…
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12 Years Behind icemantoo But I Will Take It
A man walks into a hospital, sits down in the examination room, and walks out with a new friend--NED! One year checkup today, and all clear. I feel a little silly posting because I had a small 2.9 cm tumor. But I want the newbies to see that things can turn out great. I was initially told I would need a radical nephrectomy…
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Painful Ribs - Met to Ribs Question for those with experience
Hi everone. Sorry I've been AWOL. :) Work has been crazy and I've had very little me time. I just had a CT scan (no contrast) of chest/abdomen/pelvis about a month ago that was all clear. I've developed a very sore spot in the middle of my right rib cage. It feels like I bruised it. I mean it doesn't hurt unless I push on…
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Thirteen Years NED
Reflections of my journey . Six days from today I will be 72 years young. Ten days later I will be a lucky 13 years NED. Back in 2002 I was a clueless newbie trying to learn my way around the bases. It started by doing some heavy yard work that spring and then peeing red. My GP thought I just broke a blood vessel, but sent…
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Just found kidney cancer
Just found kidney cancer. This is a new discussion board for me. Last year I had Anal Cancer and all is well with that. Went for a cat scan and they found a tumor on my kidney and inmy adrienal gland. I don't go to the uroligist until tomorrow but I did some research o line and it looks like I might hae stage IV which does…
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signs after radical nefrectomy
Hello to you all, With interest I read some of the info on this website....unfortunately google brought me to this website because I searched for "kidney cancer", bad words... My partner had a radical nefrectomy 3 weeks ago.....43y old, fit as a fiddle, never smoked, never obese, lots of sport etc.....out of a blue sky he…
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After targeted therapy?
Greetings all - My Mom was diagnosed witih clear cell RCC in 2010, with lung mets appearing in 2011. She's taken Afinitor, Votrient, and now Inlyta. Each has resulted in stable disease for a little over a year with generally tolerable side effects. I would love to hear anyone's thoughts on treatment they've received after…
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29yo 3cm mass on left kidney
Hello all, I recently had a CT scan to rule out some other issues and they discovered a 3cm mass on my left kidney... I was promptly sent to a urologist who was talking with me about masses prior to looking at the ct basically there are basically 2 types cystic which are always benign and then those that are almost always…