The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Head and Neck Cancer

Archives for March 2022

In Hospice care
Hello CSN This is an update....on March 18th I had my 2nd Radiotherapy Mask made in preparation for twice daily super high dose Radiotherapy, to the same areas plus more , as I had radiated in 2018. But by the evening of the 23rd, I was admitted to the Cancer Center hospital, dehydrated,getting Lactated Ringers solution to…
Embracing death, coming clean about the cause, and other thoughts
During my cancer treatment, the whole time I was very positive and quite upbeat. I still am today although I have been humbled by this experience and the big word that keeps broadcasting across my mind is the word SOFT. I've always been an intense person, type A, division 1 athlete, all about accolades and more accolades.…
Update on LitlCJdoll:
Crystal asked me to share her story with her friends here on CSN. She is currently in a Hospital, but may be going to Hospice, soon. She tells me that her lung issues make it very difficult for her to breathe. It has been decided that any treatment for her new Cancer doesn't offer probable extension or quality of life. As…
2 months after last radiation treatment
I was a non believer when my radiologist at MD Anderson told me that it could take 2 months to have the effects of radiation end. I'm so happy to say that it's now approaching the end of week 8 and no more damn ulcers!!! Hallelujah! I am noticing a funny thing and that's the back of my mouth, call it the roof of the area…
Looking for guidance
Hi everyone my name is Michael (content removed by CSN staff), I am from a small city in upstate New York and was recently diagnosed with a squamous cell on my tongue. Yesterday was my first visit with an ENT specialist at Upstate Cancer Center. I am looking for any guidance from anyone that has battled this type of cancer…
Cetuximab
Anyone in head and neck hear of this treatment and can give some feedback? Was informed that this is last hope and was only used as a extended life thing and to top it off was only 10% effective, my oncologist that’s been one of my positive outlooks now says we’ve gone as far as we can go, I kinda see why this is on 10%…
I’m a cancer survivor. Now what?
This is from Merck, I had a video downloaded and was searching where it came from and found it. Just want to share it with you guys for whatever you get out of it. There is a short moving video on this page, at least to me about being a survivor. One of the ladies commented how friends and family that know you are done…
Things Move On
I saw my ENT from Hershey last week for my 3-month follow-up and scoping that has been going on since my release from the hospital in late 2019. Thankfully all is clear. And my ENT agreed to extend my next visit to 6 months out instead of 3 months. Nice relief to get the all-clear on a visual. I have also taken my ENT's…
Side affects - Calling upon members!
I thought this would be helpful for people that are doing research that is about to go into treatment or are in the middle of treatment, or even after. I had a lesion on my left vocal cord. It was stage 1a, but the RO after that wait with everything decided to stage it as a T2. No node involvlement. I didn't have enough…
Hoarseness
It's been 4 months since my last radiation treatment for BOT cancer. Tumor is gone. Pet scan scheduled in a month. My main problem is hoarseness and dry mouth. My ENT says a dry throat can contribute to a hoarse and raspy voice , but I haven't read many blogs where hoarseness is a problem. Is any one out there finding his…
Year +5, my saliva is back.
I did 35 IMRT/carbotaxol for stage III tonsil back in 2016. Last treatment Jan , 2017. I was NED at my 5 year in September. I did get my taste back, in about March 2017. I still have periodic muscle spasms in my jaw. I have been using Xylimelts constantly for the last 5 years. A few weeks ago I was working in the yard,…
6.5 weeks after last radiation treatment
Hey folks, I have not been on here in a while. I went through some unfreaking real hell at week 6 through week 8. I know everybody is getting different sorts of treatment but I was an MD Anderson patient so I had 33 radiation treatments and I only made six out of seven chemo treatments. It is now 6 and 1/2 weeks after the…
Dematologist soon after Radiation?
I was wondering if any of you started to notice new moles, spots on their necks real soon after radiation treatment? It's only been a month and a half since my treatment ended and I can feel spots that weren't there. I feel as though I need to get seen by a dermatologist. Did anyone else notice this so soon? Where I live…
Hey Everyone. I'm new here
I just wanted to introduce myself. I'm Pete, I'm 46 and last Thursday, I was diagnosed with cancer on my tongue. I've felt pretty alone through everything so far as I don't have much family around me. On Friday, I had a CT scan to see if the cancer spread to my lymph nodes or lungs. On the 18th, I'm having the rest of the…
Cetuximab aka Erbitux
Does anyone have experience with Cetuximab for Head and Neck Cancer? My husband has tried three studies and each study failed him. Now Cetuximab alone is being offered. I don't know if it alone can help which is why I'm looking specifically for H & N cancer patients on Cetuximab alone. He has been told he will be on…
Pharyngoesophageal Stenosis - Long term effect of chemo radiation

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Head and Neck Cancer

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