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scared for my mother in law
My mother in law has had Papillary thyroid cancer which was first removed in 2000 along with her whole thyroid. Well she had a recurrence in 2010 and the mass was removed from lymph node and she had her radioactive iodine treatment again. Well at that time there was a very tiny mass that was seen but left behind. It stayed…
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Side effect to be aware of
I wanted to share with all of my friends here, especially those struggling during recovery or with recurrance. Long story short, LBC (life before cancer), I was strong physically and mentally, scrappy, great work ethic, involved in all aspects of life. Then I was married June 2012, diagnosed with stage IV SCC RT tonsil,…
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Michigan Oncologist accused of fraud and putting patients at risk
My heart goes out to the people here in Michigan that were involved with this doctor. He did his hematology oncology fellowship at the world-renown Memorial Sloan-Kettering Cancer Center in New York. He was voted one of the “Top Docs” in hematology or oncology in 2008, 2009, 2011 and 2012 by Hour Detroit Magazine. Fata…
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Update on mets
First, thank you to everyone for their well wishes and support. I had the PET scan yesterday and my sister, brother, husband and I met with the doctor. The good news is no uptakes in lungs, liver or bones so reoccurance is isolated. Tumor board is meeting tonight but some type of radiation will likely be the tx. even if…
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Planned neck dissection to take one node out
Hey everyone! As many of you know, my Dad finished his tx Sept 2012 for BOT cancer with multiple lymph nodes involved. He had chemo/rads. Then he had CT scans and ultrasounds and physycal check-ups where they saw one lymph node still slightly enlarged (firstly 2cm and now in August even smaller: 1,8cm). It's actually no…
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Interesting and clearly written article, from my favorite Webpage.
http://www.sciencebasedmedicine.org/cunnilingus-michael-douglass-cancer-and-the-hpv-vaccine/#more-27830 The repeated use of the other "c" word, however, seems to be primarily for it's shock value. Deb
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What would you do?
So you are meeting with your Oncologist four years out with zero evidence of cancer. You have had lung nodules detected in the previous four years but they remain unchanged. Your Insurance company denied your last scans because you were asypmtomatic. Your Oncologist suggests you have a recurrent cough that is creating…
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Hit the Road Jack!.........
Hi Folks, Finally got in a little while ago. The preliminary "OFFICIAL" good news is I'm..... The final reads won't be available until tomorrow but the PET department told my RO they saw nothing that raised any red flags and that it looked good to them. My scope looked great overall. Swallow study went well and I'm where…
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NED: ketogenic diet, chemo, rad
PET Scan results are in: No Evidence of Disease, not a speck! Last treatment was June 11, 2013. We followed the ketogenic diet (Canton), had tonsilectomy, chemo, radiation and LOTS and LOTS of prayers and pray-ers. Not to take away from all of the helpful information gleaned from this forum (the good, bad and the ugly).…
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Your prayers and mojo worked!!!
Once again my CSN buds pulled me from the abyss. My scanhash owed continued shrinkage of the lung tumors and the mediastinal nodes. The beast continues to try to silence me, and all I have to say to the beast is F$&K you!! You will eventually get me, but it will be on my terms, not yours. You all rock!! I do not post…
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Fanconi's anemia
For those of you that weren't around when Dawn (sweetblood) was a major factor on this board. A fantastic lady and true soldier. Dawn had something called fanconi's anemia, I had never heard of it pre C. Well Dawn had fanconi's and developed head and neck cancer, people with Fanconi's nearly always develop cancer, I…
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Oxygen device for prone sleepers?
Hubby is in the dry mouth stage post-treatment and is unable to sleep. He resists all my suggestions that he needs to sleep in a recliner or with numerous pillows, claiming he just can't sleep upright. Urggggh. Of course, he is dozing in his chair right now, but that is not the deep sleep he needs. When he goes to bed,…
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Base tongue and lymph gland op
I had a neck dissection 4 weeks ago to remove a tumour from the base of my tongue and removal of lymph glands between below right ear and jaw line. The surgeon gave me a choice of having a repair to the tongue with a section from my chest or the inside of my mouth. I chose inside of my mouth (he said he'd done 27 so far…
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Scanxiety time again
Just had another scan of my lungs/chest Friday and of course on pins and needles until I see my doc and do another infusion of Taxotere on Tuesday. My last scan 6 weeks ago did show the tumors are shrinking so I do expect good news. This beast is so unpredictable as on my last trial I went 18-20 weeks with no visible…
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phlegm
It's been almost a month post rads & chemo and the phlegm is still here and now it is much thicker and very hard to get rid of. Seems to be more so in my nasal area now and seems to be getting darker yellow in color. Has anyone experienced this? Is it normal? Should I be getting a hold of my doctor? Thanks Tony
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Question about radiation therapy after surgey timeframe
Hi I have a question regarding the treatment window for radiation therapy and chemo after surgery. My husbad has Squamous cell carcinoma of his right tonsil that spread to his lymph nodes on the same side, removal of both tonsils and radical neck disection on June 12th. They removed about 30 lymph nodes from his neck only…
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A Lot of Happy/Sad Posts of Late
My children and grandchildren have been here from Oh. I have been reading with great interest/happiness/sadness all of the posts that have been put up the last few days but have not had the time to post myself. Everyone is off doing their own thing now and I get the privilege to stay home and watch my six year old Autisic…
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concern about mouthwash
I am one of the caregivers who posts occasionally on this forum. I have not had any radiation damage to my mouth and teeth like many of you. However, I wanted to make you aware of something that I discovered about a certain mouthwash that might be even more of a problem for oral cancer patients. I called my son (who had…
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Thank you !
I wanted to update my previous post. First of all.....the abinormal....pstd, or whatever we each call it sometimes rears it's ugly head where we need to step back and re-evaluate where we are at in life. I recently reached out for some extra help through my county....not hospice....but kind of a transitioning between. Here…
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Ketogenic Diet - Clinical Trial Thoughts????????
I am 12 weeks post treatment. Been reviewing the "net" on the "anti-cancer" diet I see here and there, and I came across this---a real bonafide clinical trial. The theory is that if you starve your body of carbs, then no glucose, and cancer cells cannot thrive. Ketogenic diet-proteins and fats. See these links:…
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I'm concerned
A couple weeks back, I went for my ,1 year 8 month, check-up and scope. All was good. NED Since then, about a week ago, I started sneezing and coughing and just in general, feeling like a head cold. Just thought I'd ride it out, taking honey and cinnamon mixed. To get to the point, 2 days ago, I awoke to the raspy, in and…
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Statistics
There have been some fantastic NED reports as well as some very sobering recurrances on the boards lately. There are thousands of members that read/lurk and only a very small percentage that post. Even at that, we see the positives and the negatives of our disease manifest itself in so many ways. From the patient's…
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matastic
Jim has recently statrted experiencing pain and wakness in left hip when standing after sitting. Does anyone know if this could be a sign that the cancer has spread to the bone? The pain in his left lung has intensified as well. His energy is gewtting less as well. On the plus side, his weight has finally reached normal.…
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1 year later
As of tomorrow I will have been out of treatment for 1 year so according to my Dr. as he calculates it I am a 1 year survivor!!! I thank God every day for that and for letting me find all of you last year when I was beginning this journey. I learned so much and got so much inspiration from all of you and I can never thank…
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Radiation Retinopathy
Hi, I’m 2 yr post-treatment for Esthesioneuroblastoma and now suffering radiation retinopathy (slight blindness in eye caused by fluid/blood in retina area due to radiation). Retina specialists are recommending steroid shots (yes…in the eye), and wondering how any of you have dealt with this. Thanks.
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Devastated by my scan
Prayers please as I am still trying to pull together my thoughts. Cancer has returned wrapped around my carotid artery and jugular vein. Surgery is not an option as too tight an area with too many critical parts. Dr said it a rare place to metastize. I will have a PET Tuesday to determine if in bones or liver. Lungs are…
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Ron is done with treatments as of today!!!!!!!!!!!!!
RON FINISHED RADS TODAY!!!!!!!!!!!!!!!!!!!!!!!!! YEAH!!!!!!!!!!!!!!!! long tough road but he got thru it without a peg and one mouth sore. he has lost 35 pounds and looks ragged. terrible fatigue, still having nausea from mondays chemo, which was his last. now he waits, and rests. THANK YOU ALL who have helped with advice…
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inspirational quote of the day
i read these inspirational quotes every day and every once in while it hits home - so here is todays Once you start recognizing the truth of your story, finish the story. It happened but you're still here, you're still capable, powerful, you're not your circumstance. It happened and you made it through. You're still fully…
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Dysplasia Treatment Successful
Hi all, Just to let you know everything went well at my post op appointment at hospital yesterday. The biopsy's they did after the laser treatment came back "moderate dysplasia" so no worse than the origonal biopsy - No evidence of carcinoma-in-situ - So the final and definative verdict is that I didn't have cancer . They…
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Questions about mouth sores during head and neck radiation
Hi, 7 weeks out from surgery. This is the third regrowth in 7 years. The first two removals were done thinking it was a cyst. The second pathology showed it was a pleomorphic adenoma on the parotid gland. I saw an ENT/head and neck surgeon last August. We Watched the area with MRI’s and decided to go forth with the…