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To the New year!!!!
Just wanted to take a few moments to wish everyone a Happy and Healthier new year!!!! and to say Thank you for all the love, faith and support and friendship you have given me over the past year. In Hindsight, this devil entered my life at a time when I found myself suffering from an overall lack of appreciation for the…
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my moms cancer
so my mom is in a lot of pain and cannot walk anymore and they had her go through MRI and a CT scan which showed that she had a tumor a size of a golf ball on her kidney and not only that she also has a growth on her bone which how they put it "the tumor is attacking the bone" she is scheduled to see a eurologist and be…
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After Kidney Cancer
I am new to this but want to say in advance God bless you all! I am 35 years old and I had my left kidney removed June of 2010 from RCC. I had to have a open nephrectomy. My incision did not heal on the inside so I have a 14 inch hernia.. Has anyone else had these complications? I have seen 4 surgeons and they all have…
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1st follow-up CT
Will have my 1st follow-up CT scan tomorrow after left kidney was removed in October. Recovery from surgery has been great. Hoping and praying for good results from test.
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Post Surgery and Awaiting Chemotherapy
Hello Everyone: So I had my surgery on November 28th and d/c on December 6th. Open abdominal surgery-8.5 hours. I had transitional cell carcinoma of the right ureter and right kidney. Due to my Lynch Syndrome (Muir Torre Syndrome)and the subsequent potential risk to the other kidney, the surgeon hoped to save the kidney.…
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Merry Christmas
I'd like to take this opportunity to wish everyone a Merry Christmas and a very Happy Healthy New Year. I pray for each and every one of us, and I want to thank everyone for all the support I've gotten here these last 6 months. God Bless Katie
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My Mother Recently had her Right Kidney Remove
Merry Christmas to each of you. It has been very enlightening to read some of your posts. My mother had surgery Dec 13th to remove her right kidney, adrenal gland and a couple of lymph-nodes. She had pain in her right side Dec. 8th, went to the Doctor and they did an Ultra Sound and CT Scan Dec. 9th and confirmed she had a…
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My Mother Recently had her Right Kidney Remove
Merry Christmas to each of you. It has been very enlightening to read some of your posts. My mother had surgery Dec 13th to remove her right kidney, adrenal gland and a couple of lymph-nodes. She had pain in her right side Dec. 8th, went to the Doctor and they did an Ultra Sound and CT Scan Dec. 9th and confirmed she had a…
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Kidney Cancer, treatment options and the return of Hope!!!
Folks: I posted this post on the ACOR.org site and wanted to post it here as an update and to talk a little about a new tool in my arsenal against this disease. Having posted a few times and reading the posts from others, I wanted to share a message of hope with those either still here or just getting here and reading…
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New member "on board"--thanks for being there
Hi everyone- My name is Scott. I'm 40 and I was diagnosed with stage RCC in my left kidney two days ago. I was having abdominal pain and the resulting CT scan showed a 4.5cm cyst on my left kidney. Biopsy followed and now I'm joining the club. I can't tell you how helpful reading the posts have been--I'm so happy this…
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hors d'oeuvres
Since I am going to whine a bit, I thought I would offer some cheese and crackers to go along with it. I read all of the amazing recoveries, marathons, mountain climbing and ocean swimming going on and I need to know if there are others lurking in the shadows that are still not the same as pr-surgery? It's been over a year…
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Waxing poetic for Christmas...
Forgive me please...I was overcome with emotion or maybe alcohol and felt the need to share...read on at your own risk! TWAS TWO NIGHTS BEFORE CHRISTMAS AND ALL ACROSS THE BOARD THE MEMBERS KEPT SHARING TIS A KIND THOUGHTFUL HOARD THERE'S KAT DOWN IN FLORIDA WE HAVE MIKES GALORE I'M SURE I'VE FORGOTTEN SO MANY MANY MORE IN…
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Getting tired
Had my left kidney removed Nov 16th (Open surgery). It was a textbook procedure. Home in two days. Back at work in less than three weeks. Even started running and going to the gym again (light stuff). I thought I had this thing beat completely. I started getting tired last week. I have since stopped all activity besides…
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pazopanib side effects?
Hi all, I'd like to hear about side effects of pazopanib. Not just the long list that comes with the drug, but what someone on the list has actually experienced. The oncologist tells you all the bad stuff and it's pretty scary. I have the opportunity to get into a study for Stage III RCC. I've had my right radical…
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Sarcomatoid
Had my following up with oncologist yesterday. I do not qualify for any trials,because they were for clear cell cancers only. Mine is Sarcomatoid. He said this is an agressive cancer. We will keep a close eye on it. My first scan will be next month followed by another in 4 months then go to 6 months. There is a 50/50…
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I need to vent
I need to vent. Please excuse me. I pay $1,100 a month for my health insurance (not mine and my wife’s but just mine) because, as you might think, I am considered a high risk. My wife and I were paying $1,000 a month for both of us while on Cobra. (She is now on Medicare.) But the insurance company (an HMO) was forced to…
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Waiting...
I've been reading posts off and on since my surgery back in August and love seeing everyone's positive words and the encouraging situations as I watch many of you go in for your CT scans and come back with clear results. Today I had my CT scan. It was supposed to be last Monday but I got the flu. Since I had to reschedule…
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A valuable resource - http://www.bloodpressure-drs-practical-guide.com/pulsepressure.html
Love and marriage; horse and carriage; kidneys and blood pressure - inadequate kidney function can cause high blood pressure and high blood pressure can cause serious kidney damage. So, those of us in the Lone Kidney Club need to pay particular attention to our blood pressure. In following up on some speculations I'd…
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Just joined the club
Hi All, Wife and I were having a stay-cation at a local motel on 12/4/11. We were just relaxing and enjoying the hotel amenities. We spent some time in the hot tub and I had the jets pounding my lower back. A few hours later I had blood in my urine. I freaked out a bit,but remembered that had happened once as a child when…
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Tis the season...
As the Christmas spirit will be flowing over the holidays I would like to share an experience with you all, about drinking and driving. As you may know, some of us have been known to have had brushes with the authorities on our way home from the odd social session over the years, myself included. A couple of nights ago, I…
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First follow-up results
Had my first follow-up ct scan since my rcc kidney surgery last June. Haven't spoken to the dr yet, but I got the radiologist's report. No sign of any more rcc. Now have a "new normal" for my kidney, which we'll use as baseline from now on. Do have a kidney stone in left kidney, so that will be something to look forward…
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Staying positive.
I'll tell you what. Here is how I do it. And I ALWAYS do it. For the last 40 years... When most people are asked ," How are you". They answer, "Not bad." To me, I think,( Gee if only they whey felt worse, they might be happier.) They have already set themselves up in a negative state. Why not say. " I am great, or fine, or…
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Kidney Mass - RCC?
I am 48 yrs old dad with two beautiful young daughters, and had a sudden right low back dull pain and pressure 3 days ago. Went to the ER, and found there is 6cm kidney mass from CT. "There appears be hemorrhage in the upper portion of the mass". I asked being transferred to another hospital for a second opinion. Had a…
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Right Kidney Removal - Cancer
I had my right kidney removed February 14th this year (2011) due to kidney cancer (Stage 3). It took me along time to recover from the operation but I was back at work within 4 weeks. Walking (gradually more ever day or 2) helped me alot and keeping my water intake up as well. I had a large bulge appear about 3-4 months…
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MDX-1106
Seemed like a long wait from my initial consult Re: MDX-1106 and finally getting it done. But only 4 weeks. Lots of scans and a biopsy. Enough blood work to keep a vampire family of 4 happy. On Monday, the day began with 6 vials of blood followed by an hour infusion. Had to stay for a 12 hour day so they could cont. to…
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New member of survivor club
Hi Everyone, I had my open partial nephrectomy on the afternoon of December 6th. My Doc removed a 5.4 cm tumor and 25% of my right kidney. He had to do an open procedure because he said the mass was large and deep in the kidney. Things are going very well one week after the surgery. I'm feeling better every day, walking a…
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First visit with nephrologist tomorrow..
Well, six months into this adventure and I'm going to meet my nephrologist tomorrow. Not exactly sure what his role will be in my future, but I'm hoping to learn everything that I can possibly do to take extra good care of my remaining kidney. I've made some lifestyle changes that I hope will help, I've almost completely…
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Praise report
I received the results of my scans today and they are all CLEAR!!! The small Nodules in the lungs ate gone and there is no evidence Of metastatc disease, only the healed rib fractures and the hardware from my fractured clavicle. Now the question is how long ti stay on the votrient. It looks like l will stay on it another…
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creatinine post surgery
Hi, I had my surgery (lap.partial)on wednesday (12/7/12)and was released friday night. I was released with a drain intact because the surgeon said that I still had a little fluid in the surgical area and that my creatinine level was 1.5 I was totally loopy from the meds and didnt really understand what was going on. Does…
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Pain in lower back
I had an open radical of my left kidney on November 18th. Two days ago I started getting a pain in my lower left back when I take a deep breath on burp. Not with every deep breath , but often. It does seem worse when I first wake up.I ask the Dr. about this. He said if it continues I would need to get some x-rays. Have any…