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update Chucks 12 week scans ( Nivolumab+Ipi phase 1 trial)
Hope everyone had a wonderful 4th! Chuck had his 12 week scan Friday..small recap...Chuck was diagnosed with Kidney Cancer last July and restaged to stage 4 in November.. when lession was found on his liver and biopsied.. in Jan and Feb he underwent HDIL2 ..which at the end ended up being no sustained response..Chuck has…
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Turning 70 and Kidney Cancer
I turn 70 this month, I am an 11 year survivor of RCC and I have nearly 1000 posts. Here are a few of my thoughts about the past, present and future. 1. 70 years from now Stages 2, 3 and 4 of Kidney Cancer will be eliminated by advanced and regular scanning procedures. 2. 70 years from now all Stage 1 tumors will be…
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Good web site
I found the site at kidneycancerinstitute.com to be helpful. It explains the procedures for removing kidney cancer and has videos showing the operations and explaining what happens. It cleared the confusion for me on why doctors don't like to biopsy kidney tumors.
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Security Issues?
In the past week I have been utterly unable to post or comment here. I keep getting messages that for some reason I have been blocked and referred to customer relations. Has anyone else experienced this? I'm writing this in hopes of it getting published but I simply have to try and hope. Michael
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Hello again, and thanks.
I'm having some issues figuring out how to use this message board. Thank you all for your warm welcome to this group--though the initiaion felt something like hazing. :(
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Hello
Good afternoon, I have been "lurking" on this site for the last couple of weeks--not posting for fear that I had nothing of value to offer. I'm still not quite certain I have anything to offer, but I wanted to introduce myself. My name is Anne, I'm 50, I live in Albuquerque and work in Santa Fe, NM. I had a CT scan Friday,…
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Am I the only one?
Since being diagnosed with stage 4 RCC, and having completed 4 terisol treatments, I still run low grade fevers everyday. My Dr says that that is consistent with my cancer, I take Tylenol alternately with Advil every 4-6 hours just to get me through the day. Does anyone else have this problem? My fevers run from 99.6-101.9…
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Position available
Position available for the "new" poster boy of MDX-1106 or clinical trials for that matter. For the newer members here is what you may have missed. Left radical nephrectomy in march 2011. By oct. 2011, loaded with mets with life expectancy of 6 months or less. Several cancer centers only had to say,"Good luck." Fortunately…
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5 days post op....
Well its been 5 days now and still really sore. maingas pains. Itd a lil different to get comfortable. Proplr get aggravate d that I move so muvh, afraid I will bust somethinh open',,, any suggestionsn on becoming moremcomfotable?? "Can I lay on thr side I had surgery? ? Thanks
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Dandelion Tea helping Patients with cancer?
http://naturalsociety.com/dandelion-tea-cancer-killing-157000-research-grant/ I saw this link and thought i would share. Any input on this?
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Seven years ago....a long time
Seven years ago, I was told I might live 5 to 7 months, unless...someone or more could do surgery, and they might be able to remove all of it, and maybe it might work, and there might be a trial drug. I was over the moon when 3 physicians at Oregon Health and Science University got together with me in the same room…
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What gets you through?
I was recently chatting with someone and the topic of my new favorite song came up - Thistle and Weeds by Mumford & Sons. It became my favorite during my whole ‘You have cancer’ ‘No you don’t’ roller coaster. The last part of the song’s chorus repeats “I will hold on”. If you don’t know the song you should look it up –…
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Follow-up to Surgery Routines
Hello everyone! I had my laparoscopic radical nephrectomy (left) to remove my stage 1, grade 2 clear cell renal cell carcinoma on April 16. I have been recovering very well. At this point I feel nearly 100%. The only pain that I experience is very mild when trying to jog or run. I do have extreme numbness that extends in a…
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Anyone else having trouble
Anyone else having trouble getting signed into this site lately? I finally got on tonight after trying off and on for about 3 hrs. I couldn't get on at all last night. Just wondering if others are experiencing the same issue.
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The dreaded Diarrhea
Hi All..! Well not a fun topic, but one worth getting input. I am on Votrient, but decided this is to much a broader concern so I started a new post, Vs adding to the Votrient thread. So, I have been taking Imodium daily and it had been a big help. But in the last week, the Diarrhea is worse than ever, I have now increased…
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2 Months post Lung Surgery - new nodules?
Had surgery on 4/30/13 to remove 2 nodules that were on the outside of my left lung which flaked off from the kidney. Have one "speck" of dust on the outside of the right lung that they are monitoring. So I start coughing a couple a weeks ago and go to one of those "Doc in a box" places where you just walk in to be seen. I…
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Kidney Cancer Association Newsletter
In the event some of you do not receive this. http://e2.ma/message/6mfwe/yobsre
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Had some bad news today from a Scan
I have been having some bladder infections on and off for some time. Treatment seemed to help for a while and then it would start again. A recent test showed a multi strain bacterial infection of unknown origin. Anyway the pain had become so bad that I was sent for a pelvic scan today. The results were not good, I have a…
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I'm alive!
I just wanted to introduce myself. I have been joking that I am not very good at "owning" my cancer but I feel like I could use some support at times and I think that it might help people to hear my story. I didn't have it that long so it still doesn't seem real to me. I visited my doctor because I had some pain and I had…