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Head and Neck Cancer

Archives for August 2013

Rang the bell AGAIN!
Finished the last of 5 SBRT tx yesterday and am back home with lots of optimism and hope. I feel so blessed to have had the opportunity to go to Mayo. I had the major anxiety attack last week with the simulation MRI with mask that my brother, sister-in-law and 2 sisters all went up with me. I did so good with the first tx…
Candi....you're back....
How are you doing, honey? p
Boyfriend with vocal cord cancer
Hi everyone: I'm new to this site and just looking for some advice. My boyfriend was diagnosed with vocal cord cancer 3 months after we met. He went for 6 weeks of radiation and at his 2 month follow up after the radiation, the tumor looked exactly the same. Next was surgery, he had a partial laryngectomy in June, terrible…
PhotoDynamic Therapy Photos
Well as mentioned from a previous post..., had the procedure Tuesday. First they scrub your face with Acetone (nail polish remover), then alcohol..., next they apply a photosensitive mecication and rub it in good... Next they sent me to the lobby for an hour wearing a big floppy hat.... Next the put googles (like swim…
Happy to hear from you, Nick
I wonder about you often,as we both were treated at the Waxner (Ohio State ) medical center. Sorry to read about your continuing battles..keep the faith ,child
bump on tongue - LUNG CT RESULTS
3 nodules on lung(s). 1 at top & 2 at bottom, or vise versa. don't remember if all was on one lung or both. calling back tomorrow with a calmer mind that can think. they said f/u in 6 months. will post ahgain f i hear something different tomorrow. dj just got back from ent. just got back from ent. heres what was said:…
Pet scan results
Got the results from my follow up pet scan after chemo and 35 radiation treatments and they said I was in complete remission. The Doctor still wants me to go back to the ENT and have check my throat. Also I have started to eat and drink by mouth fish,mac &chesse, water,tea and such.So I just have to start eating regular so…
Trachea Cancer
Just wondering if there is anyone out there diagnosed with cancer in their windpipe? A possiblity for me. After raditation, chemo, glossectomy, neck dissection, now they see something in my windpipe. I had CAT scan, don't know the results yet, but I think I am done. How much is one person supposed to endure? I don't even…
Second round of chemo in AM
Well first round went ok. Getting ready for round two in AM. He developed the rash everyone talks about with cetuximab. A little nausea but controlled with med. So wishing all a great Labor Day and hoping you all will keep us in your prayers. You all are in ours. Barb caregiver
No biopsy needed !
Crazy quick trip through the Masonic today. Kinda felt as if I was on a assembly belt. ENT... lump in neck is my cartiod artery enlarged. This usually is very deep under a fairly good sized muscle. Went through a CT and labs. CT was clear of any new disease. (head area) Hurray. Lungs still very shakey. I asked about…
My mom has oral cancer (Squamos Cell Carcinoma)
Hi All, My mom was recently diagnosed with oral cancer. She has yet to begin treatment. She had one tumor removed, but she also has another large one inside of her cheek and now she finally tells us that she has some cancer cells on her throat (upper part) and the roof of her mouth. She seems pretty secretive about it all.…
stenosis of the carotid
what is stenosis of the carotid? what r symptoms that u have this problem. dj
Live Strong
Will be starting a new program at our YMCA on the 23rd, it's called Live Strong and it's the pilot program. All the members will be cancer survivors, will be workouts designed for each individual , programs with medical speakers,etc. I'm excited, think it will be fun and educational,plus with Win starting kindergarden, I…
Cyberknife
It's Cyberknife for me. I have another appointment on Tuesday, Sept. 3rd. Hopefully schedule simulation soon, yes another mask! When it is finally going to happen, it will be 5 days, probably 1 hour per treatment. Will keep you posted.
Recurrence
I was diagnosed with squamous cell carcinoma under front of my tonque last May, 2012. Had radial free flap and right neck dissection in June, 2012. 8 weeks of radiation with 3 sessions of chemo (cisplatin) and finshed in mid September, 2012. My latest visit in mid July was okay. About 2 weeks ago I started having pain in…
To Scan or not to Scan
Hi All, haven't posted for a while but I occasionally lurk to see what's happening. Lots of new people but I see some of the real oldies like John and Pat are still around helping people. I am close to my 2 year mark and everything is looking fine. I have all my saliva and most of my taste so life is good. I am now at the…
Mpls. again tomorrow
We've been in a heat wave here. The humidity has been almost as high as the temp. Higher 90's....tropical, wet and just plain icky ! We go into the U of M in the morning. Rolie's appointments first with endo. And then mine after. I'm not nervous as I want to figure a few things out in my mind. I have some pretty hard…
Head and Neck Clear but several places in lung.
Well after full Ct and Pet , cancer has grown in four areas in the lung. My husband has decided instead of going through a killer round of cocktail chemo, he will opt for surgery first. Our fear is that as sporadic as this cancer has been that it will travel to some other location after this surgery. Wish we could stop…
Back to work next week
Rob goes back to work next Tuesday. Woo Hoo. He will going back into the office for a while until more strength comes back. Not ready for his gravel train yet. Heck since he has been gone, they have all called and checked on him at least once a week but failed to mention the huge changes. He is not thrilled with the office…
CT results
So I went Monday and got my results from my GP. He says they show a 1cm suspicious node. He says he will try to get me in sooner to the ENT, and he changed my meds because my headaches are not getting better. He was nice enough to say "I can't say it is cancer because thats not my field, but it sure looks like it from…
tongue cancer - what the ent said - see new post below
i know there r several people here who have/had tongue cancer and i need u 2 share your knowledge. i have a bump on the left side of my tongue. i've just been thinking it has probably been rubbing against my teeth and became arritated. but then this evening out of the clear blue, the thot of possible tongue cancer popped…
Difference between radiation treatments
what is the difference between radiations. What other radiations are there apart from IMRT. Which is the worst one for side effects.
Dropping a doctor
I've been seeing three doctors since my journey started in March of 2012 and wonder when or if I can drop one. I see an ENT (who originally discovered, biopsied and confirmed the diagnosis) a medical oncologist who oversaw the chemo portion of my treatments and a radiation oncologist who sent me through the 'toaster' so…
Short vid of Reba and I tonight....
just hope that is if this works....I uploaded it to YouTube. http://www.youtube.com/watch?v=9mDVTcM4sOU
Radiation how will it affect my tongue repair
I had a tongue /node dissection 7 weeks ago and now I need radiation treatment on my tongue base. The repair was done with the lining of my cheek. How will radiation affect the repair. Will it damage or kill it off, will I have to have another repair, has anyone had radiation after repair and what happened. I hate another…
NorCal Medical Cannabis Event Sept 7 San Francisco
Please take time and attend this event if you can get to San Francisco on Sept 7. The organization's mission is to prmote education and awareness of the benefits of medical cannabis. http://www.intche.net/ Also, if any of you have any time to volunteer, please give them a call. There are all sort of jobs they need help to…
Not good news about my mom
My mom was diagnosed with non-small cell lung cancer a little over a month ago, with mets to a lymph node near the lung tumor and a single lesion in her brain. The prognosis wasn't great, but whole brain radiation and chemo could extend her life by as much as a couple years. I've been trying to help her through the…
Chemo with radiation/ Did your hair fall out?
I'm just getting ready to begin treatment and I know it sounds vain (in the oveall picture) but did most of you lose your hair? I never read about that in the side effects for HNC treatment.
Ready
Getting ready to go to Stanford for my appointment tomorrow. Hopefully Cyberknife will be an option. My sister just moved and doesn't have internet hooked up yet. Might be awhile before I post. Prayers are appreciated.
3 and 1/2 weeks after treatment , rons progress
hello. been so busy and havnt had much time to get on here lately but do want all of you know I still pray for you, all of you. first week out of treat ment was hard but then by the mid of second week , ron just started eating no matter what. pain or dryness he ate. he lost a total of 40 pounds, got by without the peg tube…

Head and Neck Cancer

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