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Head and Neck Cancer

Archives for February 2020

Taste and Saliva back
Cancer survivors. Had surgery March 2017. Radiation 45 days and 2 doses chemo shortly after. Golf ball size,stage 4 tumor was removed from my neck. Lost all of my saliva and taste. Dry mouth effects were tough to bear Now 2 1/2 years later I have just gotten about 50% taste and saliva back. I pray that this this is…
Update and plans moving forward
Good morning! Just wanted to check in and say hello, and thank everyone for all the initial support I received for my husband! We met with the Head and Neck surgeon last Friday. The plan is to have TORS surgery in about 2 1/2 weeks to remove/ look for the Primary by removing and taking biopsies from the Tonsillar region,…
Don't know what to do anymore
Hello everyone! So, I had SCC tumor removed from my tongue March 2016. Overall, I'm very lucky. Clean margines, 47 lymph nodes removed all clear. Very lucky indeed as far as that goes. The problem is that I have been in a state of discomfort and pain with no relief ever. My primary care doctor does his best to help me with…
Lymphedema pump experience
Hi all. Saw a couple oler posts on here regarding lymphedema garments for the head & neck, and I decided I'd share my experience with mine for those who are curious about how well they work. A bit of history: In 2018, I was diagnosed & treated for a squamous tumor in my larynx. Had some post-treatment lymphedema that I…
Update
So, 3 years out from diagnosis, I have 1 taste bud and it likes sugar.. My thyroid has bought the farm, its given up. My carotid is having issues.. And I have a rare side effect - Baroreceptor Dysfunction (my BP is way way low.) So what this means - I like sugar for the first time in my life - I have hypothyroidism, my…
Late Radiation & Chemotherapy Effects-8 years out
I had tonsil cancer (T1, N2, stage 4, HPV+) with 8 weeks radiation (70GY), and concomitant erbitux biologic infusiion in 2012. I did lose taste sensations, during treatment, but they returned about 3-6 months after treatment ended. Now, after nearly 8 years out, I have suddenly lost all taste sensations, have a "deviated…
Gabapentin Withdraw Issues
While receiving radiation and chemo for SCC (Stage Unknown - no stagging system for lacrimal sac SCC) my hubby was given copious amounts of Gabapentin as a nerve blocker for the treatments. The onc nurse gave him a generic 10 day taper schedule. We followed it and he completely stopped taking the medicine on Wednesday. He…
2/12/20 update
Hello folks. Just sending an update on my progress. Monday the 10th was my last radiation treatment of 30 so I am finished with that. Nice not to have to go for radiation every day. The plan worked as they were thinking I could eat through the treatment and am still eating with no problems so far. Although from the lymph…
Checking In
Hello to all H&N members: Haven't been on forum in awhile, and just want to know how everyone is doing. Feeling better, or making any progress? Unfortunately, I'm still the same. (:Was diagnosed with stage 2 BOT, tonsil, and lymph node cancer). Had large tumor that extended from the base if my tongue into throat). 2nd time…
Zippo Saliva & Over Radiation
Just wondering who else has suffered their loss of Saliva, have desert mouth 24/7, and constant sore throat & problems swallowing. In 2016 when I completed treatments had saliva, great taste buds, took swallow therapy since was on Feeding tube and transiting to mouth eating & swallowing again. Was amazed at the things I…
How many with Zero Saliva & hypothyroid
I was DX in 2016 with what they thought Stage 2-3 SCC, HPV 16+, NO lymph involved on skin only where left tonsil once was. Thought base of tongue & possible base of lung. Tongue & lung ruled out right away. So basically Stage 1, Nicole to quarter size patch of skin would get red when scoped or My allergies would make Me…
Questions from you folks with experience
Hi, im having a few problems since my surgery. I had a SCC stage 1 tumor removed from the bottom of my mouth in September. Then found out I had precancerous cells scattered elsewhere under the floor of my mouth. So I was told that there was a 95% chance I would have no problems because it was caught so fast. Then I agreed…
Cannabis warning
Hello, just ran across this info. might be worth taking note. https://futurism.com/neoscope/research-thc-accelerates-growth-tumors
Need advice Quick
My local ENT wants to remove my swollen lymph node this tuesday and have a biopsy performed. I received a call from MD Anderson team, asking me to wait and let them decide. What is recommended? I hate to leave it in for 3 more weeks before I can get to MD Anderson. Thanks
Scared to Death.
When I was 16, I broke my neck in a sports injury. After 18 months in a Rehabilitation center, I starting to regain some movement of my extremities. That was in 1977. I have never drank, smoked, always had yearlly blood work, dental work done and stayed as heathy as possible over the years. Three weeks go, I felt a lump on…

Head and Neck Cancer

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