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9 Year RCC Survivor!!
Good Morning! Exactly 9 years ago we were in the hospital and Dennis was having his kidney/adrenal/large cancerous tumor removed. That makes him a 9 year cancer survivor!! I am thankful that he is still around!! Statistics for 5 yr survival were pretty bleak in 2004. After that surgery we thought we were out of the woods…
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Votrient has failed for mom and potentially starting Avastin...scared, nervous, worried, skeptical,
Hi everyone, Haven't been here to post in a while, but there has been so much going on with mom. As some may already know, my mom was diagnosed with stage iv clear cell rcc with multiple mets to both lungs and liver in July of this year. She had her left open radical nephrectomy on August 1. She started Votrient 600mg the…
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HDIL2 to Sutent update
It has been awhile since I have posted, sorry. My prayers go out to those struggling. Thanks to those that are leading the way in trials. I am very happy to read that some of you are having success. My run on HDIL2 came to a halt as my kidney and liver could not take the stress. Doctors stated that if I continued and…
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Concerned wife here...husband suffering daily. Wish I could do more.
my husband had a partial nephrectomy in Jan last year. We are coming up on one year Anniversary and the swelling and pain in his side. The bulging where he feels like his insides are falling out. All the while, his drs all said well I m not a "muscle dr" ! it s just the muscle healing. I see him suffer every day, working,…
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chromophobe
I have been reading here for 2 years now since my son was diagnosed with t1a renal cell chromophobe. All his scans have been clear,next one in May. He has had shoulder pain for 6 months and his dr. Called it rotator cuff without any tests. Two weeks in physical therapy and little change,therapist said he maybe needs an…
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Radical Nephrotomy
MY Father went under Radical Nephrotomy and below were findings in the report which i would like to know about: Specimen consists of Radical Nephrectomy surrounded by peripheric fat measuring 18X15X8.Pheriphric fat can be easily stripped of from specimen. Kidney measures 15X13X4.On serial sectioning a mass is identified…
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Test
test
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TW
Has anyone heard anything about Trevor? I've been very worried because I haven't seen anything at all for quite awhile. Please tell me he is doing better?
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Reality Check
I am in the process of closing my Law Office and touching base with my clients now that I am 70. One client I called was in her mid 70's and I had been to Court with her a few months ago regarding her sister's disability. She told me that right after I saw her last she was diagnosed with lung Cancer and had just had Chemo.…
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Some Scary News, But Not Afraid!
Hi Everyone, Sorry I have been out of the loop for a few days, but we just found out on Wednesday that my RCC has spread to the brain. I have about a 1.5 centimeter tumor on my left side that was causing numbness in my right leg and arm, thought I was having a slow motion stroke, but turns out cat scan showed tumor…
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Another pretty darned good report!
I got my MRI report today and it says that the spot on my femur is "attributable to benign hematopoietic change. Nevertheless, short interval 3 month followup MRI of the thigh is recommended in order to confirm continued benignity given the findings of the PET-CT findings". This is one of those "HOTDAMN" moments, where I…
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Blood pressure issues
My blood pressure had been running on the low side just prior to and after surgery, 110/62. Then it started to rise: averageing 135/78. Two days ago it was 122/70. The next day it spiked to 150/84 and this morning it hit 170. I took an extra BP pill and it has dropped to 150. Have a call in to my primary doctor. Anyone…
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Open partial nephrectomy tumor left lower 4.1
Hi I'm 39 yr old male .. Update : diverticulitis never cleared up so I have to get partial colectomy done( damaged area of lower intestines) removed.. And now it has to be open .. I have one of the best dr in the u.s. Dr wood.. Got lucky I guess.. He says w Open PN it will take 3 days in hospital and 4to 6 out of work ...…
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Frustrated
I am so frustrated! My husband has stage 4 renal cell carcinoma that has matastisized throughout the body. On 5/14/13 he heard a pop in his shoulder. About 10 days later, we learned he had a lemon size tumor in his hummerous bone in his right shoulder. On 6/3/13 the doctor did a biopsy and we learned the cancer tumor came…
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Periodic Update (And Associated Apology) from Vin (vdm13)
Hello, friends. First, I'm sorry that I don't get here more often. I always worry that you all worry when you don't hear from one of us for a while. Be assured that if you don't hear from me, I am living my life to the fullest, readily forgetting that I have cancer, and doing generally well. I remind everyone on the board…
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Disappointed in no response
I had posted earlier today about my husband's path report; I feel disappointed in getting no comments and yes, I am stressed and anxious so maybe I am reacting. please share some thoughts would be most appreciated. sarah
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HELP! Have an appointment early tomorrow
Hi Friends, I got a call this afternoon that I have an appointment to see the uro-oncologist tomorrow morning. So I had to race around this afternoon to get disk copies of the scans that have been done so far. I brought them home, and my husband loaded the cds on the computer. Kinda cool, actually....but looking at the…
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Thoughts?
finally got a written path report from my husband's nephrectomy and would love so,e input/interpretation. we will be sending this to Mayo so that we can get some opinions. Histologic: renal cell, clear cell grade 2 10 cm within kidney: superior pole renal pelvis: tumor grows around renal pelvis ureter: normal renal sinus:…
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Fresh out of the Hospital with Partial Nephrectomy
Hello, Everyone! I'm encouraged to read the posts you'll all put out there. Thank you for sharing! I'm curious if any of you have felt what I'm feeling: a week out of surgery, my tummy area feel bloated and a bit tight. I had some problems with bowel, but cleared that up with magnesium citrate. Urinating fine. What…
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New Primary in Remaining Kidney?
My husband had scans in October when he finished his 5th cycle of Sutent - 50mg 28/14 (following a left nephrectomy mid-February, 2013). When the 12cm tumor on his kidney was discovered, they also discovered "innumerable" and "too many to count" nodules in both lungs, as well as some bone involvement. The good news is that…
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Primary Kidney Cancer - now primary lung cancer
Hi I am back from the stint in the hospital where they removed a lung nodule (I had the left kidney out in September). They took the nodule from my lung out and it's also primary lung cancer - not kidney cancer spread to the lungs. Is this survivable - the lung cancer is very small and it's stage 1. I have to have a right…
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Can someone please explain....how does 'Chromophobe' differ from Clear Cell, and....
Just returned from my first surgery follow-up. I learned that my 4cm mass was chromophobe (not clear cell?), stage 1B, with a grade of 3. It's my understanding that the grade has to do with the chance of recurrence (though the PA I saw today told me not to read too much into that). I also know chromophobe is more rare than…
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Pathology report brings good news
I learned yesterday that the 2.5 cm tumor was not malignant. It was an oncocytoma, according to the pathology report. Fat adjacent to the tumor was also benign ... The specimen tested consisted of a 4.2 x 2.8 x 0.1 cm portion "of renal parnchyma ... The cut surface have a 1.6 x 1.4 x 1.4 cm mass that is grossly wihin 0.1…
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feeling stupid and frustrated
I am SO frustrated! I have called several oncologists in my area, in hopes of getting an appointment and all of them have told me the same thing. Unless I am currently diagnosed with cancer, they will not schedule me. Furthermore, most of them make me feel stupid for even asking, when they say things like, "we only see…
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How do you deal with kidney cancer that goes terminal?
My husband has stage 4 RCC that spread to multiple spots. He started Votrient and a month ago the PETScan showed the volleyball size tumor shrunk 40%. However, there are now 2 spots in the liver! The oncologist said to enjoy each day as long as we can. We were told surgery may be done and now that it moved to the liver the…
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Kahlahari Survivor Trip and t-shirts
Group, Almost 3 weeks ago I sent an order form to the 15 or so of you I had emails for, for t-shirts for our First Annual Kidney Cancer Survivors fun weekend in Sandusky Ohio. Unfortunately I only received a couple of orders so I have decided to try again in February. For those of you who would like to join this fun…
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Curing Cancer or..??
Hi All... Yesterday I was again bombarded by a well meaning fellow with "Have you checked this guy's Cancer cure..?" Of course I immediately suspicious based on the fact that I have heard zero in this here or on S.P. forums. Turns out I was correct.. another attempt to extract money for those desperite for hope.. Sadly we…
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Newbie
I was diagnosed with RCC after having every test known to man. I should be glowing brightly. I had a partial nephrectomy. There was no cancer. They told me 98-99% cancer and must have surgery. What do you think? I am lucky but having a hard time recovering from surgery. Could they have read the pathology report wrong?
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suspicious area 2 years later
Hey guys. I had renal cell carcinoma in october of 2011. They did a radical nephrectomy and removed a 6cm mass which was totally contained. They also removed 3 lymph nodes around it and a portion of my adrenal gland. all test came back negative for the lymph nodes, renal artery, renal veins and adrenal gland. Today I had…
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1 month post-op, & I just don't feel well.... Insight, anyone?
Hey, everyone -- This is Terri. I'm 46, and am one month (tomorrow) post-op after my open radical nephrectomy to remove my left kidney. I am taking Advil for some minor discomfort (mainly where my 10" abdominal incision crosses my c-section scar). For the past week or so, I have just not felt 'well'. I feel very tired &…