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Head and Neck Cancer

Archives for July 2022

Left tonsil and left lymph node.
Hi I have just been diagnosed (4days ago) with cancer in my left tonsil and left lymph node. I am 56 and reasonably fit and well. In general I did not have any symptoms to speak off (still don’t) until the lump in my neck appeared at the beginning of June. I saw the dr after 14 days as the lump had not gone and he put in…
Good days...
Today is a good day and I'm hoping that we all have many good days ahead. I am so appreciative that I have found this board and have gotten so many positive, helpful responses with great ideas and tips to help me along the way. I know that my care team will assist me with medical advice and be assuring in my treatment.…
I'm new to this site and wanted to introduce myself
I'm a 56 year old wife and mom to 1 son and 2 fur babies. I am from small town Midwest USA. I was a caregiver to a family member for 9 years before he passed and now I am the one needing care. I was diagnosed in June of 2022 with squamous cell carcinoma of the head and neck. I recently had a second biopsy to confirm the…
Prescriptions for Insomnia
I am currently using Edular (Zolpidem Tartrate) 10mg sublingual tablets to help me sleep. They do help me get a little sleep (doze), but the side effects (groggy/drowsy/no energy) limit my ability to be active during the day. I would like to know if anyone else has been prescribed another drug that is sublingual for…
Longer term questions - gums, voice, thyroid
Hi All! First of all, am I crazy or did this forum used to be divided into different sections like "long term issues," "care givers," "eating," etc.? I was looking for those sections but can't find them, so if I have posted this in the wrong place, please let me know. To the questions: I am 4 years out now from the end of…
Tonsil cancer w with lymph node involvement
Hi all, I would like to introduce myself and say HI to everybody. I am 41, male from European country called Poland. I was diagnosed recently with left tonsil cancer with lymph node involvement. Today I was told that my treatment will be radically and will take 7 weeks of radiation and 2 chemos. My cancer is HPV related…
Post Tx B12 & Testosterone Monthly Injections -- WHY??
Of course, I will need to review with my oncologist, but I thought I would ask around here anyway. My tx ended March of 2021. Doc says I will need these monthly B12 and testosterone injections "for life". Has anyone else dealt with this? I am wondering why these are needed. I am very active (walk 3 miles/day and bicycle 30…
Switching tube feeds
Hello everyone, Newbie here, currently in hospital. I am about to be released from hospital to go home for two weeks before starting chemo/radiation. I have gotten a G tube, currently on Pivot 1.5. They are switching me to Jevity 1.5 to go home unless I can’t tolerate it. Anyone know why they would switch formulas just…
Dysphagia Exercises?
Hello I'm a 15 year survivor of NPC (Diagnosed when I was 14) I was unable to eat and swallow food for almost a year afterwards and ever since its been hard for me to swallow food. I have to take a drink after almost every bite of food to get it to go down. I plan on bringing it up again at my upcoming appointment, but…
H&N Related Inspiring Woman and Related Trach & Ventilator Informational Videos
Hello all you H&N folks. I hope everyone is doing the best they possibly can. I was helping a friend search for information on trachs the other day when I ran into a young woman who has had perplexing illnesses and has now ended up using a trach and ventilator. Her enthusiasm and bright spirit are uplifting despite the…
Taste change.
Hello. I’m new here. About 1/2 way through chemo/radiation for Oropharyngeal Squamous Cell Carcinoma. AKA, tonsil cancer. Recently had the tastebud “change”. Everything taste super nasty right now. So far I’ve only lost 1 pound but this feels like a game changer. Two or three bites and I gotta stop. Super discussing. I’ve…
Red
Hello everyone, I've been diagnosed with stage 3 nasopharynx now just over 2 years. I'm now stage 4....
Eating
I do not want to eat. I watch food shows but doesn’t help. Has anyone else faced this. I am again losing weight
Medical Bill Assistance?
Wishing Everyone A Happy 4TH of July
As we go forward into and following this July 4th holiday may we value and cherish the blessings we have in this country and as we celebrate our independence, the joy of freedom and God-given rights and blessings may we always remember the sacrifices of past generations and our founding fathers and live in light of that…
Persistent throat irritation nearly 5 years out
Hey all - been a while since I posted here mostly because things are going pretty well, I'm nearly 5 years out from my surgery (Dec 2017) and subsequent radiation... but over the past few months I've been dealing with a mild but persistent throat irritation on the right side, same side as the HIV base of tongue tumor had…
Scared - Not Sure I Belong Here
Hi Everyone, I’m going to preface this by saying that my husband is in the process of testing/ scans and we have not received results beyond physical exam and ultrasound. I have a lot of questions and am in need of some support. That said, if this is not an appropriate place for me to be please let me know. My 38 year old…
Recovery time
My husband just finished his 6 week course of Cisplatin and radiation on Monday June 27th. I was just wondering how long it took others to begin to feel better? He has very little energy, isn't eating or drinking due to everything tasting like salt. All of his nutrition and hydration is through a PEG tube currently. He…

Head and Neck Cancer

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