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Kidney Cancer

Archives for January 2012

Chronic Kidney Disease or CKD
Just had some new bloodwork at the Nephrologist and my GFR improved from 42 to 44 which leaves me in Stage 3 CKD. The Nephrologist however believes that this classification is outdated in that 50% of us as we approch age 70 have Stage 3 CKD (GFR 31-59) without Kidney Cancer issues. He is confident that even with my age (69…
Follow up trials,
Ive been posting since I had my grade 3 Big C and full left kidney removed 7/01/2012 and doing ok I think, But is there any body else out there who have been asked to take part in research trials, the doctors says it could last for a few years,is there any danger of it agrevating things.
post-op appt and path report
Hi All, I just got back from my post op doctor appointment and I am not sure how I am feeling. The good: I am feeling great physically. My staples were removed and I am cleared to go back to work next Monday, which will be just 20 days post-op. The mass actually ended up being smaller than what the ct showed (4cm vs…
6 weeks tomorrow...
went back to work today, made three hrs and had to leave. Ribs pushing into my incision area hurt like hell. Has anyone used any braces which might isolate my ribs a bit? Maybe one of those back braces the folks at Home Depot wear??? I've had a relatively problem free recovery so far, down to Advil & Tylenol for meds. I…
pain
Is it normal after surgery, 10 days out, to have pain like a dull throb, or to feel like the kidney hits things like your ribs. Its just uncomfortable, but I was wondering if anyone else experiences this? Doc said I will feel more being so young cuz my nerves are more responsive. Though i did notice a numbness in my hip…
Future Options
I want to bring up a point that has been mentioned and I feel strongly about. Kidney cancer may have been a death sentence in the past. Surgery has been the most effective in removing these neoplasms. Now, Sutent, Votrient, MDX-1106 and other new advances have been proven to extend many lives... This is the point... We can…
Chromophobe RCC - pT1b
Had right laparoscopic radical nephrectomy on Jan 24, and received pathology report yesterday. Chromophobe RCC, 4.5 cm, limited to kidney, pT1b. I haven't get chance to discuss the report with urology yet, but realized this is a very rare type of kidney cancer. I couldn't find a lot of information on this. Otherwise, the…
Anxiety
So I went through the recurrence anxiety last year and I admit I walked out of the doctors office then and broke down. I never did that with the first diagnosis. I've been feeling pretty good lately, loving that I haven't been to see a doctor since the fall and then on Wednesday my knee goes. I'd like to say I was doing…
What to expect
I’m hoping you can share with me what to expect. My husband had esophageal cancer last year. Which he had removed and has been doing very well. But, he had low potassium that they have been trying to diagnose. In an effort to find the cause of the low potassium they did a CT with contrast to look at his adrenal gland. The…
sleeping
Goodmorning everyone. I am struggling with the whole sleep thing. So far sleeping on my back is so hard to fall asleep that I lay awake for hours. How long till I wait to sleep on my good side? I tried it last night but it seemed to really make my broken kidney hurt/throb. Has anyone else found that sleep is super hard? I…
Stage IV to N.E.D.
Hi Everyone. It's been quite a while since I posted, but it's been a rough couple of months. Here's what happened: May 2011: Nephrectomy. Big, 8 or 9 cm tumor on right kidney. Also, some of my liver is gone in that the tumor had grown into the that organ. But the surgeon was confident that he got it all, so told me just to…
Disability
Just want to get your thoughts on this. My oncologist told me with stage 4 cancer I qualify for social sercurity disability. There is a part of me that would love to sit at the house. But there is a part of me that does not want to do this. I am wondering does he mean I will never be cancer free?? If I take this and the…
changes in they way we eat
Has anyone changed there eating habbits after surgery and Rcc? What foods should we try and stay away from? I have started juicing 2× a day but that gets old and I have stopped eating beef and I don't drink but I did drink coffee all day everyday before surgery. Thanks Nicole
Rcc contained
Blessings to all.I am woundering if anyone has had cancer show up any place in the body after Rcc was found contained in the kidney and removed?
CT Scans
Can you imagine the cancers that would be caught early if CT scans were used as a preventive instead of just a diagnostic tool. Maybe as part of a physical exam when a patient reaches a certain age, although, based on the membership here, kidney cancer seems to be striking us younger and younger. Even if it was done every…
can happen to anyone
I have been a Miami Dolphins fan all my life, this guy was great during his time with the team. He now faces the same opponent as we do. http://www.miamiherald.com/2012/01/25/2606165/miami-dolphins-great-mark-duper.html
another Newbie" with incidental discovery
Hi Everyone, Wow what a wonderful source of info you all are!! Im sorry to say I am now part of the exclusive RCC group.. A little background on me... Im a 54 yrs old Registered Nurse & have had chronic back pains for years & years. Have done all the treatments in the past from chiropractors, acupuncture & epidural…
day 6 post surgery not so good/ crying rant
So no one told me I should try to bend down to pick something up. I dropped a chip, thought if I bend slowly I would be able to get it, yeah well didnt occur to me that my legs would give out and I would fall. More so tuck and roll onto the good side of me. Ended up laying there till dad came home to help, like 20 min.…
1st follow up scan not good
Well I got the results from my CT today. It is in several lymp nodes on the side I had the Kidney removed from. The largest being 4.6cm. I will be starting Sutent soon. I have to do a MRI of my brain Sat. Then I will start treatment after that. Wish me luck and say some prayers!
Speaking at a Relay for Life kickoff - would love your input
OK, my fellow warriors - tomorrow night I will speak at the kick-off event for our 2012 Relay for Life. In my mind, this is a chance to share OUR story and educate a few folks about kidney cancer. Anything you want me to share? I'm definitely going to encourage people to push for an ultrasound or CT if they have ongoing,…
Labs and Bone Scans
Hello my new friends. What can anyone tell me about their labs and scans? My chest x-ray was clear, but I am going to push for a bone scan. It looks like my renal artery is also clear, but the tumor itself has some necrosis and some calcifications, and "fingers" (YUCK). It is also touching the base of my spleen, and that…
Radical Open Naphrectomy
Just found out today that I need my right kidney completely removed-- 10cm tumor and not sure yet if it is cancerous.. Glad to see others on this site sharing information leading up to and including surgery-
wedge resection
In Feb. 2010 I saw a doctor for a dry cough. No relief. Two doctors later I finally had a chest x-ray. My right lung was half filled with fluid. Two days later I had my lung tapped and drained. An hour later I was in triage at my local hospital coughing up copius amounts of blood. A c-scan was taken of the lungs and cought…
home from surgery
Surgery for the partial Nephromty, took out 40% of the kidney. Tumor was the size of a golf ball. Doc said it clearly looked like cancer, now we are just waiting to see the grade and severity. Since they found it so early I am really hoping it is a low grade. Surgery was 3.5 hours. Stayed in the hospital longer than normal…
waiting
Hello everyone I am learning a lot by reading your Stories and hope we all remain cancer free. I am now 8 weeks since prostate removal. I am now waiting to schedule partial kidney. Seems like its been forever I was dx in Oct. with an enlarged prostate. Testing showed I had a spot on left kidney and my doctor says its 99%…
Sutent
Any thoughts on Doctor advising Sutent with NED. The tumor has been removed and there are no other tumors, there is swelling in the lymph system, never biopsied. Is Sutent effective as a preventative of recurrence? Jeanne
A request - for any spare prayers
We're naturally, and sensibly, focused on our own predicament and this often precludes us from being able to express a broader solidarity with other sufferers. The liver cancer forum, as Jamie has testified, is a gloomier place than here and, as she shrewdly observed, is populated predominantly by caregivers. Some of them…
Slow Loading Page. Sometimes Never.
Is it just me or is anybody else experiencing times when you just can't get to this site? Nothing happening when you enter the http address or use your bookmark? I've noticed this problem for months and months now. It doesn't happen to any other site I visit. I've sent a couple of notes to CSN feedback but never received a…
Page slow to load? Sometimes never does.
Is it just me or is anybody else experiencing times when you just can't get to this site? Nothing happening when you enter the http address or use your bookmark? I've noticed this problem for months and months now. It doesn't happen to any other site I visit. I've sent a couple of notes to CSN feedback but never received a…
Family History?
I had my 6 month results today and my tests were all clear! While I am happy about that and I plan to live my life like I'm cancer free, my urologist has concerns for a higher recurrence rate for me due to the fact that I am fairly young to have kidney cancer and I have a family history. My paternal grandfather died of…

Kidney Cancer

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