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Update on "HAWVET"
My Dad "HAWVET" asked me, his daughter Shirley, to make sure that I sent all of you his goodbyes when he passed. He considered you friends and obviously held you in high regards. We miss him terribly right now and thank you for all of your prayers and support!!
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Update on tooth decay drama
Hi folks, Well, I was correct, the back edges of 5 teeth are eroding and starting to decay from lack of saliva killing the bacteria. The plan is to get the decay out via drill (UGH), and then add composit bonding to seal them. Have 2 new products to use at home now: 1. NeutraSal which is an electrolyte solution to treat…
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Docs tomorrow
had ECG and blood test on Mon, Doc rang yesterday wants to see me. With luck they may have found why I get breathless walking up stairs and slopes and feel tired all the time. They did several tests including thyroid. Several of you recommended to get a thyroid test. Fingers crossed they have found the cause now I may be…
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What changes did you make after treatment to improve your chances of cancer not returning ?
Hello there, I had my dentist today to see if they were taking any teeth out ready for my radiation treatment. Thankfully I get to keep them all. I am soo happy for once that something is in my favour. Speaking with the dentist, she said I have to take special care of my teeth because radiation can weaken them and muck…
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sherbear, KarenSuki, Robyn64, Donka...
Hello all, I was reading some of the posts, and i felt the need to write this post for :Shearbear, KarenSuki, Robyn64 and Donka.. all of the 4 are starting treatments, and new things, it must have been really hard to start new thing in life especially when its not a nice thing. Since i haven't started any treatment yet,…
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Meniers.org
This is a great site great people it......Like a small family you can get all the info on ears tinittus vertigo fullness..............some people have ear problems on that site due to treatment ..............................Take a peek over it's a really nice site and you can learn alot of stuff from the people there It…
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neck disection
FIrst post so be gentle. HAd lymph nodes on both sides removed as precaution, after biopsy this procedure was proven to be not required. This was 3 weeks ago, very numb in neck chin throat and left breast/ chest area . Also terrible irritation similar to prickly heat. Doing physio as recommended but irritation is almost…
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MuGard Feedback Please
I'm going to start treatment on June 8th. I asked my doctor to order MuGard for me and expect to get it on Friday. I've read that some have used MuGard to help with mucousitis. I'm interested in learning about your experience using it. Did it help? How and when did you use it? How many times per day? My understanding is…
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Phrannie51
Good news I spoke to my hubby's colleague went through the same thing had the same feeling was worried to death went to her ent and it turned out to be the effects of the rad and chemo she is going on 15 months clear I spoke to her today she also had tinnitus before cancer soo try not to worry to much hang in there
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First scan after RADs
Gabe had his first scan post treatment on Friday. That was one of the longest weekends off my life waiting for those results! The Dr found some lumps on his opposite jawline from where the cancer was originally found so we decided to have the scans done a few weeks early. We are scheduled to head back to Houston the third…
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Encouraging news on HVP related cancers
Probably most of you have heard the news about the clinical trial using targeted T-cell therapy on a young woman with advanced HPV caused cervical cancer that had spread throughout and was threatening to cut off her windpipe. She and one other person out of 9 had a positive response and is in remission now and one other…
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Weight gain difficulty
Please feel free to chime in or add your experiences in regard to gaining weight after treatment for NPC or any forms of head and neck cancer. I am about a little over 6 months out of treatment with 3 Chemos and 33 Radiations. Able to eat but struggle (manageable) with swallowing. Have been eating burritos, hamburgers,…
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warm salted water vs mouthwashes
Hi, I have a query about the best way possible to keep my mouth clean and possibly avoid sores if I can. I have noticed through reading posts that many of you use mouthwashes ? Here in Australia certain mouthwashes, the most common brand was linked to mouth cancers, being listerine, but apparently any alcohol based one.…
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Update on jaw resection
My jaw resection was 4+ weeks ago, and so far it's been a mixed bag to report. The good news is that the main surgical site appears to be healing well, as is the 'donor' site on my left leg where they took the skin and bone for my new left jaw. On the other side, I had some complications that have caused me to need a lot…
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Just Diagnosed with a Tumor in my Tongue
I just wanted to say hi before I passed out for the night. I was diagnosed about a couple of weeks ago with a Tumor located on the underside of my tongue. The doctor wrote the official name on a card in my purse. And the only thing I remember right now is that it is Stage 2 vs. Stage 3. I am just recovering from the…
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Anyone had what looked like decay on upper teeth?
Been examining my mouth extensively for months now and just noticed what looks like decay on the bottom edges of my two front teeth. Wierd. Anyone else experience this one? PJ
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Paranoid in Montana.....
I've been freaking for about a week.....and can't seem to contain it to myself any more. I went to the Oncologist on May 22....all was fine....the same ol, same ol......decided to wait till August for another MRI. Then, 4 days later my right ear (that actual ear) started tingling....pins and needles, without stop. Strange…
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Diagnoses
1. for the first time I got a diagnoses on paper from the onc.......it says T1,N2b squamous cell carcinoma of the right tongue base treated with primary surgery and adjuvant radiotherapy completed Oct2013 3 cancerous lymph nodes. 2. hypopharyngeal/cricopharyngeal narrowing post radiotherapy can anybody translate this for…
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Mouth exercises
After surgery in upper jaw area (Trigonal area) mouth no longer opens fully. Any exercises to widen openiing back to normal?
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Emotional Support Treatment Starting Soon
To all my new found friends on this board, thank you so much for all the support you have given to me. I feel very blessed to have found a place where there are others who can truly understand what I'm going through. With all the surgeries, it feels like my energy has been drained. Now, as I approach the begining of my rad…