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That Time Again
Hi everyone , while I don't post all that often anymore , I still stop by now and then to see how you are all doing . As for me I'm sitting waiting to go into my 6 month CT scan , had my labs earlier this week and all good, see my onco next wed for the checkup ... But still the scanexity ... Even though in 2 weeks I will…
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My doggie died...stupid cancer
My sweet Bubba died yesterday. He woke up very sick and was strange all morning. We took him to the vet and his bloodwork came back horrible....they sent him to the 24 hours animal hospital. After an ultrasound and more tests we learned that a tumor in his stomach had ruptured spreading cancer through his body. There was…
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INFORMATION FOR ROLL CALL 2014
Am extending my appreciation to all of you who have participated or enrolled in the Roll Call forum. Enrolling is voluntary. Roll call 2014 will be updated from the information posted in the "Roll Call 2013" thread. Someone brought up the 2012 thread and there were some updates listed. Do not repost and I will transfer…
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Bonehead klutz move almost killed me this morning!
Hello all, Was doing fine swallowing only 1 1/2 weeks of Rads left, eating my cream of wheat and enjoying it. Thought I would start back taking my vitamins I had to stop for g-tube surgery, so popped a big fish oil capsule in my mouth and then the fun began.... Started to gag as it got stuck somewhere in my throat. Tried…
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Another bullet maybe
Have had a nagging sore throat, more like sore side of mouth and lousy earache for a couple of weeks now, when I put my finger in my mouth and feel the spot that hurts I can make it hurt more. At first thought it was my lousy fitting dentures but have not used them for a few days and still the same. have an appt with ENT…
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Anyone find themselves watching food network 24/7?
I am a foodie.. .my wife and I have travelled the world for good food and boy... do I miss food!! I watch food on TV constantly lol. Soon to be finished with my 6th week of treatment. God bless, Jamie
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Need some light on Throat Cancer
Hi All, My friend has been diagnosed with squamous cell carcinoma in the throat. We just got the biopsy results yesterday and its mentioned as malignant. He is 67Yrs old, non-smoker and non-drinker. He has a history of bloop pressure and diabetes (currenly on daily medicines and under control). He started having coughs…
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A post tx HAIR question
My hair is falling out in handfuls. It started towards the end of my radiation treatments (no chemo) and I asked my rad onc. (keep in mind...he is pretty much a jerk and I do not like him at all) This was our conversation: Me: My hair is falling out in handfuls, in the shower, when I brush it, etc.. Him: No, rads won't…
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Ct time once again on thursday
Hello everyone ! Well it's that time once again for my lung scan and spirometry testing. Seems like groundhogs day when your in the machine. (never ending) But in reality it's only minutes even with the contrast (unless they miss your vein a couple of times ... ouch !) Last time in I thought I was doing…
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Pentoxifylline + Vitamin E for radiation-induced Muscle Atrophy? Anyone?
Good day fellow survivors I'm a new member who accidentally found this site while searching for a solution regarding one of the late radiation side-effect that i have been experiencing. I was treated for NPCA on 2005 when i was 21 yrs old and there were no recurrence since then. Among some of the side-effects that i'm…
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First Mouth Soars
Just into 10th rad and past 2nd chemo and a mouth sore has appeared - yep the nurse said from the rads, yep the rad/onco said from the rads - I am swishing salt water and baking soda vociferously many many many times per day - according to them and the onco it will just get worse - I have read the magic mouth and mugard…
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Need some help...
I am in my 6th week of a 7 week treatment. I have hit a wall with eating and I am now starving. I am basically on a liquid diet, which is fine. The problem is that Boost, Resource, Ensure, etc make me sick when I drink them. My body doesn't like them at all. I was doing really well with Carnation Instant Breakfast…
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Very, very weird occurrence today
I woke up this morning and something was different, not bad but something was definitely not usual. The feeling lasted all morning and was nagging me until after lunch when I finally hit on what it was. I DIDN'T HURT. First time in almost two years that my throat didn't hurt. Pain has been advil class for the last three or…
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Need Some Love… ~ Updated ~19DEC2013 - Paths Clean..
Well actually, MOJO, thoughts, prayers and all of the other good stuff... I've had a small cyst on my pancreas for a few years... It hasn't bothered me, hasn't lit up on scans, or increased in size.... But for whatever reason, they have me scheduled for a procedure called an EUS tomorrow, along with my every two year…
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The war with canker sores -SOLVED- UPDATE!
Hi All, Wondered if anyone is/has battled canker sores after tx. Kreg has been out of tx for a year and has been battling canker sores ever since. He usually has 1 or 2 at a time, but this week he has 3 and they are worse. Really is hard to eat and be comfortable with them. He has tried almost every suggested rememdy out…
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Thera Breath gum alternative. For dry mouth?
Hey Guys, I recently tried Thera Breath gum (Dr. Katz) and its seemed to work well for me. ( It was the first time i chewed gum in over a year). How ever the price of the gum is outrageous. What other gums have you guys used with sucess? (I use xilememelts at night and they work great)
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Something in the back of the throat
Hi All, I had NPC (stage 2) and finished treatment 2 weeks ago. When I swallow water or air, I feel there is something scraping the back of my throat. It feels like hard and sharp. Anyone had that? Or is it just the dryness and radiation burn of the throat making that sensation? Wound visiting an ENT who might put a camera…
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Cured vs. Healed
As I recover from cancer treatment, it's become quite evident that I've not been cured of my illness. When we speak of a disease, we often tend to think of it in absolute terms. Curable and incurable. This is due mostly to the way we think of medicine and the way modern society thinks of it. It doesn't take into…
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Saliva thicken post treatment
Hello all. I am two weeks out of treatment. I've notice my saliva is getting thicker and thicker. Is that a sign of progress? At night when I sleep, there is no saliva at all and the mouth is dry like a dessert. But in the morning, the saliva comes back but very thick. Does anyone know what all this mean? Anyone have…
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G-tube cleaning inquiry
Hello Everyone. I have a feeding tube and have been using the bolus to pump the puree into my stomach. However, recently it has been clog more often than not. I was told to use Coke. Is there other alternative beside soft drink to clean the tube? Carbonate water? Canada dry? How often do I clean it...every time after each…
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Sore throat remedies/prevention
Hey, just wondering about the sore throat what worked for this and did anyone have success preventing sore throat from rads? Getting nervous about this. Help. Still able to eat food and swallow today, tomorrow.... PJ
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Bored
I,m getting bored with my diet, for the last two months I,ve lived on liquid feed and water. I know I won't be able to taste it but can I have Luke warm sweet coffee through the tube, I hadn,t seen any postings on beverages. I miss the energy surge in the mornings but I don't want to upset my stomach.
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A good read for anyone touched by cancer...
I copied this from a FB site dedicated to Oral Cancer Survivors... It's long, but a great read. Puts a lot of feelings into words. ...............Your relationships are about to change. All of them. Some will get stronger. They will probably not be with the people you would expect. The people you want to handle this well…
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YOUR MOJO WORKED
Thanks to all of my CSN buds who sent me the encouragement only us in our "unlucky fraternity" could send. My scans were great. Continued shrinkage of the two lung tumors, and more important, the two Mediastinal Nodes are all but dead tissue. To the newcomers here, NEVER GIVE UP!! I have been stage 4, get your affairs in…
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bad blood
Hello y'all! Haven't been here in a while. Been working and living and enjoying as much food as I can Lol. Had a recent scare though and who better to ask than you great people :) apparently, my last trip to the doc met with some questionable blood work :/ although she had originally told me I didn't need a pet right now,…
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organ donation on DL
Hello everyone, I have to renew my DL this coming January. I found out that I need to take off my listing as a donor (organs) due to my dx. I'm a little bummed, (35 yrs.) as I have always believed in this wonderful way of giving another a chance at life. I don't know if this is for all cancer dx's, but for sure mine. ADCC.…
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PET Scan/Tonsil Cancer
Hi, I wanted to let you all know that my 1 year after treatment PET scan came back NED. I am relieved and happy. Last year at this time, I was nearing the end of my treatments, I was beyond scared, feeling horrible, and really depressed. It was a miserable time. Even though I was surrounded by loved ones, I felt alone with…
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Halfway through XRT
Hanging in after a second g-tube placement Monday that caused my BP to drop so low they could not get a reading on 3 BP machines and they kept me until 6 pm Monday so I missed my XRT that day. I was really leaning towards just having an NG tube placed for 4 weeks but the MD talked me out of that. The pain level was a 10…
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Hi Friends!
Sorry been gone so long fighting emotional issues with living with side efeects, i ability to work, and STILL waiti g for my appeal hearing for almost a year, officially no paycheck for a year so I told Faith Santa laid off Elves its tight budget at North Pole so dont expect that much. She took it well, but really she'll…
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PET scans - poll of how often
Hello old friends, I know it's been a while, but now I have another question. Historically, my husband had scc of tonsils, Stage 4, went through radical neck dissection in April of 2011, 35 radiation sessions in June of 2011. He hasn't had a PET scan for 1 1/2 years (being followed by ENT surgeon.) She says she doesn't…