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Sometimes life sucks!
Good day my firends, Like many of you, I have had my share of being touched by cancer. Both my parents passed from cancer (MM for dad and lung cancer for mom). I have lost an aunt, a grandfather and multiple friends as well. I have personally dealt with kidney cancer this last year and am currently NED. Each time stepping…
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Cyberknife then IL-2 and the Cyberknife
Hi All, I have posted earlier too, but here is latest update: My husband who is 33 now, was diagnosed with Kidney cancer about 15 months. Lesions in brain and lungs April- left nephrectomy done May- Cyber knife for 3 lesions in brain July and October- HDIL-2 Scans after IL-2 were wonderful. in November scan showed only 3…
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Essiac?
Has anyone tried Essiac tea? A friend of mine insists it helped her father-in-law with his cancer, although not kidney. Just wondering if this is yet another way to get me to spend money and not be helpful.
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Nivolumab-Sutent trial scan results BMS-936558
Hello all!! I am happy to report that my scan results on week 24 of the trial show no measurable disease! I started with a 3.4 cm tumor in my adrenal gland and two small lung nodules. The nodules are gone and my adrenal gland shows no measurable cancer yet is still slightly enlarged. I am actually happy to continue wih two…
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Scans
Had my first scans earlier this month since being on Votrient. 30% Shrinkage with no new growths. Now if I can just find food that tastes good. Losing weight because I am not eating nothing tastes right.
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Muscle Density Linked to Survival in Metastatic RCC
It is the density NOT the volume that counts. http://www.cancernetwork.com/display/article/10165/2149734
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As Promised!!!
see i told ya it was only a little tattoo!! eims x
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Update @ 6 weeks
Hello all. I have been away from this forum for a week or so only because I have been unable to log in or when I can get in I couldn't post. June 17 is 6 weeks post surgery for me. I am in the middle of my second week back to work. The first few days were kind of tough because of the drowsiness at the end of the shift but…
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Is anyone in the LY2875358 trial?
Hey team, So my scans from almost two weeks ago show mixed results. Some nodules on my lungs grew just slightly, some did not change at all, and the enlarged hilar lymph node is the same. My oncologist thinks it is time to move on, and wants me to consider the LY2875358/anti- c-met antibody trial. I think this is the…
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Moffitt visit
Met with Dr. Wade Sexton at Moffitt Cancer Center today. He is recommending partial removal of kidney. This process started because I was having a burning pain in my right groin after doing a couple of miles on treadmill. I was fairly certain I had a hernia. But ultrasound, CT scan and two doctors said no. The scan,…
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Here You Are Eims!
In keeping with Eims' request, this picture is my one and only tattoo! I got it four weeks to the day that I got my diagnosis. I was/am 66! We now need to ratchet up the pressure for Eims to show us apicture of HER tattoo, cermoniously located, she claims, on her upper left buttock! Do I hear a poll in the offing? Michael
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Questions?
Day 14 and still in alot of pain...not near the sites tho. the pain is in my left hip and little down my leg. Stinging/burning pain. Again its not near the incision sites. My incisions feel and look good. Thoughts?
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OK, I'm going in!
Being admitted today for the Il-2. Maybe I can post during the week. (if I can get on). I'll let you know how I'm doing when I can. I'm in a kick **** mood.
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Surgical follow-up/Creatinine Levels
I had a follow-up appointment with my oncologist/urologist/surgeon (5 weeks post-surgery). He said that everything looks good, I'm healing well, I look healthy, blood work looks fine. He did, however, seem to be concerned that my creatinine level was at 1.4, when it had been at 1.1 immediately post-surgery. What are the…
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Scanxiety Summer 2013, or I know something is wrong!
I know something is wrong. I am not sure what it is, but I know it. I am having pain in the chest, at times pretty severe. It has been going on for about 3 weeks. It is usually at the same time of the day, which is pretty weird. It is scaring me. And my ribs hurt. I know the scans will show something. And then I am…
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Follow up testing intervals - how long is ok?
I'm approaching my 1 year anniversary for my surgery [ 07/17/12 ] and have had two (2) follow up CT Scand with & w/o contrast [ November was my first, and my 2nd was March - so it's been slightly over the 3/ year mark, but close. My routine has included Xrays, bloodwork, ultrasounds and to-date have been scheduled for…
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newbe - do I want to wait or . . .
Hi all, yeah, yet another clueless nube here. I'm going to see the surgeon (urologist) on Monday and am trying to figure a few things out before I get there. Brief history of this mess: I thought I might have a kidney stone or bladder infection or something last December and since I was about to take a 12 hour drive I…
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Thyroid out, pathology in
Had thyroidectomy on 4 July - total necessary. Phone call today from surgeon who confirmed RCC. Saw oncologist today as well, doesn't want to start pazopanib until full surgical recovery. Also need a further MRI of L1 vertabrae required by radiation oncologist who is not yet convinced laminectomy necessary - surgeon is…
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I'm Still Here!
I'm trying to post this before things get dicey again. LOL For the last two weeks I have logged in, been able to, eventually, post about one response, then I have had all the rest of my responses to threads blocked by the security system. I don't know what is going on. I am reading, I care, but I am having problems…
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Question about CT scan report
My husband had what we thought were benign tumors in his right kidney for which he would get a CT scan each year to see if they grew. They were first noticed about 2 1/2 years ago during doctoring for a kidney stone that had to be surgically removed. Well, this year they grew. His CT scan was 6/28 and he got a call from…
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Waiting
Ok so here I am at Stanford. Waiting for my oncologist with the news. This is my first scan results on the Votrient. Thinking about the Tom Petty song.. The waiting is the hardest part..
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Are we crazy?
Hi Guys! We're not frequent posters on CSN but I do "lurk" and love the commaradie here! We have a delima and I am hoping you guys can help. If you've followed us on ACOR/Smart Patients, you know my DH is a 3-year mRcc survivor and was on the Nivolumab + Votrient trial last year. He had record results with the trial…
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A new cancer-detection scanning modality
Yesterday my Daughter drew my attention to some new work in the UK that promises great savings in the field of cancer detection. Instead of using radioactive sugar in PET scanning, non-radioactive sugar can be used, far less expensively, in conjunction with MRI scans. This could have a big impact on the numbers. the speed,…
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Book that details how to cook to deal with side affects and loss of taste
There's also a cook book for people in treatment, with great recipes which address specific side effects and gives options for how to flavor the food to appeal to the altered taste. It's called "Cancer Fighting Kitchen Cookbook."
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Time to decide
First of all I would like to thank all of the regular participants of this site for their time and efforts in educating us newbies to the trials and tribulations of your battles. Your posts have been inpirational, educational, sincere and humourous at times. My small town (very thourough and well versed in the world of…
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Cancer spead
What are the chances that cancer cells from a 2.5 centimeter mass has spread. Saw orthopedic doctor today due to pain in my left shoulder. A bone scan years ago when I had prostate cancer showed that both shoulders were deteriorating due to arthritis. The shoulder was X-rayed today, and doctor saw something he didn't like…
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I guess I'm in the club now.. the initiiaton was a bit tricky...
I've been reading posts and gaining confidence from all of you since I was diagnosed March 10th with a 2.5 cm tumor on my right kidney lower pole. After 2 opinions and waiting to get in to see the surgeon in Cleveland Clinic Florida.. my surgery was scheduled for July 5th. I had a lot of medical clearances to get and had…
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First Post OP scan today...results at the Lung Doc tomorrow
I am going for my first post op scans today. Needless to say I am extremely nervous. What I want to hear is "no new spots have been found and the "speck" of dust on the outside of your right lung has not grown or shrunk". What kind of coping mechanisms did you all use to keep calm? Also, does the nervousness get better as…
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Fellow patient shared a weight gaining shake from Nutrionist!
I am copying the email here with the instructions in case anyone wants to know how to make it. <<The smoothies will help with weight. For smoothies, the best coconut milk is Natural Value Organic because it has no additives. Unfortunately, the only place I know of to buy it is Amazon, and they are out of stock right now.…
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Fellow patient shared a weight gaining shake from Nutrionist!
I am copying the email here with the instructions in case anyone wants to know how to make it. <<The smoothies will help with weight. For smoothies, the best coconut milk is Natural Value Organic because it has no additives. Unfortunately, the only place I know of to buy it is Amazon, and they are out of stock right now.…