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Path report in. Mixed tumor..Mixed feelings..
I just got my path report Friday and my kidney tumor is a classified as a cystic nephroma/mixed epithelial stromal tumor..with the larger cystic areas representing the cystic nephromal, and a renal epithelial strumal tumor..The parenchyal margin is focally positive. Althought these tumors behave in a benign fashion, they…
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Just here to say hi
I have been thinking of you all. I have not had much time lately to get on here with work, etc. I have been extremely tired of late. I know its because of the surgery, now 6 weeks later, but it is all I can do some days to get to work, get through the day and get back home to get my chores done for the day. I hope all is…
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Happy Mother's Day
Happy Mother's day - and many, many more to come!
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recovery
i had surgery about 2 1/2 weeks ago and now am experiencing a tingling sensation in my right thigh, sometimes it can actually become painful. any ideas?
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N, M, Furhman Grading
Hi Everyone, I am new to this discussion board and wanted to introduce myself to the team. I was diagnosed with renal cancer in December 2011 and underwent an open partial nephrectomy on 1/24/12. Up until now I was so focused on getting through surgery and recovery that I did not join this site (I guess I was probably a…
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more birthdays to us all
Six years ago today, I had already been told I had a mass in my kidney and one, possibly two in the left lobe of my liver, and they couldn't tell what else. On 5/10, the oncologist gave me the news that the odds for Stage IV were a 5-7 month survival without treatment. He recommended surgery. More tests-CT, Bone Scan,…
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Evero;imus clinical trial
Hi Everyone. I had my left kidney removed. I was told it was RCC clear stage 2 grade 1. I am a month out of surgery and finally feeling like maybe I may beat this awful disease. THEN I had my first visit with my oncologist and I am back to doing nothing but worry.. Not so much for the cancer that I am assuming I will beat…
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Votrient Side Effects
My husband started Votrient Saturday to treat Stage IV Clear Cell RCC and I wanted to see if anyone else has taken it. If so what side effects have you seen? Thanks
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What we're buying time for
Thanks to John on KIDNEY-ONC for flagging up two recent developments that hold out great hope for truly radical new approaches to tackling cancer (and maybe also heart attacks and stroke). The two links he has given are good summaries - see below. (The Nature article is behind a pay-wall but most of us would find it, like…
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Kidney Cancer
My friend has only one kidney and he is 81 years old. He has two Tumors and two cysts. One tumor measures about 3.1 centimeters and the other is about 2.5. Since he only has one kidney, will the surgeon suggest surgery? I do not know anything about this so I am hoping for some positive answers. He has had his MRI which…
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Drug Trial Question
Do all drug trials include a placebo? I was asked to participate in an Everolimus trial for stage 1 kidney cancer patients. The goal was to see if this drug which is designed for stage 3/4 patients would stop recurrence if used by stage 1 patients. This trial does use a placebo and since I've never been involved in…
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loosing mother to kidney cancer
Hi, I just joined tonight since I haven't tried this type of network before. My mom was diagnosed with kidney cancer september 2011 at stage 4 cancer. She had a knee replacement surgery done early that summer, so I don't know how, with all the tests they did, they missed this before the surgery. Since there are tumors in…
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Newly diagnosed, am terrified, but supposed to be strong
Last week, i had an admominal ct scan to run out appendicitis. In the scan, they saw a 6 cm mass on my kidney. I went to see my dr, who sent me to a urologist. I am lucky: the cancer will be cured once the tumor is gone. It does not seem to have spread. The surgery has not been scheduled, but it will be soon. I am lucky.…
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Just found out I have Kidney cancer
I’m amazed how conflicting the information is for a disease so well known. I don’t have all the stats on the size and level. But I can tell you there going to remove the left kidney and a small bit of the right. It doesn’t look like it’s spread to any other organs. I guess I need to learn the terminology so I can have more…
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Home from the Hospital
Just a little note to let everyone know I am home from the hospital..Today was my first day waking us in my own bed. What a treat. As for the surgery the surgery took longer than the suspected. We knew before I went in it was not going to be a easy one. I spend 4 1/2 hours in surgery instead of the usual 3. The was all…
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Back from the Dungeon
I really hope this is it for awhile,the procedure took only a short time but i have to admit that was a little bit of an oweee!!!,stayed overnight in the hospital and am now in my comforting home.Will see the doctor in one month,in the meantime i am just going to put the thought of cancer in the back of my mind,well i hope…
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Kidney Stones after Partial Nephrectomy
Good Evening..... Can anyone please offer any information with regards to treatment of a kidney stone after a partial nephrectomy for Stage 1 clear cell renal carcinoma using lithotripsy? I was diagnosed on February 11, 2011 with a mass in my left kidney. My surgery was performed at Sloan-Kettering on March 30, 2011, with…
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MDX 1106/Votrient Trial
John will be at Hopkins tomorrow being screened for admission to the MDX 1106/votrient trial. Oncologist's office told him to be prepared to be there all day with tests - blood, ekg, stress, etc. He's concerned about stress as he's been miserable with sholder pain for a month now. (Doctor prescribed oxycodene a couple of…
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Rollercoaster Ride
This cancer stuff is taking me for a ride. I have battled tongue cancer for almost 20 yrs (10 surguries mostly outpatient except 2) and never smoked or chewed. 3 surguries from Dec 2011 to Jan 2012 led me to explore radiation and had PET scan which showed my mouth clean but my left kidney was cancerous. Adios to left…
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Question about fatigue
I was just wondering if any of you have suggestions for fatigue. I am still working full time but it is a definite struggle to get through the day. I have called oncologist for any suggestions too but thought maybe someone here would have some ideas. I have been on votrient 400mg a day and appetite has decreased so decided…