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Head and Neck Cancer

Archives for November 2019

Can nasopharyngeal carcinoma be treated without radiation?
Hi, I was diagnosed stage 4c NPC with mets in September. Was told 5-10% chance of survival with no chance of curing the disease. Have finished 3 rounds of neoadjuvant chemo (Cisplatin,Taxotere, 5FU). I also have worked the last month with a healer. A month ago, after the 2nd round of chemo, I decided not to do radiation,…
Mucus everyone hates
Newly Diagnosed and SCARED!
Hi everyone! I am very new to this-3 days since learning I had Squamous Cell Carcinoma P16. i am 49 and am staring down my own mortality already. I can't believe the number of emotions that I have felt, been through, or worried about in these 3 short days. I have a PET scan tomorrow, and outside of being slightly…
Adding to Superthread
As many of you know, I am on a FT for the rest of my life. The Superthread does not have the option of adding. There is a section dedicated to Feeding Tubes, but I do not see 2 critical issues: 1) Amount of calories/day and water, based on height & weight, and 2) Crushed or liquid medicines put into FTs relative to the…
How to make Thanksgiving livable
3 days of radiation left. Last one Wednesday before Thanksgiving. Last chemo cisplatin will be decided on on Wednesday and given on Friday if he is able. Not eating. Barely doing 4 cans of tube feeding per day. my husband fee absolutely awful. How can I help him?
Best Health Insurance
Thank you all for your advice on my previous post regarding my mother in law that we think might have some sort of throat cancer and no health insurance. She is seeing the ENT in a week and will be paying for that appointment out of pocket. She is looking at Obamacare plans currently, but that won't kick in until 1/1/20.…
Scared family member
Hi all, I am just looking to get some advice on how to go about getting a stubborn person to seek treatnent. My mother in law, a long time smoker, has had a sore throat/ear pain for over 2 months now. she also doesn't have health insurance due to a recent job change. She went to urgent care and her ears look clear, so…
Skin help neck radiation
Suggestions for helping pain and healing for neck radiation skin.
Best Drinks
I know there was a recent discussion here about the best drinks for calorie intake. Not homemade but stuff you can purchase. I think there was a mention of a variety of boost that was extra high calorie but I can't remember the exact name. Maybe someone here remembers. Maybe boost HQ or something like that. Whatever it was…
Radiation burn healing environment: Moist vs Dry
I am suffering from some pretty bad radiation burn -- moist desquamation over a pretty large area. It is by far my worst side effect so far. I have two rounds of radiation left to go. I am considering requesting a referral to a wound care expert, because I am more and more convinced that my radiation oncologist is not…
Food TEXTURE (not taste)
Hello all, I'm new here, even though I've just finished my treatment protocol. I'm a 44 year old female, mother of 2, career as a veterinarian, diagnosed with nasopharyngeal carcinoma back in June. I recently completed 35 rounds of radiation (on 9/20) + 3 rounds of chemo (various protocols, stopping early due to side…
Preventing loss of range of motion in neck
My worst side effect so far (28 radiation session down, 5 to go) is the radiation burn on my neck. It is a 2nd degree burn now. Pink, raw, moist. Some bleeding at times. I am using Silver Sulfadiazine on the burn. I don't know if it is working or not, but it feels good and the burn doesn't seem to be getting dramatically…
Preventing
Voice Banking or Message Banking for Impending Voice loss
New here. Has anyone here ever done Voice Banking or Voice Message Banking? And then been able to get the use of the recordings turned into using your own voice rather than robotic sounding?? Is this technilogy even ready yet? My neurologist is recommending I bank my voice now because it seems I'm heading for loss of the…
One More Update
Stated earlier that I had the neck dissection and 2 operations to stop the leaking khylie valve. At that point from x rays a suspicious node was discovered so I underwent another op to biopsy the node and thank God it was negative. And then I had a temporary feeding tube in my nose so another op to put one in my belly…
Treatment options
I have metastisized HPV positive 16 throat cancer in my lungs now. I have been given two treatment options. * Fifteen treatments of radiation first and then follow-up with chemo or immunotherapy as denoted by testing. * Chemo or immunotherapy as denoted by testing The radiation is "out of the box" as being offerred by my…
Metastisized SCC, HPV & Occult Primary
Just found this site and Discussion Board today and am hoping someone can share their experience with similar scenario. My 73 year old husband was diagnosed in July with SCC, HPV16 with Occult Primary in the neck. It had metastisized to his lymph nodes on the left side of the neck. He had surgery in Ocotber, removed a…
Finally Home-Just a Brief Update
OK folks saying Hi and I am finally home. Just came home Monday afternoon Nov. 4 and had my first night at home in awhile. Had my first day today. The wife and I spent most of today dealing with the stuff they sent home from rehab,organizing meds and had visiting nurse and speech pathologist visit. I am still tired and…
Change?
How far into radiation did you notice tumor changes?
Neutropenia delay cisplatin second dose. Scared it will lessen curative radiation.
My husbands second dose of cisplatin is delayed due to neutropenia. How many of you experienced this? We are fighting HPV tonsil cancer.

Head and Neck Cancer

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