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I know it has been a bad year
for a lot of us. But we all will make it through. But as horrible as it has been, we all have something to be thankful for. I know it is hard right now but think hard and you will find that the Lord has given us blessing throught this ordeal Stay positive, pray lots, and enjoy that you are here. Sandy
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Survivor here
Hi all. I have not been here for some time. Dx 2009 right tonsil scc 34 rx 3 cisplatin did it tough like everyone. Weight all back. Saliva 80%. Savoury all back. Sweet 80% back. Considered cured and living a wonderful life. There is hope and life xxxx. Can taste chocolate sometimes x. Just wanted to say hi x
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lymphedema
I am 6 weeks post radiation treatment after rhinectomy. The swelling around my eyes is especially bad, my whole face not AS bad. My ENT said the other day that it was lymphedema and could be treated with facial massages. Does anyone have any info to give me a little clue? Does anyone else get non-answers from your medical…
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Thick saliva management inquiry
Happy Thanksgiving everyone!!!! I am thankful to have finished my treatment two days ago, thankful to have found this network and interact with all the survivors . Since my last radiation treatmen, I noticed my mouth kept on producing thick mucous or saliva. It has been producing before the last treatment but seems like…
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Happy Thanksgiving!
Just wanted to stop by and say hello to my family here at CSN. I haven't been posting much lately, I know. I could say that I've been busy and I have... but I think losing my mom to lung cancer in August hit me a bit harder than I'd anticipated. I've still been visiting every couple days, happy to see the old-timers doing…
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Biotene product changes? Anyone have advice?
Hi All: After using Biotene's toothpaste, mouth spray, and (especially) the oral gel for over a year now, I just had a heck of a time finding any products left on the shelf in drugstores...amazon sellers' prices (especially for shipping) have gone way up. When I checked out online what might be happening, another cancer…
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1 Year Ago....
Oh what a difference a year makes! Last year, I was near the end of my treatments for stage 3 tonsil cancer. You all know how I was feeling. Today, I am past the treatments and doing so much better! I am back to work, I have most of my energy back, and my appetite is back. I am having some minor issues with throat swelling…
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Heading into a year NED
I am not going to post a feel good post because every time I do I get hit with a hammer over the head right after I post it. 12/10 will be a year for me. Quick story- small world- someone I work with is 8 weeks post treatment for tonsil cancer 28 lymph nodes removed" I ask him" how do you feel" he say " great" no side…
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Day of thankfulness!
I want you all to know that I am extremely thankful for each and every one of you. This is my safe place where I can ask, vent, or just give news and you all really UNDERSTAND me! You all know how I feel. I am so appreciative of you all....I owe finishing my treatments to you all for the encouragement and the push forward.…
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Happy Thanksgiving to all my CSN "Buds"
Hi all: Gobble Gobble! Hope everyone out there has a great Thanksgiving. And let me take this moment to say how thankful I am for all of you! Will check in later as must see to last minute details before my sister and her crew get here for Thanksgiving! Love to all and God Bless! Jan (Basketcase)
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Magnesium Citrate
So, I've been constipated for 7 days now with barely any relief. It's a terrible feeling. I feel my whole body being tainted by all the junk in my guts at the moment. Yesterday the doctor prescribed me Lactulose to take every 2 hours until movement - but nothing happened. The doctors and nurses were amazed that I had taken…
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Help! - New PEG tube
I just got a new PEG tube today - my old one was leakng. This one is bigger (24) and shorter - AND DOESN'T have a clamp. What do I do? How do I "feed" without everything coming out? First try - what a mess! Of course, Doc's office is closed for the weekend.
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Happy Thanksgiving
On this Thanksgiving Eve, Marcia, myself and of course Socrates would like to wish all of you a Happy Thanksgiving. We have a much to be thankful for. To the victors, continued NED's. To those in the midst of the battle, continued victories and future NED's. And to those we have lost to this beast, prayers and peace to the…
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Hiccups
Hi Everybody - sorry to post maybe a low level issue - but had first rad Mon, chemo/rad Tues/ and 3rd rad today - I now have developed hiccups that started this morning and are still going on - I read some of the past threads and posts back in 2009 - and they did experience this and I have read some studies on line from…
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Finally some good news for all with mucositis mouth sores
Hello all you great survivors, this is "discouraged" who has been batteling severe pain from a failed g-tube surgery last week and a whole mouth full of ulcers. Yesterday, at a desperate attempt to get a second opinion on what my R/O thought was thrush, I went to my dentist. He agreed with me it was radiation induced…
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NED . . Thank God. . =)
Hi Everyone, its been 1 1/2 years since the first diagnosis of my husband. He was diagnosed with Nasopharengeal CA stage II. Today the we have just received our early christmas gift.His second MRI was done last week and it came back as NED. I would like to encourage eveybody here to trust God and dont doubt his power.…
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Cora arrived!
So our sweet baby girl arrived a little earlier than expected yesterday. My water broke yesterday morning at 2:30 am & she was born at 4:15pm. She was only 36 weeks & 5 days which is preterm so she is being monitored in the NICU until her breathing is under control. She was a very healthy weight of 6lb 10 oz & has a head…
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A little update after long time
Hey dear friends!! I know, I know, I did not post here lately, but to tell the truth I really try to live life without thinking too much about cancer. Especially because my daughter will get another sister/brother - I am 4,5 months pregnant . My dad finished his treatment 14 months ago - he had 35 rads and 7 chemos for…
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They say you cant go home again
but I know that does not apply to my CSN home. Its obivous that I have not posted in a long time, although Diane keeps me up on whats going on and her Facebook updates as well.. Well for those that know or rembember me I am doing fine and recently received NED in early November. For those that have not met me I was dx with…
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1 Year out....
Thursday the 28th (Thanksgiving Day this year) is Kreg's 1 year mark since he completed treatment. He went to his treatment center today for his 1 yr check-up and still CLEAN!! We have a lot to be thankful for this year....was tough last year at this time. But, we got through it and now he can actually EAT some turkey!!…
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Petscan is good! yay!
Had my follow up petscan last week, 3 months after my last chemo/rad treatments. Yay, came back negative for anything! Doctor says I'm in remission, they won't call it a cure until after a few years of good check ups. He doesn't need to see me for 3-4 months. The biggest discomfort I have right now is the temporary trache…
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Swallow
I have completely lost my swallow. I cant burp or vomit nothing comes past my throat up or down. I,ve had swallowing tests with the speech therapist but the liquid pools in my throat and comes up again. The onc said I had a swollen throat a week ago but before that I could get a trickle down. has anyone had this problem 4…
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1 down 34 to go
One radiation treatment down, 34 to go - I finished my first rad treatment today - needed 5 mg valium about 20-30 minutes before putting the mask on - I tried it first but it seemed too tight around the shoulders - so they quick dosed me - then went in laid down, got strapped down, still a little unsure I waved my hand but…
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stoma closed
haven't been on here for awhile, lost the website, I'm a almost 3 year Laryngeal cancer survivior and got my trach out this past 2-13-13, my stoma got smaller but had it in for over 2 years, and then finally got the stoma closed up 9-30-13, I am so overjoyed and blessed, bjw1955
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Sinus infection
Anyone else having sinus infections after radiation in that area? I seem to be on a once a month sinus infection here. Calling ENT tomorrow.
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bloody phlem
I just coughed up some bloody plem is this a side effect anyone else has had....I am 8 weeks out of radiation....and don't know if this and the coughing and hard to swallow thing are all somewhat common side effect...help
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Near the End - What Worked For Us
Happy Thanksgiving to Everyone. This site has been great for us and we appreciate all the advice and inspiration. My husband is near the end - last chemo this week and 2 more rad treatments next week (total of 35). It really has gone by fast. While everyone is different - here are some things that helped him through. 1.…
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Nasal or throat cancer?
Hi I am 21 yrs old male And i have been sick for about 5 months. I have persistent nasal block in left side of the nose and it gets worse at night. I can feel mucus draining down from the back of my throt and have recurring sore throat. I get sore throats every 3 weeks or so. i feel tired like i want to sleep and my legs…
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We got another dog....
I've thought for a long time that Lola needs a partner in crime....and started watching the dog pound. They had a German Shepherd there, and I wanted her SO bad I was there for 4 days in a row, but the owner came in and claimed her the day she was supposed to be moved to the adoption side. While we were there, Greg spotted…
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Very discouraged
So discouraged after reading post of what is it like when treatment ends. I honestly do not see how I can get through this. I have only 8 rad treatments done so far, 1 failed g-tube surgery, 2 failed attemts at replacing it (it was closed up). My mouth sores are so bad they are now on the back of my throat and both sides…