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HDIL2 after Sutent
Hi All, my oncologist recently sent me to University of Miami for a consultation for HD Interlukin 2. The Medical Oncologist there said he would not put me on HDIL2 because I have previously been on Sutent and a recent study showed a greater chance of cardiac complications. I have been off Sutent for over a year, I dont…
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Do I or Don't I..?
OK, this is a bit of a difficult subject.. but I have a hunch I m not alone on this one... So here I am a single guy... and of course I would like to start dating again. I am also on a specialized dating site... So, the question is... when should I tell "her" about RCC..?? This was brought up on that dating site by a gal…
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can't breathe today (Xp11.2 translocation renal cell carcinoma)
I posted before inquiring about xp11.2 translocation RCC. My 9-year-old boy was dx with this rare cancer. His left kidney was removed in April with other tumors in lymph nodes in tummy. He was on Sutent (12.5mg) for 2 months (4 weeks on, 2 weeks off). He has tumors in chest, stomach and neck now, all in lymph nodes. Today…
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What are the odds?
I had stage 1 grade 3 clear cell kidney cancer in May of 2013. Had a partial nephrectomy. All was good. I had a ultrasound in May of this year. They found a very small mass- 5x5x9 mm. The report came back possible Angiomylonoma. My urologist told me there was no way to tell that this was not cancerous, but it is way to…
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Definition of Cancer Should Be Tightened, Scientists Say
FYI..... http://well.blogs.nytimes.com/2013/07/29/report-suggests-sweeping-changes-to-cancer-detection-and-treatment/?ref=health&_r=0
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My first exposure to "scanxiety"
I must say that "scanxiety" surprised me in regards to severity. I was doing OK keeping my mind occupied, but I am having some interesting symptoms. For the past three nights I have had some pretty nasty nightmares that I cannot get away from. Normally I will have an occasional bad dream but I can force myself to wake up…
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Taller women may face higher cancer odds after menopause
As a six foot tall woman with a sick sense of humor, I almost put this in FunnyBonz. http://www.medicinenet.com/script/main/art.asp?articlekey=172014#.UfZ4JyfrZyQ.email
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Need Your Strength
Hi Everybody, I just lost a friend on Saturday to this God awful disease, Pancreas Cancer, she was 69. She was diagnosed in April 2013 and left us on Saturday (July 27, 2013) at 1:15 pm. Not really sure what to say or do, I am still here fighting, NEDing with Kidney Cancer and am very happy to be here doing so. Guess I…
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Back home-update
Hi everyone! tonight is my first night home after surgery. The whole thing seems like it went by so quickly..although, boring nights in the hospital were a little slow. Here's what I Have observed.: 1) although Mass General is a wonderful hospiial, I'm very glad to be home. I think it's easy to fall into "patient…
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Having beer or a drink now and then.
Hi Everyone: I am sure you all think I am crazy to even ask this question, but I did find on this forum that having a beer or drink does not hurt the one kidney as long as you still drink lots of water. Is this malarky?
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'Scanxiety' countdown......
Scans and bloodwork in a few weks, wish I could frickin' relax.
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Well, here I am...somewhere I never thought I'd be
Hi all. My name is Tillie and I am 3 months post radical nephrectomy (right kidney) with a diagnosis of Chromophobe carcinoma. I've been looking for someplace where I could read and learn and maybe whine a bit every once in a while. :) . Right now, I'm still anemic and tired to the bone, because my left kidney hasn't…
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Dumb question: If my cancerous (presumably diseased) kidney is gone, do I have kidney disease?
Hello All. Someone asked me today if I had checked the kidney disease warning label on my deodorant. Of course, my response was, "huh?" So I got home, and sure enough, there is a statement that I should check with my physician before using this particular brand of deodorant if I have kidney disease. I know this seems…
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John's (one putt) latest scan (Nivolumab/Votrient Trial)
Received the preliminary results of John's (one putt) scan performed on Wednesday (7/24). For those of you unfamiliar, John is 16+ months into the Nivolumab/Votrient trial at Hopkins. His last RECIST report noted 58% reduction in tumor burden. The RECIST report for this latest scan will follow in the next week but the…
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The Cure in sight, or just getting closer?
http://www.southampton.ac.uk/mediacentre/news/2013/jul/13_142.shtml Translation into a treatment will take a while but this is at the right level of abstraction to give hope that a drug may be coming that could stop all cancers in their tracks.
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Six Months on Affinitor Trial for Adjuvant Therapy
Just before my trip to Spain/Italy with my son last month, I had my second set of scans since starting the treatment. All is well. I'm glad for that. The side effects have backed off (I was mainly having some nausea and fatigue). My oncologist said there's a 3 month peak in the side effects and then it tends to taper off.…
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my renal cancer story
First I want to say hello to everyone...I'm so glad I found this site! I've been poking around, and it's amazing to see how many others are in the same boat as I am. I am a 42 year old female, and until recently I considered myself to be in pretty great health. Back in April I went to the dr. to check out a pain in my…
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Things we learn from scans not cancer related
I like to look at my scans. I think it is really interesting to ready the Dr.'s assessment. Of course, the initial focus is on things that are cancerous. Next, I look at my Nephrectomy scare, as it is still healing at 13 months. Then I look at other things....One thing I learned this week is I have developed scolliosis. I…
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Get Well Soon Djinnie..........
Can we have a big ol shout out to our lovely pal Djinnie?? We miss you!! C'mon lads and lassies lets give her some kidney cancer love Eims xxxx
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Do Suntent side effects come on gradually??
My husband has recurrent kidney cancer (Stage 4). It came back in his small intestines which is really, really rare. At any rate, he has just started taking Sutent. He is three pills into his treatment and has no side effects at all thus far. I am thrilled for him as we were both so nervous about him starting. Is this…
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From kidney cancer to colon cancer
Last July 2012 was diagnosed with kidney cancer. Had surgery and a long recovery time due to prior healtlh issues and now July 2013 I had a colonoscopy last week and got path report and Doc phone call to tell me I have stage 1 colon cancer. I have routine colonoscopys every 3 years due to always have at least 2 polyps…
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Qustion about Human growth hormone treatment
Other than having Kidney cancer last year I've had allot of other health issues. Well after many many test they finally found out that one of my many problems is I have a growth hormone deficiency. Well there is treatment for this which is replacing them with daily injections. My question is it if anyone knows of this and…
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iceman
Welcome to the 70s, iceman and I'll race you to 100! Keep on serving this community, just as you have for many years now, and you'll keep on making new friends for sure - but don't be surprised if they seem to keep getting younger! I hope you've had a great time surrounded by that large, loving Family.
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Starting 1st HDIL2 cycle today
I have passed my stress tests an been admitted for treatment :) one night of hydration , vital sign base line data, etc. First round at 0900 then it is a run to 14 or wherever my body says stop. I will post with an update next week sometime when i am rested. Thanks to everyone that has paved the way before me, encoraged me…
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Michael and Gary......Tattoo ;-)
yaaaaaay it worked!!!!!! so what do you think???
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Post surgery scan 6 months later
Hello, just curious as I have a 5 month wait for my first checkup after that DaVinci T1a episode. Does anyone know if something new can even develop in only 6 months time, large enough to be seen on an ultrascan. It would have to be super aggresive and from what I read on the web my almost 3cm mass took around 3 yrs to…
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Stargate Time..??
OK, so I am boldly going where no one has gone...(or at least I think so..). SEX..? No.. sadly there is no lady in my life right now.. (THe last one split when she heard the word Cancer).. But, I am curious.. (say Currrrious).. I have a hynch some of you want to know as well.. Being on all the drugs some of us are on...…
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Survey: Did your pre-op testing include Pet scans?
I've often read in the posts here that preoperatively patients aren't aware whether the tumor has metastisized. They are hoping for the " got it all" postoperative declaration. I understand we all have MRI CAT and chest X-ray, but who had a PET scan before planning surgery? Thank you.
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Hoping for some positive vibes...and reassurance?
Hi all...Just spent an hour or so looking at all of the posts. I'm really surprised by how many people there are here who offer advice and send positive thoughts to newcomers like me. I'm very happy to have found a place to go To read stories and hear from people like me. I'm a 41 year old woman, but I still feel like I'm…
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff