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Head and Neck Cancer

Archives for May 2015

This is good news to hear...
...and short to read. p http://news.yahoo.com/merck-immunotherapy-appears-effective-head-neck-cancer-study-180653301--finance.html?soc_src=mediacontentsharebuttons
Surgeon canceled tongue surgery in middle of surgery--now what?
surgeon stopped tongue surgery-now what? in hospital now. Surgery scheduled early this morning to remove half of tongue, rebuild it with a flap (from arm), and have lymph node dissection on one side--this was supposed to occur this morning. Once surgeon got in there and saw that he would need to remove whole tongue, he…
anyone heard from jcortney?
I don't think he posted in awhile....Hope you are ok my friend.
New with the DX. Cisplatin VS Erbitux
I was missdiagnosed back in November with Chronic tonsillitis. Asked the Dr at the time could this be cancer? The response was a confident no. I ran with that. No followup. About a month ago I felt a new lump on my neck. Quickly went to ENT. BX Right tonsilar squamous cell cancer with lymph node cystic mets. I am told it…
severe trismus/fibrosis after radiation treatment
My dear sister had radation following a 10 hour surgery for a rare from of head and neck cancer 14 years ago. Had one reoccurrence with more radiation two years ago. She struggles to eat and is terrified of having to get a feeding tube. Any advice for us?
Just Wanted to Thank You
I only made a few post but gained much from reading others. Dr. said I was cancer free yesterday now the road to get my fourty pounds and muscle back. Good luck and God Bless to you all.
5 years out
Jim is now five years out from his diagnosis of advanced inoperable hypopharyngeal and base of tongue cancers with lymph node involvement. We want everyone to know that although it was a tough fight, it is a survivable. If you are facing cancer just know you can come out on the other side. Thanks to all for words of wisdom…
Wondering about luv4lacrosse...update - RIP Mike
Has anyone had contact with or know how Mike "luv4lacrosse" is doing? His last post - I believe in February - was not as upbeat as I would have hoped. His journey has been very similar to that of my late husband's and I have always been so happy that he has been successfully winning the battles with this damned beast!…
Got my MRI results
I just got the MRI results. There is a problem with the left maxillary sinus. A vertical septation is seen in the anterior aspect of the left maxillary sinus. All other parts including nasopharynx, oropharynx, parapharyngeal and paranasal sinuses are normal. I will see my ENT doctor Thursday. I have questions: 1) My…
Memorial Day 2015
Hello Gang, I'm sorry I don't get back here to visit my old friends as often as I should. It's Memorial Day. For me that means the traditional start of summer, a day of remembrance of those I hold dear and a day of reflection. Speaking of reflection, about five years ago I was in a hospital bed recovering from an…
popping in
I wanted to thank everyone for the good thoughts while in hospital. Still here, probably will be throughout next week. Wanted to clarify, I am not quite done fighting. Yes it seems the beast has decided to want to rear it's ugly head again. Well o.k., I am now going to confirm it by biopsy? Depending on the line of defense…
Celebrating 2 yrs 6 months NED!
Just a quick upate to let everyone know we are still around and enjoying life! Kreg has celebrated 2 yrs and 6 months! Had his check up Thursday and NED was the word we got! For anyone fighting the battle.....there is light at the end of the tunnel. Hang in there, it gets better! God Bless you all, ~Cris
My husband is at peace now
Sadly, my husband, my heart, passed away. I loved him so much and I am heartbroken. I find comfort in knowing he is at pesce but I miss him so much. http://www.legacy.com/obituaries/stltoday/obituary.aspx?n=harry-w-taylor-bud&pid=174882457&fhid=5885
Katie
I do believe Katie is in the hospital with pneumonia, there is a posting in my facebook timeline. Hope I am wrong
Seek bless and help
I came here first July, last year. At that time, i guessed i have a NPC since i have a family history and bleeding mucus in the morning and painless swollen lymph nodes on left neck. But through CT scan and nasal endoscope, everything is good. I have done biopsy with needle and came back with no cancer cells. So i think…
Mask and claustiphobic
Finally some treatment for my mom's fast growing eye cancer. They will radiate her eye for 20-25 days. She goes for her mask mold on the 28th. The problem is, she is off the chart claustiphobic. The Rad Oncologist gave her Valium but I still think she will freak out. To give you an idea of the excess phobic she has: She…
Head & Neck Goes To Lungs ,Please Help
I am a survivor of Head & Neck Cancer (Squamous Cell Carcinoma ) but although i still have a battle on many fronts my Cancer has not returned . unfortunately my Brother inlaw was diagnosed with the same cancer and underwent chemo therapy/ Radiation treatments and although that seemed to go well he later ended up with a…
Laryngitis and bronchitis after treatment for SCCa hypopharynx
Hi everyone. I was treated last year for piriform sinus Cancer with chemo then chemo radiation. I had an excellent response and am NED 15 months later. I did well during treatment, was able to eat the whole time and didn't lose an ounce of weight. I lost my voice for about a week. Then on completion of treatment late June…
dentist in Oregon
Hello I had tongue cancer and it spread to my lymphnodes when I was 21 years old. I'm 36 now and having constant dental issues because of the radiation. I just moved to Corvallis, OR and I'm looking for a Dentist who has experience with this issue. I'm willing to travel if there is an experienced dentist available. Any…
Elaineh
Just wanted to help out Elaineh, she's new here.... So I'm helping her get started with her introduction and her first post about herself here on the forum.. John
Meegs...Rest in peace
Dear friends, I am so sorry to tell you that our friend Meegs passed away on 14/5/2015 at the age of 29. Her fight started with esthesioneurblastoma but then the reoccurrence reached her brain and then spinal cord. I glad that I met her here and chatted with her over the past year, she was such an inspiration and supported…
Neuroendoctrine tumour
I seem to have hit the jackpot in cancers. My third cancer is very rare and hard to detect called neuroendoctrine tumour. I was diagnosed this month. My three cancers were unrelated. If I can get a hat trick in cancers why can't I win the lottery I would think the odds are the same. The tumour/tumours are in my small bowel…
NED sweet NED
Hi all, today we got to hear the 3 magical words for the first time! And the doc congratulated Dima on graduating from this. Next step, to get the port out. We are so happy and thankful. I wanted to share the good news with the group. You were/are a part of our support system. We are thankful for the prayers, support,…
Surgery to Repair Soft Palate
Hi everyone! I am 8 years cancer free after being diagnosed with NPC in 2006!! My soft palate was heavily scarred because of my radiation treatments and I have had problems with hypernasality, food and drinks going into my nasal cavity, and then subsequently aspirating that food into my lungs when I breathe sometimes. I…
donfoo and WMC meet......
It is really great when you get to meet face to face some who you have been talking to for more than a year. It was great to meet Don in person. I will say he is one special man. Thanks for taking the time for me, and I also had my 18 month check up......NED agian. I sure love to hear that NED Bill
Cardboard
Hi. Here is a me, me, me message that leads to a question. I have base of the tongue cancer and I just finished my 3rd week with a combination of chemo and radiation. The treatment has killed almost all taste buds and many salivary glands. The total lack of taste has given me negative incentive to eat and I’m losing way…
Pancreatic cancer
My friends mom was diagnosed with pancreatic cancer but I don't see a room for pancreatic cancer- any suggestions anyone?
For Mother's Day(Not Cancer Related)
For all of you who remember me and those that don't know me, I hope eveyone had a pleasant Mother's Day. As you know, I lost my husband Ron two years ago followed by my daughter Debbie just ten months ago. It was a rather sad day for me as all holidays are for some of us. For the first time in nearly 50 years, I did not…
Recurrent NPC neck/jaw/tongue problems
So a brief overview of my story is that i've been battling with NPC since 2011. I was diagnosed when I was 20, and have been fighting it ever since. I have periods of remission, and then recurrences. I am in my second clinical trial, and have been through about 4 different types of chemo and many radiation sessions. My…
Toncil Cancer....2 1/2 Years After Treatments
Hi Everyone, I don't post much but I am here reading all of your posts often. I remember when I was in my treatments, I loved to hear the good news stories. I am sharing my update in hopes of offering encouragement to those who are in treatments now. I had my 2 1/2 year check up last week. Doctor did the normal scope of my…

Head and Neck Cancer

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