Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for June 2022

Not eating or drinking due to stomach pain
Hello! First post on behalf of my husband. He was diagnosed with Stage 4 throat cancer on the base of his tongue back in March. He had 3 chemotherapy sessions and 35 radiation treatments. No surgery. The last one was about a week ago and the last chemo session 2 weeks ago.He never had a feeding tube and up until last week…
24/7 taste of burnt metal in mouth after radiation
I quit treatment after 21 sessions and was told taste would return in about 2 weeks. It's almost 5 and though I can taste a bit, I have this terrible taste in my mouth all the time and it seriously taints anything. My tongue feels pickled and dry and mouth very sensitive and dry. Has anyone else had this constant bad taste…
Head & Neck Cancer Survivorship And Symposium (HNCA) Register Now
Hello folks. Don't miss this opportunity. Medical information from top medical people. Here is information and links that you can access a webinar run by HNCA (Head and Neck Cancer Alliance) HNCA and the American Head and Neck Society (AHNS) are pleased to announce the 2022 Virtual Head and Neck Cancer Survivorship…
Low white blood cell count
Hello everyone. My husband was diagnosed with tonsillar cancer with lymph node involvement in April. He had TORS surgery and a radical neck dissection, where they removed 44 lymph nodes, four of which were positive and one of those had extranodal extension of the cancer. He was prescribed 6 weeks of Cisplatin and 32…
Esophageal wall thickening
Hello I'm new to this thread I'm 43 years old a woman my name is Misty. 3 years ago I was having issues swallowing long story short they did an endoscopy and it showed some papillomas that he biopsied he told me they were non-cancerous and never really mentioned that I should follow up or anything being so young and busy…
Greetings from New Member
Hello All ! My name is Adrianna I am semi-new to this club. After years of voice fatigue, voice hoarseness and being followed by an ENT at one of my follow-up visits he saw a lesion on my rt vocal cord on January 25, 2022. I was scheduled for surgery on Feb 9th and based on the first/final pathology I was diagnosed on Feb.…
HPV+
So we tell everyone, "get the vaccination, you wont get HPV+ cancer. BUT, your chances of making it with HPV- are substantially less than if HPV+ (30-50 as opposed to 90 - full cure) So really, you are damned if you do, and damned if you don't
Hello, new member
Hello, I just joined this. I had oral cancer in 2015, a tumor on the right side of my tongue that was cancerous and spread to the lymph nodes on the same side of the neck. Went thru 6.5 weeks of radiation and 3 treatments of chemo. I had part of my tongue removed and replaced with a chunk from wrist area. I also had a neck…
Hello all
It was late Nov the last time I strolled through here, just after my 3 1/2 year checkup. Last month, on May 19 (my birthday), I had my 4 year checkup and all is well. I saw my ENT and as nurse practitioner on this visit, and I'll just see a couple nurse practitioners in Nov. I've been a little confused as to how long the 6…
Research and experience on reducing side-effects from platinum-based chemo/radiation
In October of 2021, I underwent TORS (left side) w/ a left-side neck dissection.. followed by 30 treatments of radiation (proton - both sides), and seven weekly chemo infusions (cisplatin). I did two things you might want to research to reduce side effects: 1. fasting during chemo infusion; and 2. daily red-light therapy…
Hello
I was recently diagnosed with tongue cancer and surgery has been recommended which I want to opt-out of . Is there anyone else here who refused surgery of the tongue and just did radiation instead?
Somehow We Hold On
Hello folks. I recently came across a song that had me thinking about my cancer experiences and some unbelievably tough times I had endured now and then. I also have in my mind the many members on here I have seen go through some of the toughest things you can imagine. There are some amazing triumphs that the folks on here…
Lymph Node Involvement? Should I Ask for a Scan?
On April 4, I went for a routine cleaning at the dentist. They found a white patch that looked concerning. Had a biopsy on April 14. On May 4, results came back as advanced dysplasia/pre-cancerous (no margins in sample). So, they sent me to onc. I just had the first appt on May 31. They looked at it, checked my lymph nodes…
leukoplakia
I am a 7 1/2 year survivor of Tonsillar cancer positive for the HPV virus. I finished 6 weeks of radiation and have been cancer-free ever since. The only side effect of the treatment is some dry mouth which is very manageable. I decided to get an appointment with my ENT just to follow up and he noticed a couple of white…

Head and Neck Cancer

Discussion List