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6 weeks scan results... Chuck is involved in the Anti PD1-IPI trail GOOD NEWS :D
Chucks scan result were read to me over the phone this morning...He had his 3rd infusion of the combo of drugs Tuesday and scans Thursday.. Some of the Tumors in his Lungs are completely gone or have resolved as they say... the other have had significant shrinkage...His liver Tumor has shrunk by OVER half... the lymphnodes…
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Cryoablation for kidney cancer
A couple of weeks ago I had a 2cm malignant tumor removed by percutaneous cryoablation. For now, the scans show that the tumor was completely frozen and the outlook is good. My concern is that I have had a consistent swelling (the size of an eggplant) starting at my waist and going almost to the navel. I am also completely…
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Cryoablation for kidney cancer
A couple of weeks ago I had a 2cm malignant tumor removed by percutaneous cryoablation. For now, the scans show that the tumor was completely froaen and the outlook is good. My concern is that I have had a consistent swelling (the sizes of an eggplant) starting at my waist and going almost to the navel. I am also…
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How Long Does it Take?
Just wondering how long it takes till you start to feel normal after a partial robotic nephrectomy? I had my surgery on April 11th and had some setbacks with bleeding and had to have 13 coils put in around my kidney to stop bleeding. This was about 3 weeks after surgery. I still feel as if someone has taken all my insides…
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Intro
I'm the a kid on the block. I was told by my urologist, after a CT scan. that I probably have kidney cancer. I had been urinating blood for a few months. Sunday the blood stopped. Today it's back. Is this normal? Because of other health issues, any surgery can not be done. So, the urologist can not tell me the type or size…
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Happy Weekend All
hey everyboby just wanted to wish you all a happy weekend...hope the sun shines where ever you all are and i hope you are feeling well enough to enjoy it. love to all eims x
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Post surgery stuff
Just had the partial robotic done to a 2 cm on the lower left kidney. Still have the 5 holes healing but wondering if the internal pain between the lower rib and I guess where the kidney sits is normal. At night you have to keep turning as its good for like a half hr before you need to turn over. Its been over a week now.…
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Another question (sorry!) lol
Does anyone know....when you have a 4cm lesion or larger in the upper kidney...do they ever just leave it in there? Mine is: Indeterminate 4 cm left renal lesion not simple by sonographic criteria. Left upper Kidney. With the run around sugar-coating crap I'm getting thus far from the doctors assistants...I'm wondering if…
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Am I Getting the Right Treatment?
Really glad to find this forum. In brief, I was diagnosed in October 2008 and underwent a partial nephrectomy. After two years and some severe backaches, my annual CT Scan in 2011 showed that the RCC had spread to my adrenal gland and to my spine (golf ball sized tumor on my sacrum or tail bone). Two spinal surgeons…
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Newbie update
So as I explained over the weekend, I found out my results by going and picking them up since my doctors office wanted to call at 3:30 on a Friday of a long holiday weekend. So I was able to talk to the girl who left that message and she was like "yeah, I left you the one message telling you your films were fine, but then…
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Kidney Cancer Support Group - Los Angeles
Kidney Cancer Support Group - Los Angeles Monday, June 10, 2013 5:00 pm to 7:00 pm Robert Figlin, MD "2013 Updates in Kidney Cancer" Cedars-Sinai Medical Center Samuel Oschin Cancer Center, Room AC 1100 8700 Beverly Boulevard Los Angeles, CA 90048 RSVP: (310) 423-0638 Please arrive by 5:00 pm to sign in. Light refreshments…
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My Dad and GFR readings
Hi there - I was looking for some advice about my Dad. Just over two years ago Dad had major surgery for cancer of the kidney which had spread to his ureter and bladder. He had his bladder completley removed and now wears a stoma bag; he also had his left kidney, ureter, and prostrate removed. He went into the hospital on…
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Received Partial Open Nephrectomy 5/23/13 - Recovery Questions
I am writing to tap into the collective wisdom of fellow survivors and ask for some advice regarding recovery from surgery. I received an open partial nephrectomy on my right side, as well as an appendectomy on 5/23/13. I was discharged from the hospital after about 3-4 days. I am currently experiencing a lot of swelling…
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Surgery got canceled
My doctor just called and said that the" ultrasound probe" arm for the di vinchi machine, was sent out last week for repair and was supposed to be back and is not. Said it should be there tomorrow. So he said he will try and bump his friday patient and give me that day , but will have to check scheduling first and call me…
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IL-2 or no IL-2....that is the question I need some advice on
Here is a quick recap on my past before I get to the IL-2 question: 3/20/13 - diagnosed with met RCC 4/5/13 - Left kidney removed - Left soft tissue abdominal wall mass removed 4/30/13 - 2 nodules on left lung removed - 2 spots on the inside chest wall removed (where the kidney was) Remaining - 1 "speck of dust" on the…
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Kidney cancer should i seek cancer doctor at this time
hello just had right kidney removed because of RCC. Should i have consulation with an oncologist ? following is information from my pathology report :::: Fuhrman grade G3: Nuclei verty irregular, approximatley 20 um: nucleoli large and prominet (does this mean) tumor limit to kidney. Pathologic Staging (pTNM) Primary Tumor…
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Scans / MRI
Hi All.. figured I would start a new topic on scans, and of course welcome comments. For those of us with high Createnine levels, scans with contrast is not a good thing... And there are difference in opinion on how high is too high a Createnne level. But I have heard of several folks here make different comments, etc.. I…
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Keithhubbert surgery 29th
Hi Keith, I am not sure if you are going in tomorrow or on the day of surgery. I just wanted to wish you all the very best, we know you will do fine!!... We will all be routing for you, and will have the 'Been There Done That' teeshirt ready and waiting. Come back and let us know how it went:) All the best, Djinnie
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I think I have kidney cancer and I'm desperate
Hello, My name is Fabrizio. I had an ultrasound last week and they found insidentally a 2cm mass they thought it was an angiomiolipoma and ordered a CT scan to confirm it. Instead the CT scan revealed a solid mass of 2.4 cm and they ssid they cannot explain its "origins"... I'm not sure what this means, from what I read…
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Multiple partial nephrectomies
anybody out there undergo multiple robotic partial nephrectomies? I just had my third last week, and am looking to compare notes...
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be positive
im 33 yrs old just had a tumor removed last wk from my kidney the pathology was cancer...caught early the surgery should have completely cured me and yearly scans will be needed to keep eye on it....my girlfriend was diagnosed w/ breast cancer after new yrs at 35 yrs old and just finished 8th and final chemo and in few wks…
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All new to this...got results on Friday 5/24/13...4 cm lesion within my Left Kidney....looking for i
Hi, I've been doing some research and reading your posts - what a great community here!! So here's my story. Had a routine mammogram on 4/11, had a follow up mammo on 4/18. There is a new lump in each breast. One they are not concerned with, the other they are. So they send report to my doctor (a sports medicine doctor)…
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update on Chucks participation in the IPI + Anti Pd1 trial
Sorry I have sort of checked out lately..the Baby is home from college and everyone and their brother had an April or May birthday lol... Chuck will receive third Infusion of the combination...Tuesday normally it would be Monday however its Memorial Day..and its scan time..so those happen Thursday the 30th..we asked to…
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So tired...
I am a stage III breast cancer survivor (2008) I spent 14 months in treatment for that. So, I am not completely unfamiliar with the toll that cancer and treatment takes on our bodies. A tumor was found on my right kidney in March, and 12 days ago, I had a laparoscopic nephrectomy. It was RCC. The doctors are confident that…
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Doubt?
After all I've been through, I'm now hesitating to do anything about my kidney mass. Before anyone jumps to conclusions, let me explain why: -My ENT, Rad Onc and GP were convinced I had a Thyroid cancer recurrence. I had an invasive neck dissection last Friday that came back in Pathology as benign. I had some strange kind…
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May 29th Surgery
Butterflys will fly out of my stomach when they cut me. Getting a bit nervous with 5 days left . Not sure how long I will be out of work? I"m having Robotic surgery for a 3.4cm. on the back bottom left kidney. Not sure if there going through the front or the back yet. So far Bud Lite and mother nature has helped alot. Any…
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Spot open at BIDMC for the Nivolumab + Ipilimumab trial
Well, apparently I flunked entry into the phase one clinical trial. I always thought of myself as an over-achiever but apparently when it comes to growing metastatic cancer, I am an under performer! Yep, after having a MRI of the head, MRI of the abdominal, MRI of the pelvic region, CT of the chest, a Chest x-ray, EKG and…
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Funny Bonz IV
In parochial school, students are taught that lying is a sin. However, instructions also advised, that using a bit of imagination was OK to express the Truth differently without lying, for example: The hairdryer; An attractive young woman on a flight from Ireland asked the Priest beside her, 'Father, may I ask a favor?' '…
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Stopping by to say hello
Hi All, I am stopping by to catch up on what's going on and say hello. So many new members but happy you found this forum as the support and friendship here can't be beat. I am still NED (last check up in March). I also lost my mom in March after caring for her for the past five years so my life has changed a lot this…
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26th infusion
Just keeping a running post of my "Living with cancer." threads. Awesome. Next scan in a couple weeks. They are always soooo.... important. I am a lucky man. Hang in everybody. FLY. Fox loves you!