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update
I think that all relatively new people aren't aware of some of our stories. I'll try to briefly do an update of mine. I was a very fit 58 yo. Always played sports. I've weight trained since about 12 yo. I've been a runner since my late 20's. I've run several marathons including Boston and New York. I had picked up my…
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GS Ron's YouTube Video
Those of us who knew and loved Ron can now SEE him up and close. Miss you so much Ron~ Jan http://www.youtube.com/watch?v=4cZGTtyA5OQ
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Lower back pain on the right side....
So, I had a radical nephrectomy back in October. I have been experiencing lower back pain on the same side where my kidney was removed. My question is, could it be something to be worried about, or could it be just the change in weather! I know aches and pains are associated with the colder weather and i just wanted to…
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member participation
Just a vent. I've been here 3 years now. I came here like most of us do. I had questions. Needed answers. Once I got them I didn't abandon this site. I shared my experience and progress with those that helped me out. And those newer than me who I was able to help. My testing, biopsies, surgery, information on clinical…
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advanced kidney cancer
Hello I am new to all this, I had an open nephrectomy in May to remove a 9.8cm tumour and my right kidney, I was then found to have (was told 2 lung mets) on right lung, after ct scan and seeing oncologist in September I was told that I have multiple metastasis in both lungs, have been started on pazopanib (votrient). I…
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Bone,lung,brain mets. Signs & symthoms
Hi everyone What are the signs and symthom of bone/lung/brain mets? How long does it take that the patient can feel it? And how can those pains be described?
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complex renal cyst 11cm in the left kidney
Hi there, I have just know that I have complex renal cyst after doing CT scan. Suffered from low back pain which was vey severe few days ago,fever and slight haematuria, been admitted to the hospital where I did the CT. There is no metastases ,only few local lymph nodes. I am 60 years old. I have very little information…
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Checking back in
Hi all, I am checking back in.. its been a rough summer... In April, Chuck took me on a surprise trip to Pa for my Birthday my Mom had been having health issues.. and I was concerned... The trip went great and she looked good.. however she had a large lump in her neck...Two weeks after the trip she was having exteme vision…
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Stomach flu and only one kidney
Hi everyone, Has anyone had to deal with this? I'm worried about the hubs, he's come down with a nasty stomach flu courtesy of our 8 year old. It's puke central around here, and I'm doing my best to keep them both healthy but now I'm worried about the one kidney issue. If anyone has any tips while I wait for the doc to…
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Sutent Update
Ok, 10-days down. On 50mg take late afternoon. Some issues with mouth/tongue but minor. Some issues with "movements" but they are minor and considering I had constipation for 7+ months on the clinical trial I am OK with how things are going now. Joint pain from the clinical trial is going away. Still have fatigue but…
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Diagnosed stage 4 just one week ago; very scared and alone.
Came out of the blue. Urinated blood for the first time ever in my life and a long story short; I have a 9cm tumor in my right kidney and 9 metetastic lymph nodes to keep it company. I've started going to Dr Jonathon Harper and Dr Scott Tykodi at the Seattle Cancer Care Alliance, but no treatment plan has started. Harper…
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3 time loser
That's what I'm calling myself. But more appropriately, it's more like Cancer Version 3.2. On Monday this week, I was diagnosed with breast cancer, with spread to axilla nodes. That makes 3 cancers, and 1 additional borderline form in 2 years. I'm in shock. But not surprised. I don't know what the treatment plan will be…
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Wilms tumor
Hello everyone I want to share my story, even though it just begun. I am 18 years young, I was healphy and fine until this autumn. I had very big pain in my back and after few days I got high fever and sudden lost of body mass. Soon after that I went to family doctor he said it probably just muscle inflammation. I drunk…
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Hair Loss
I have an open radical nephrectomy in August. I was told that they got it all and that at this time I do not need any further treatment so I am not on any medications. I am finding that I am losing a lot of hair. My hair is now about 1/2 as thick as it use to be. Is it normal to have a lot of hair loss and is it going to…
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Sad news
I just read on another forum that GS Ron passed away on November 6 from kidney cancer complications. i am shocked and saddened with this news; I had been missing his posts but thou he wanted a cancer break after learning of his cousin's impending death. Ron was so positive and supportive and I thought getting better. if…
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Sutent & Radiation Therapy
Can a Radiation Therapy treatment administered at the same time with Sutent ?
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Questions about my first three month CT
Hi everyone I go for my first three month CT 10 days later; I'm very anxious and fearful for the result. I had random little pain in my chest so a Chest Xray was ordered last week. No mets in lung and chest bone were seen so I know there aren't big ones, have no idea about very small ones which can only be caught by CT!!!!…
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Sixmonth CT Scan tomorrow
Well, tomorrow I go for a CT. I feel fine, my blood pressure is fine, I have an appetite, why am I worried? Just thought I would vent as this is driving me nuts.
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chromophobe
Has anyone ever heard of scar tissue in a kidney after a partial? He lost 20%of his kidney to renal cell chromophobe two years ago. Last scan was in May at Cleveland Clinic. All was well. He had pain a few weeks ago and his primary dr.sent him for a ultrasound. He got a call that something was there maybe scar tissue. He…
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Off to Aruba
I am going to take a 10 day vacation from this board as I fly to Aruba on the 12th. I am going to take the 18 year old girl I met on the beach for her 70th birthday. Anybody have any suggestions for Aruba. Meeting one 18 year old girl on the beach is enough for me. Icemantoo
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blood in urine
I was diagnosed on December 1, 2011 with RCC. I had my kidney removed on December 14th. Today I had my yearly visit with my OBGYN and explained that I was feeling pressure around my bladder and lower area. I have a really bad back so that always hurts. Anyway, she did a urine test and there was no infection however, there…
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tumors that disappear???
Hi everyone, Have any of you here had one or some of your tumors disappear? The doctors planned surgery for next week and now they are not finding the tumors. Does anyone know what that means? I'm very worried. It was a good thing to know where there were!
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IL 2
My husband and I are meeting with the doctor on Thursday to see if he is a can move forward with IL 2. He was cancer free for almost 4 years when he went into the ER for back pain. The kidney cancer had moved to his spine, rib and lung. They removed as much in the spine as they could and stablized the area. We are now…
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Surgery date and question for those who have had open nephrectomy
I will be having my laporoscopic full nephrectomy on Monday, December 8th. Due to previous abdominal surgeries, they have prepared me for the possibility that if the internal adhesions are too severe, they may have to switch to an open. For anyone who has had an open, did they have to break your rib? While my surgeon said…
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Hard day
I'm having a hard day today feel overwhelmed and sad. Still not sleeping at night and there is a hamster wheel going on in my head. was doing good but for some reason I'm really scared again. I really can't wait until this is over. I also have a sore throat so today I think it has spread cause I usually don't get sick.
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Urinary tract infections
Background: Right total nephrectomy 9/2013, clear cell, stage II (tumor size 7.5 cm), clear margins on path. CT scan of chest, abdomen & pelvis 3/2014 NED. CT scan of abdomen and chest x-ray 9/2014 NED. This afternoon I saw my primary care doctor. I told her that, just today, I felt the start of some pressure in my bladder…
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Wants to keep it a secret
My boyfriend is 21 years old and has just been diagnosed with stage four kidney cancer. His doctors are impressed with the state of his health however and gave him 2 years to live without treatment which is very uncommon for stage four from what I've been reading. They have prescribed him an 18 hour long laser surgery to…
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Checking in
Hi everyone. I haven't been back in about six months, since my husband passed away. I intended to stick around and pay the support you all showed me forward, but ended up feeling too overwhelmed to come back. I think about all of you often and was happy to see posts by some of you I remember. And I think I'm ready now to…
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Have open partial and sooooooo scared
Like a lot of people one this forum my mass was found accidentally. I was passing a kidney stone and it was discovered on the ct. As you all have been through this you can imagine my surprise and shock when I found out. I am scheduled for partial on dec 1st. My mass was 3.8cm and from what i was told I don't have it…
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6 month follow up Ct question
Met with my doctor yesterday for my 6 month post op follow up and to get my first follow up ct results. There were several new spots, very small, that we're not present om last ct. Doc says it could be calcifications or some leakage from a nephron in my kidney. Out original plan was to be seen every 6 months but now he…