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CT Scan Tomorrow
I am now 6 months post-op and scheduled to have a full body CT Scan tomorrow evening. As you guys know, anticipating these scans is very stressful. Just wanted to ask you to cross your fingers and please keep me in your prayers. God Bless.
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New to all this!
Hello, I hope im in the right place. I just had a upper pole partical nephrectomy on my left kidney on May 10,2012. I dont know the size or stage but the surgan said it was the size of a golf ball. I also have a cyst on he same kidney and one on the right also, they say they look like just fluid filled and common. Im in…
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MDX-1106 Part 4
OK, here we go. Brief refresher. Radical nephrectomy in March 2011. By winter mets were in lungs, liver, spine and pelvis. Qualified for and began MDX-1106 at maximum dosage of 10 mg/kg of weight. I had a rapid response with healing in my bones, and liver. Lungs have demonstrated reduction in tumors from reported dozen to…
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Been 4 months and I don't think I will ever be the same
January 19th I had a right partial nepherotomy, and they took out half my kidney with cancer grade one and two. Like a lot of people on here they said I was cured. That is hard to get past. I think not thinking of it is helping. I was a complete train wreck for three months after. (being 28 pretty much nobody knows what I…
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GFR And Creatine
Just a quick question,my GFR IS 54 and my Creatine is 1.4 ,what i am curious about is if this is my new normal or is it possible these numbers might improve over time. Thanks and have a Nice Day
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Brain mets found - what do I do now?
I just joined in late Feb or March when my mom was diagnosed with RCC Stage IV at that time she had a softball size tumor in her kidney which they removed that kidney and adrenal gland in mid March and they knew she had multiple tiny lung mets and mets in her left femur and a couple places in her spine. They treated her…
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Lists of hospitals espcialzed with interleukin 2 in California
I would like to know what hospital espcialzed in giving interleukin 2 in California? We live in San Jose California and our doctor suggested kaiser riverside. I have 3 kids and my wife can't take off from work - I'm thinking if there's closer to San Jose California . My doctor said kaiser riverside specialized and only do…
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Castle Surgical Website
I just searched google looking for other people in the same trial as John and realized our postings are carried on the Castle Surgical website too. I coincidentally found my own post. Just an fyi. http://www.castlesurgical.com/cancer-survivors-network.html
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14mm lymph node enlargement after open Partial nephroctomy
I am a 42 years old lady and had my open partial nephroctomy surgery on dec 2011, a tumor was enclosed within the end of left kidney was removed with a part of my kidney. Since then i had lots of pain, fluid in the surgery part due to inflimmation. I had ct scans done and MRI done too which shows a 14mm enlarged lymph node…
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Prognostic significance of preoperative kidney volume for predicting renal function in renal cell ca
Prognostic significance of preoperative kidney volume for predicting renal function in renal cell carcinoma patients receiving a radical or partial nephrectomy…
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Current status of robot-assisted partial nephrectomy
Current status of robot-assisted partial nephrectomy http://onlinelibrary.wiley.com/doi/10.1111/j.1464-410X.2012.11151.x/abstract?systemMessage=Wiley+Online+Library+will+be+disrupted+on+26+May+from+10:00-12:00+BST+(05:00-07:00+EDT)+for+essential+maintenance
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Metastatic potential of a renal mass according to original tumour size at presentation
Metastatic potential of a renal mass according to original tumour size at presentation http://onlinelibrary.wiley.com/doi/10.1111/j.1464-410X.2011.10184.x/abstract?systemMessage=Wiley+Online+Library+will+be+disrupted+on+26+May+from+10:00-12:00+BST+(05:00-07:00+EDT)+for+essential+maintenance
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Persistent Overuse of Radical Nephrectomy in the Elderly
Persistent Overuse of Radical Nephrectomy in the Elderly http://www.goldjournal.net/article/PIIS0090429511003682/abstract?rss=yes
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Discrepancy between radiological and pathological size of renal masses
Research article Discrepancy between radiological and pathological size of renal masses http://www.biomedcentral.com/1471-2490/11/2
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Kidney Cancer Active Surveillance of Small Renal Masses: Progression Patterns of Early Stage Kidney
Some good information http://www.europeanurology.com/article/S0302-2838(11)00283-1/abstract
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Recovered
I found out last July that I had a mass on my left kidney. I went to MD Anderson in Houston which I live very close to. They performed a partial nephrectomy (sp?) on 15 September 2011. After 5 days in the hospital I went home for my 6 weeks of recovery. I have since been back to work but it took me a while to really feel…
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Can't believe how you have to double check everything
My mom has recently been diagnosed with stage IV RCC with mets in her lungs. This is 2 years after her kidney was removed. It just amazes me that you can't trust that what is supposed to happen will happen and you have to be on top of everything. My mom and dad divorced 20+ years ago and they both rely on me to help them…
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Anti-angiogenesis
Just watched the video about angiogenesis by Dr. William Li. Very informative. See this link http://www.ted.com/talks/william_li.html I have stage one rcc, and want to do more proactive things other than 6mon scan. Does anyone on this forum know any anti-angiogenesis products (not prescription medicine)?
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Guess its true.. bad things happen in threes
Just when I was finally getting rid of some of my anxiety, bam, its hitting me again. Not so much for my RCC dx but now my job.. Little history on the "3 bads in a row". Besides getting the dx of RCC at the end of March, I also lost everything to a flood in Sept of this year. I had to gut my whole downstairs and redo all…
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new diagnosis
A few weeks ago my father went into the hospital because he was having stroke like symptoms,only to find out that he has stage 4 renal cell carcinoma that has spread through his lymph nodes to his lungs and his brain. The reason he was having the stroke like symptoms was realated to the multiple small tumors in his brain…
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Refractory Period
I've read several discussions about the emotions of a cancer diagnosis and the roller coaster tide of emotions that accompany fighting it and even beating it. I saw the below article talking about the SHIFT of emotional changes and how it changes you physically and emotionally perhaps FOREVER, quite possibly making you a…
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Cryoablation of small tumor
After a rough first night I feel a lot better after the cryoablation of a small tumor in my remaining right kidney.. Still a little sore in the treatment area and from the nausea from the first night. Hope to be fully recovered in a couple of more days. Will have a complete kidney evaluation in four to six weeks. There are…
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Good morning
Good morning everyone. I hope you all are doing fine. I have been having up days and down days. I go to see my oncologist tomorrow and I am sure she is going to bring up the Everolimus trial to me again. At the risk of repeating myself (guessing I just need a little more reassurance) My dx was stage 2 grade 1 clear cell…
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Just wanted to say hi....
Hey Everyone, I thought I'd stop by to say hello. Thankfully I was able to post! I hope everyone here is doing well. I think of you all often. A couple of months ago, I started having a lot of trouble getting into this site. It would take me 15 minutes or more to get the site to load and just that much longer to try and…
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Giving support online
A recent article from the Sarcoma Alliance contains a number of interesting ideas about the 'do's and 'dont's of offering support online to cancer patients. http://www.prweb.com/releases/2011/11/prweb8993556.htm Maybe unavoidably, it contains some foolish statements such as: “Research shows that a positive attitude doesn’t…
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Nicholas Crace
A story which is justifiably hitting the media in the UK this morning should be an inspiration for all of us. The above gentleman (and he is every inch the gentleman) has just donated one of his kidneys to a recipient on the UK register of people awaiting transplants. He will not be permitted to know the identity of the…
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3 months post-op questions
Hi everyone, Due to a hectic work schedule I unfortunately haven't been able be here much lately. Three months ago I had Da Vinci robotic surgery to remove a 1.9 cm tumour from the top of my left kidney (Stage 1, Grade 2). The surgery went very well with no complications. About one month ago I started back to the gym. I…
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Grateful but scared
April 23th at 8:00 AM I had an MRI done on my lower back because of some back issues. The Doctor called that afternoon and said he wanted to see me the next day. I assumed it was not good news about my back, Little did I know that was not the issue. He told me that they found a 2.7 cm mass in my right kidney, It didn't…
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How lucky we can be
Wow, reading garym story and others makes me realize that through it all, we are pretty darn lucky. I had a kidney stone, which normally ain't considered a lot of fun. I was in another town working and went to the ER. They did a scan, said yep, it's a kidney stone, here is a Rx for pain. Go home and go see your urologist…
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Treatment: How long?
On May 1, through a CT Scan to rule out intestinal problems, they saw a 6 cm mass on my Kidney. I went to my Dr that day, and he referred me to a urologist. The urologist looked at the situation, said it was Renal Cell Carcinoma, and would come out soon, not emergency. He wanted to review the scan with the Radiologist:…