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Head and Neck Cancer

Archives for August 2019

Skin Tearing
Has anyone had an infection(they think it originates from some 'dead bone' area of my chin) in their face after radiation? I am on antibiotics for the infection but one area of my skin that was swolen and had a sore underneath the skin has split right through to the mouth. It started as a pin prick and is now a horizontal…
Another Chapter in my H&N Journey-Biopsy Today
Today 8/26/19 I got a biopsy of the lymph nodes in my neck I assume to find what kind of cancer it is so they know what they are treating. Such as what kind of chemo to use as an operation follow-up. The doctor took 5 samples to be sure they had enough. Plenty of local anesthetic was used so it was pain free and they made…
Best cancer center for H & N?
I would love to hear recommendations for great H & N cancer centers. Currently, I am being worked up at Moffitt and was quite satisfied with the way things were progressing up until last week. The main issues I am facing are lack of transparency in communication and a sense that am being manipulated. These two issues are…
HPV 21 months out
Hey guys I am blessed to be cancer free 21 months out. Tonsil, base of the tongue, and 4 lymph nodes. I went through the standard 36 radiation, 6 chemo in 6 weeks and have progressed better than the doctors expected. Question for you, do you ever get back to normal? Granted I'm 64, but I still haven't recovered my energy…
Hail Mary...chemo-immunotherapy last option
My Thomas had his nodule removed, but they were not able to get clear margins. Has limitations of weight and activity. At same time we noticed another nodule appearing in same area. Had PET scan and it showed multiple sights...in and around lungs but the worse is his original sight shows a BOT tumor compromising his eating…
Another Chapter in my H&N Journey-Scan Follow UP
As stated in a previous post I had some neck soreness and stiffness and lt felt like a tight muscle on the left side of my neck. ENT was not alarmed but he set me up for a CAT scan OF THE NECK with dye on 8/13/19 just to be on the safe side. OK-Hi Folks- so here is the update on scan-got my Cat Scan with dye on Tuesday. My…
CANCER STAGING
Hey all. Will try and be as brief as possible. Saw someone's post the other day and they stated that there previous Stage 4 was now classified as a Stage 1 under the "new" staging system!! What is this "new" staging system because according to my Oncologist and Radonc, the Stage 4 I was diagnosed with back in Jan 2018 is…
Best way to get crushed pills down G-tube into stomach
Had a G-tube installed 5 days ago with scant advice on feeding going forward. Had told them I had a FT for 17 months 10+ years ago, so maybe they figured I knew it all. NO. I was able to swallow chopped-up pills during my initial tx. But now, swallowing them is a coin toss as to whether or not they go down the right pipe.…
Newly diagnosed, atypical head & neck SCC of unknown primary
Hi everyone! I am a 55 y.o. woman, who has been diagnosed with head & neck SCC of unknown primary (HPV negative). Last week, I consulted with an oncologist at Moffitt Cancer Center in Tampa. He told me that he doesn’t believe they will find the primary and that we should just move on to treatment ASAP or at least within a…
eating surprise
Radiation Effects
Hello, I was diagnosed with Olfactory Neuroblastoma in March 2019, had surgey to remove the large tumor in my right sanal cavity in April and just finished my second of six weeks of radiation to my sinus' and neck (excluding my left saliva gland). During my surgery I had my entire olfactory nerve removed so my sense of…
Radiation de-escalation study
https://www.healio.com/hematology-oncology/head-neck-cancer/news/online/%7B38b7d331-5d5f-4fb2-acab-024eb46bd81b%7D/aggressive-radiotherapy-dose-de-escalation-confers-benefits-in-hpv-associated-oropharyngeal-squamous-cell-carcinoma?utm_medium=social&utm_source=facebook&utm_campaign=sociallinks&fbclid=IwAR3il24Qc4d1vS90wf6Ok9…
LANREOTIDE & AXITINIB--anyone know about these trials?
Yesterday I saw Dr. Tito Fojo in NYC. He is one of the best Hematologist/Oncologist researchers in the world. My ENT surgeon wanted me to see him before surgery. I told him all about my malignant Carotid Body Tumor. He listened carefully, asked some questions, and then spent the rest of the time talking about two trials he…
Cancer Metastatic to Neck Lymph Node
Hello Family, I a new member to the head and neck with SCC MPV Tonsil Cancer. I was told it's at stage 1 with a tumor on the right side of my neck. They were wanting to do Robotics surgery with possible RAD treatment after. Won't know until they do the surgery. I'm worried for a few reasons. If I need CHEMO and RAD will…
URGENT - Panic
HI all H&N members. I had my CT scan last week and I saw my ENT doctor today. He said my CT scan showed their was a "mass" in my larynx. They eliminated my original tumor on the base of my tongue and left tonsil. Now a year and a half later he suspects the cancer came back. Not just because scan said their was a mass but…
greetings from a new member
hello, I am a 61 year old male, recently diagnosed with stage 4 cancer. in my neck and throat. It is in my lymph nodes and has gotten into my chest area. The prognosis , I have been told is not good. My attitude is " it is what it is"" and to try to have a positive attitdue. I lived in New Mexico when i was initially…
I'm Back...
I was reading and posting to this forum back in the summer of 2017 with my first cancer. It was an HPV related carcinoma. The radiation therapy was directed to the base of the tongue. I had 33 days of radiation and 3 chemo sessions. I responded well and had been clear until this last June - 2019. During my last checkup the…
Another Chapter in my H&N Journey-Stiff Neck-Rad Leftovers
About a month and a half ago a couple of weeks after seeing my ENT I started getting a soreness on the side of my neck, the side that was radiated. When I stretch my neck different ways it feels like a tight muscle. There is some soreness a lot of the time but sometimes it feels normal with no soreness like the other…
Malignant carotid body tumor--new member
Hello, new friends. I am facing surgery in a month or so. Although I live in NJ, my doctors are all at Columbia-Presbyterian in NYC. They're all specialists with an impressive number of successful resections under their belts. My tryst with CBT (Carotid Body Tumor) began in February. I went into the hospital with some…
Tumor #3...God it just needs to end already
My poor Thomas has been in the hospital 1st week of July for pnueminitis and radiation inflammation. Out a week and back in he goes due to falling from newly prescribed severe Obstructed Sleep Apnea. While in this last time, the nodule they've been watching around the area the drain tube was in grew larger, so they did a…

Head and Neck Cancer

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