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Head and Neck Cancer

Archives for August 2014

newbie
47 yr old male on march 6 of this year found out i had parotid gland cancer stage 4 adenocaecinoma nos high grade poorely differanted margins involved peripheral soft tissue lymph vascular invasion present perineural invasion present lymph nodes 2 removed extranodal exstension presence extraparenchymal exstension gradeing…
scan was amazing!
nothing but good news! we are so thankful...and he has started to be able to eat some today too...must be alot of mental block gone thats made him want to eat more now too! thanks for all the prayers and good thoughts...next scan isn't until November!
Just need a place to vent...apologies in advance-UPDATE
Well, after the reoccurrence, radical neck dissection, thyroid gone, numerous "things" in the lungs, three rounds of Carbo/Taxol/Eributux, tomorrow is finally the scan day. Head to bowels and I must say, I'm more frightened than any time in the past 2 1/2 years. Intellectually, I know that the "cocktail" probably did what…
Ensure - PLUS
For anyone drinking Ensure, if you haven't noticed, the PLUS has 350 calories instead of 220. I find it a bit thicker so I thin mine down with about half cup of whole milk adding another 70 calories for a total of 410. Milk chocolate is my preference. It's more expensive but works out in the long run because I only have to…
Get scan results tomorrow....
so..after a first not so good first scan...we got a second opinion and had a new scan last week and get results tomorrow...i hate this part..the waiting is so hard...at least when you know what you are looking at ..you know...the unknown just stinks....
Skiffin Update - No News
Hello family.... I just wanted to let you know, I'm still alive and kicking, just not very high as of yet.. I don't really have much news other than I am feeling better with the IV fluids going in daily (18 hours). But the hole in my stomach is still seaping, though not as much. I'm still not supposed to be eating or…
still there
well after finishing my 35 treatments of rad, i was in so much pain my dr. had me get a pet scan early than she likes. sure enough some more cancer showed up. so went to diffrent dr. for a mri. he want to make the hole in palate 3times the size it is now, plus more jaw bone to be removed and some of my cheek bone. he plans…
Any one got an update on John - Skiffin
Been out of the loop for a few weeks. Anyone know how John is coming alng? Debbie
It's back :/
ended up in hospital this week with super low sodium levels and couldn't stop vomiting... Had loads of tests done and the last one was an MRI just to rule out recurrence... Turns out there's now disease in my brain :( dont know many details like how much and where exactly but it's in a few places. Was only dealing with my…
Symptoms after Treatment. Can anyone help?
My Brother-in-law ( who has Throat Cancer) just went through 7 weeks of Radiation ( 5 days a week, 45 min a day) and Chemo ( 1 day a week for 8 hours). He was doing ok. Couldn't eat so they put a tube in the Stomach, but other than that ok. Swallowing was uncomfortable, but possible. He was seemingly "normal" in terms of…
Is your glass half full?
I have often heard the question; Is the glass half full, or is it half empty? Well as a member of this H&N Survivors group and the support I have received I can now answer that question: My glass has been refilled.............. Many times. Thank you all for helping everyone in our extended family. Bill
Blood transfustion (Blood doping) for cancer patients
Hi Everyone. I was wondering if anyone has details or information regarding to giving cancer patients blood transfusion from a healthy donor. Would it improve the quality of life with boost energy and healing? Would the white blood cells in the donor blood help or not help or has an adverse effect to the recipient? This is…
pet scan came back
Hey guys had my first pet scan monday and today was told all is good.He said it looks like everything they wanted to get they got.He did say that my throat looked alittle swollen but looks more like it from the scar tissue and will get better with time.Did start back to work monday nite also..Wow longgg nite but felt…
Catching Up
Hi all: Time for another update. First of all, my nephew Brian DOES NOT HAVE an enlarged heart. They did an echocardiogram during his recent hospital visit and it's not enlarged like they told his mother at the nursing home/rehab! He does still continue to battle body temp drops but is now back at nursing home/rehab. My…
An interesting article about HPV
http://www.current-oncology.com/index.php/oncology/article/view/1375 This London based study is quite recent - for you info , Gary
worried obout throat cancer please help me anyone please...
Hi all, it is not easy to be there.i have ent problems ,i have sore throat ,burning pain un my one side jaw and ear .i have neck pain and when i turn my head to both sides it sound kinda cracking.weird sansation one side of my tounge and some pain in my mouth. My left tonsil is some bigger than other.i feel like its pain…
Heavy Mucous...
I have seen threads on dry-mouth but what do you suggest for heavy mucous buildup. I am now constantly having to spit out huge thick gobs of rope-like mucous that I can barely get out of my mouth. I spit so hard the other day into the sink that the left side of my face started to cramp up. It seems here in Canada that they…
7 months check-up. Mixed news
There is an enlarged node on the contralateral side, which they're keeping an eye on. Another ultrasound planned in 4 weeks. The new lesion, also contralaterally, which looks identical to how my original tumour looked last summer before the **** hit the fan... he feels sure that's a mouth ulcer due to rubbing on a nearby…
Good news but hard times ahead
Back from vacation with sisters in Ohio and catching up with all my friends on CSN. I think it did me good to get away for a couple weeks of distraction and refreshment. I recieved good news the first day home, my condo is ready to close. But that good news is tempered with the thought of sorting through Jim's belongings.…
Chemo/Rad complete but Platlets numbers dive
All of you have been so helpful, so I am asking for anyone's feed back on low platlet count. My chemo/rad stopped 2 1/2 weeks ago. Between last Tuesday and yesterday my numbers went from 170 to 112. They doctor was surprised so ran them again and they went down 5 more points in less than 1 hour. I was told this was do to…
1st Rad session today --- update 4 sessions done :) but dryyy throat
Hello all, Had my first rad session today. The mask is tighttttt... But I thought of it as a facial treatment mask, as if I'm at the Spa! :) The technician was very helpful and kept on talking with me during those 15 min. well... Its still the first session, but going through it means that I can go through the rest and win…
10 month checkup....NED
Had my ten month check up and the doctor is very pleased. Said everything looks great and it's NED. It was a long day, left the house at 9:30am and drove fours hours to the doctor. Had to wait 1 1/2 hrs to see him, he was running late. Then he called my SLP and made her come down and change my TEP due to leaking and…
Drinks that help with dry mouth (xerostomia)
I'm wondering if it would be useful to create a list of drinks that those of us with Xerostomia have found helpful? It becomes quickly and disappointingly clear that water is next to useless! Artificial saliva isn't great and I found Pilocarpine made me quite unwell. So what has helped you? Here is my list, so far. I know…
NECK AND JAW SPASM'S
Im 4 yrs out from bilateral neck rads and of course it is catching up with me. Ive had the neck spasms for quite a while and seems like they are triggered when I do specific thinks, IE: lots of time on a computer, looking down or up for extended periods ETC. I also started to have some worsening TMJ type pain and sometimes…
Swiss Cheese Trachea?
Happy Monday, Folks! Hubby started his IMRT today in Houston. 1 down, 32 to go. He met with the oncologist who explained the risks and brought something up I was curious about. If the trachea has been comsumed by cancer to the extent that a hole will be left when the cancer is killed, where does that leave us? Does the…
pain in throat after inserting the feeding tube.
Hi All, My father 53yrs on his last week(3 days left) of radiation of 7 weeks.day before yesterday we put the feeding tube.From yesterday he is saying he is feeling pain in his throat.when swallowing the saliva(though he had pain before he is telling he is feeling more pain).Does it because of tube or anything else,i am…
Tracheotomy Tales
I have updated my profile with my own 'tracheotomy tale' - I'll bet we all have a tale to tell about our trachies, be they temporary or more longstanding. When end you think of everything we have got ourselves through, we are a bunch of heroes when you think about it! Give ourselves a pat on the back :) )
19 years old, swollen nodes, very scared, how do i know it hasnt spread?
Hey Guys, My name is Daniel, im 19 and living in a city called Cork in Ireland and currently i have 2 swollen nodes in my neck, one is near my jugular vein and another is on the back of my neck. I have an upcoming ultrasound of these nodes next week and then depending on the findings, a biopsy. I think it may be NPC as i…
Hearing Loss...
So, I've done 23 rads and 2 cisplatin chemos and have the usual side effects...but I told the doctors a few days after the second chemo that I was having definite hearing problems, especially in my right ear and am losing constant tones that pitch in the ear and then disappear. They said they will defintely not go the…

Head and Neck Cancer

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