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Kidney Cancer

Archives for January 2013

Anyone heard of this at Mayo Clinic? Two Drugs Help Fight Kidney, Breast Cancer
http://www.mayoclinic.org/news2012-jax/7014.html It said "romidepsin and decitabine, work cooperatively to activate a potent tumor suppressor gene that is silenced in these cancers. Once the gene, secreted frizzled related protein one or sFRP1, went to work after the drugs were used, the laboratory tumor cells stopped…
New here, seeking help
Hi, I am hoping I can get some advices from your guys regarding my kidney problem. I am a 30-year old female. ustrasound and CT were done two weeks ago and a 3 cm solid mass found on my right kidney upper pole. Radiologist thinks RCC is unusual of my age but he could not be sure what it is. Then my specialist referred me…
Something I have been wondering...Why so many fictitious/anonymous names used?
This is something that has been very puzzeling to me. Most all discussion on Facebook groups and other sites people always use their real names. WHY does everyone in the CANCER SURVIVOR NETWORK USE fictitious/anonymous Names. I created my account with my real name and will stand behind anything I post, I am not ashamed for…
Serious injuries from the Da Vinci Surgical System(ROBOTIC)
Serious injuries from the Da Vinci Surgical System(ROBOTIC) Posted January 29, 2013 by Georjean Parrish -Mayo Arizona SEPTIC SHOCK SURVIVOR in Uncategorized. Leave a Comment | Edit Serious patient injuries follow the use of a robotic assistant, called the Da Vinci Surgical System, for hysterectomy and prostate removal.…
Something new
Okay so my mom started chemotherapy TORISEL* tuesday 1/15/13. She has to get infused every week. She started having nose bleeds. any advice?
Newbie question
Hi, I just discovered this board and it seems like you have a supportive and knowlegable group here. A 2cm mass was discovered on my right kidney incidentally during a CT of my abdomen for appendicitis in December of 2012. I had another ct with and without contrast in January to get a better idea of what this mass was. The…
Are vitamin supplements beneficial
My husband is about to start Sutent -- would it be beneficial to be on vitamins or a supplement.
"Votrient people"- How long will we take Votrient?
I guess Votrient is relatively new, but do we know these things yet?-- How long have you been taking Votrient? Have any of us achieved NED and stopped taking it? Is the intention to move us to NED? Is it supposed to make us stable and we can eventually stop? Is it just supposed to make us stable and we stay on it at a…
When to Remove Tumor/Mass?
This is going to sound like a strange question. I have been putting off going in for a follow up US on the complex mass on my right kidney. I postponed US because of the Holidays. Anyway, the complex mass was both solid and fluid. I don't know what that matters if any. Here are the questions: Under what circumstances…
DaVinci Robotic Partial Nephrectomy
On Dec 18, 2002 I had a left nephrectomy..tumor was almost 8cm..totally encapsulated..I actually had the first laproscopic nephrectomy ever done at Washington Hospital Center in DC..Pain was bad for a few days but I recovered very quickly. I have been followed once a year now by my Oncologist since. I am a retired…
Everolimus (afinitor) Adjuvant Therapy Trial
So I'm leaning towards doing this study. I've signed the paperwork and have appointments next week to do all the preliminary labs and another CT scan of my chest, abdomen and pelvis. They are also doing a bone scan because I have one spot on my right femur that they aren't sure what it is. I feel better after the most…
Bacon Cures Cancer
My Mantra. Today is my last day at work (and only day this week). I am getting ready for round II surgery for a possible/probable solitarty lung met. The biopsy on the met (spherical, 1.5 cm) is somewhat inconclusive: it may be a primary lung cancer, but my money is on a met. It is cancerous. It feels wierd to be rooting…
Complex kidney cyst
I recently was diagnosed with a complex renal cyst and the doctor told me 90% that it was cancer. Scheduled for ultrasound (found cyst during a belly pain MRI). What to expect as I have been told that a partial nephrectomy will be done soon. Pain out of surgery? Fill me in. I can take it! I am new to this discussion board.…
A Concise Guide for Sutent User Newbies (new users)
A Concise Guide for Sutent User Newbies (new users) * Sutent does not "work" for everyone, but it does work for a LOT of people. No one knows for how long it can work because it has only been on the market for a few years. * I have stage 4 RCC with a lot of small mets in my lungs. I am one of the people for whom Sutent…
CSN update
I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that has yielded…
Afinitor as Second Line Drug - Why is that?
Can anyone explain to me why afinitor is used only after the VEGF drugs have failed? I understand the FDA has approved it only this way, but why? Is it just a newer drug that came late to the party? I've seen charts showing it less effective, but I think those charts were all in a setting of being the second thing tried.…
Afinitor 10mg and 7.5mg Blister Packs Available
I have asked my husband's oncologist what to do with the Afinitor they took him off of. They said destroy it, I just hate to destroy about $8,000-$10,000 worth of medicine. Does anyone on on here take the Afinitor 10mg or 7.5mg. They are individual blister pack wrapped so noone has touched the pills. Please comment here if…
New here
Hi everyone, I, like many others, have also looked at these discussion boards before finally becoming a part of this exclusive club as some of you say.. lol. My dad is having a laparoscopic radical nephrectomy. They diagnosed him in September 2011, with RCC Stage 4 with nodules/mets? to his lungs. He started on Votrient…
Creatinine Levels
Okay... here is another question... When it comes to labwork, what should I watch for with the creatinine levels. I had blood work done in December and my creatinine level was 1.06. A few days ago I had more labwork done and the creatinine level was 1.11. The labwork inidicated that this was high, but I don't know if its…
Update on John's (one putt) Nivolumab / Votrient Trial
John had his 36 week scan on Wednesday, January 16. Scan basically showed stability since last scan. But the report came with an initial gasp as his nurse noted what she considered good news: “John’s liver tumor had decreased in size.” That wasn’t particularly well received as John didn’t know he had a liver tumor. After…
New Member - 7 weeks Post Radical Nephrectomy
7 weeks Post Radical Nephrectomy. Trifecta mets. Moving through the process. WOW. Glad to find this forum. Radiation and IL-2 ahead.
White Hair Stories:
On May 29, 2012 I was diagnosed with RCC. Back then I weighed 194 pounds and did not have a gray hair on my head. On June 11, 2012 my left kidney was surgically removed at Fox Chase Cancer Center in Philadelphia. I started taking Votrient on July 28, 2012. I now weigh 174 pounds and have Santa Claus white hair. For the…
On the lighter side - Dr. House and RCC
Sorry to deflect onto something lighter, but was watching an old "House" rerun last night. In the story, a patient who has a history of RCC and its recurrance is being treated for smallpox symptoms by the great House. He proposes giving interferon for the RCC recurrance. Not Sutent and not other similar meds. Why? Well, my…
Glad I found this forum. Radical nephrectomy in 1 week - eek!
Wow, stumbled across this forum just in the nick of time. Was searching for other peoples experiences from radical laproscopic nephrectomies and found this site. Hooray! My RCC was found 12/7 and my surgery is 1/23. A little nervous right now. Anxiety goes back and forth between nervous about the pathology results and the…
Inlyta Information
Okay so after being back at the doctor this week my husband is now going to try Inlyta. He isn't to happy about it and said if the side effects were like Afinitor he wouldn't stay on it. His latest scan showed his cancer that had spread to his lungs has grown quite a bit since October. Everyone please keep him in your…
Bone Scan versus PET Scan
So I saw oncologist #2 yesterday. My CT scan prior to my nephrectomy had a questionable 1cm spot on my right femur. I had assumed it was nothing because my urologist/surgeon didn't menion it and hadn't planned to do anything special except, I suppose, have another look in 6 months. Oncologist #1 last week thought we should…
New clear cell with Ulcerative colitis
Hello I am new to this web site and was hoping that someone could help me out. I am a stage 4 grade 3 clear cell cancer patient that has had a radical right nephrectomy and adrenalectomy. Also 1 of 2 lymph nodes was positive. My question is if there is anyone else out there with kidney cancer as well as ulcerative colitis?…
10 weeks out of RCC and a radical
So they found it incidentally, had the operation October 23rd in Col. Pres in NYC. I have pain in the lower abdomen feels like my back not sure if its a sympathy pain on the left and the right one working harder. Major surgery is no fun and you're never the same. Started excercising on the tread, bike some light wieghts.…
The Cancer Survival Toolbox
Someone on KIDNEY_ONC has just drawn attention to The Cancer Survival Toolbox which is available free in both audio and script form on the Web, at this link: https://secure2.convio.net/nccs/site/Ecommerce/815932401?store_id=1301 It has been put together under the auspices of the National Coalition For Cancer Survivorship…
spreading fast
RCC STAGE 4 I am back, i took some time away from this forum, since I posted last I had the lower loab of my rt lung removed with a 10mm nod-still have a 4mm one in the upper loab,after 4wks of sutant, I went for scan and it grew to 6.5mm and also a new 6.5mm has appeared in the rt upper loab,onc says we are going to do…

Kidney Cancer

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