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Kidney Cancer

Archives for April 2015

11 late stage clinical trials of Roche immunotherapy drug MPDL3280A
This is good news. More weapons in the immunotherapy arsenal against this horrible disease. http://finance.yahoo.com/news/roche-aims-11-immunotherapy-cancer-160639986.html
MRI Contrast in Patients with Kidney Disease
I had quite a shock today. I visited my nephrologist for my checkup and I mentioned to her about the two oncologists having a disagreement over the CT contrast. One oncologist will not give me contrast if my creatinine is over 1.5. Because of this, I've had no contrast CTs in the past 2 1/2 years. The other oncologist said…
New to CSN, recovering from partial nephrectomy
Hello CSN & Partial Nephrectomy community. I am recovering from a partial nephrectomy which took place at Methodist Hospital in Germantown, TN on March 20. My Dr. found the tumor (turned out to be renal cell carcinoma) on my left kidney during a follow-up to a kidney stone incident from early January. In short, it was a…
Everolimus - Liver Lesions
Can anyone tell me if they have experience with Everolimus working on liver lesions? I have two sizable lesions on my liver, I was taking Inlyta and it shrank my cancer everywhere but my liver. The liver lesions grew by about 20%. So they pulled me from Inlyta and put me on Everolimus. I started the therapy this past…
IVC invasion
Hi everyone does anyone know anything about IVC invasion has this happened to you if so what treatments are available for this Many thanks for any advice Angela
3 years since nephrectomy
Yesterday it was 3 years since my husband had left nephrectomy. He was diagnosed on March 22nd, 2012 with stage IV RCC, mets to lungs , brain and spine at young age of 32. Today he is doing great after full nephrectomy, 4 rounds of HDIL-2, 4 times cyber knife for multiple brain mets and 3 weeks of radiation for spine met.…
Awesome fist Votrient scan
Again, what an awesome fist Votrient scan Way back in 2011 I had an enlarged mediastinum lymph node located in the subcarinal region, EBUS biopsy was negative for malignancy. It did not change for about 3 years. After catching a cold or for some other reason it went haywire, coughing was my symptom. My cough was so bad or…
Scared myself - hypochondria?
First of all let me say my admiration for the courage you all posses has left a lasting impression. I am not sure what I'm doing here, but Dr. Google led me here while googling. I tend to be obsessive over any research whether it be buying a vehicle or health. I guess I'm just looking for opinions from been there-done that…
ct scan results
Well results are in. Plueral-based metastasis in right upper lobe reduced slightly in maximal dimension from 22mm to 19mm. Left upper lobe metastasis reduced in size from 8mm to 5mm. Multiple other pulmonary metastases show similar reduction in size. Medially at right costophrenic sulcus a metastasis is again noted. This…
HELP please - diagnosis process; how do they know for sure???
Hi there. I’d really appreciate if anybody can share similar experience. My sister is my world. I have no desire to keep going if anything happens to her. What are the chances of this kidney mass being malignant? She’s 44 years old and had a CT scan. The Dr ordered MRI saying the CT scan cannot tell for sure: "Solid…
Please excuse my whining...
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Musicians: a dumb idea
So I play guitar, harmonica, and used to be able to get by on mandolin and tenor banjo. Fox plays guitar Thax plays mandolin. There must be a way (Skype?) that we could put some music together. We could be Hey Hey we're the Lumpies
Verdict in. Round 2 ....here we go!
Hi Everyone, Well after having to wait a couple of weeks because of getting previous scans from prior medical facility the verdict is in. What was a 5-10% chance of a tumor recurring in my right kidney after a partial nephrectomy in 2012 has become a reality. This new doctor is also convinced that the pain I began having a…
How about a thread for people not recently diagnosed?
This forum has helped so many new people learn information, make decisions, and cope because of the support of others. Anyone who has been here has benefit from this network. Newer people have reached out to each other and found they aren't alone. But I was thinking, there are a ton of us at stage 3 or 4, who have been…
Liver cyst or metastasis?
Hello everyone, I recently have reported NED for my fiance. But yesterday's post by RMollinaro on liver lesion has scared me very-very much... :-( The matter is that follow up ultrasound showed small 5 mm liver cyst, which was not not detected on US and on CT with contrast 4 months ago prior to surgery. The doctor doing…
3yr scan results= NED
Yeehaw is all I can say! I wish everyone here NED in their journey.....especially Fox and Djinnie! You're both (and everyone else here) always in my thoughts and prayers!!
Neil ? Whats up with that tongue Jason
Have not seen any posts or responses from Neil anyone know anything?
New to the cancer world.
Hi gang, my name is Jo. A few months back I had a kidney stone and went to the er. They found a 3.5 cm tumor on top of my left kidney. On the 24th of march the Dr went in and removed the tumor and some of my kidney. It was done laposcopically with the robotics. Since surgery I have had a tough time. I was suppose to be in…
Stage I - first 3mth scan showed liver lesion
A bit of my background - had baby in July '14 returned to the hospital 10 days later to have my appendix removed when they found the tumor on my kindney. Skip to September '14 had my right kidney fully removed. My patholgy report came back and I was staged T1b. At my follow-up my doctor said "Everything is great. We caught…
Everest Trial Drug
I've only seen one post here on the Everest Trial. My husband found out that because of the size of his tumor he is able to take this. Does anyone have any information about it and do they think the benefits are worth it. Know it's a crap shoot because you are either taking it or a placebo but just looking for some…
Stage 4 Treatment Plan
I'm probably opening a can of worms asking this, but here goes... Just for some background, I'm currently Stage 4 but NED. My second tumor in my adrenal gland was just removed via surgery. I had clean scans last week. Looking forward, I'm trying to decide whether to stay where I am or move to another hospital. I'm not…
Post Torisel - Chromophobe RCC
I was treated with torisel over a year ago and got some radiation on a bone met in my pubic amus in February. It seems as though things are a bit "active" again based on a CT yesterday. Doc says things are progressing slightly - but slowly (like chromphobe does). I have two questions - does any one have any advice on bone…
The respected journal Science
Has a special on CANCER IMMUNOLOGY AND IMMUNOTHERAPY in this weeks edition. a bit heavy going but it seems to have the scientific comunity pretty excited
Waiting, waiting
Had my 18 month scans on Wednesday (ct of chest pelvis and abdomen)....get results on Monday morning....cautiously optimistic.....hoping for a good weekend for all....xoxo
Djinnie, how are you?
Djinnie, if you are checking out these boards, please let us know how are you doing? Thinking of you...
AMAZING news....!
Guys, THE WIFE IS PREGNANT WITH OUR FIRST!!!!!!!!!!!!!!!! About 8 weeks; we've known for a while. Just wanted to make sure everything was going smoothly before we told anyone! But, boy did we need some good vibes! - Jay
Scan Day - Nervous
As the rest of you can appreciate I had my scan day yesteray and I am about to leave to get the results. I am obviously very nervous and fearful of what I might be told. I assume this is common. I am an eternally optimistic person by nature and see the bright side of every situation, but my nerves are not the best at the…
How do you do it
Hey folks new to contribution, not to reading the posts. I'm really a bit of an introvert but I'm starting to feel a bit cornered by this crap(ccrcc). I had a radical rt nephrectomy August 1 2012 and chased it with a pazopanib test trial. I got the drug or one heck of a placebo given the white hair and 70lbs of weight…
3 years NED
Got my MRI results today and they were good as I expected. Three years cancer free
Creatinine and CT Contrast?
My current oncologist won't give me the constrast with my CTs. My creatinine is 1.6 to 1.7. He wants to see it below 1.5 or he won't risk it. I recently visited another oncologist with many years experience treating kidney cancer patients, and he said he'd give me the contrast but he'd just hydrate me really well before I…

Kidney Cancer

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