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Mr. Ned
P, Don, Denis, KTeach and anyone else getting scanned, scoped, irradiated, infused, poked or prodded.... May Mr. NED come and hang out with you! Positive thoughts and prayers "T"
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Tx this week
Back up to Mayo in the morning for my 5 days of SBRT high dose targeted radiation. Biopsy is SCC and related back to primary in jaw January 2012. Mayo on-line is amazing. You can see your biopsy reports, scan results, blood work, doctors notes as soon as they post. You are looking at them at the same time doctor gets them.…
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Dental restoration post tx
You read often about the dental clearances pre treatment and suspect teeth being yanked. Ohter than daily dental hygene, you don't see much written about teeth post treatment. How long do you wait? What options are generally offered - bridges, implants? Is it necessary to go to a dentist that specializes in working on oral…
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Somebody grab my feet and
pull me back down to earth!!! My nerves about the upcoming scan are about to send me into orbit. I cannot believe how strong my sub-concious is when it starts handing out symptoms. So far, I've had on and off ear aches, a sore throat....equilibruim problems....a headache that lasted for 5 days.....a jaw that is getting…
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Pain
Don't want to be a Debbie Downer but I was wondering about your pain level. I haven't had pain related to diagnosis of my previous cancer(s). Lump on lip wasn't painful until after surgery and removal of 1 inch of lip, 50 stitches. A year later, lump on neck, no pain pre surgery. Neck dissection. My weird eye situation was…
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Smoking
When I was diagnosed with stage 3 larynx cancer in 2009 i joined an online forum thinking that I may have to have a laryngectomy. At this point I had already quit smoking, about a year earlier. There was a guy on this site who had also just been diagnosed with stage 2 larynx cancer, he was a current smoker. My treatment…
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Inspirational quote of the day
I LOVE living, I have some problems with my LIFE, but living is the best thing they've come up with so far.
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Lump is "probably" scar tissue
Hi Everyone. As an update, my brother finished up his treatments on July 22, so he's almost 5 weeks out. He is slowly but surely eating real foods by mouth and is gaining energy every day. He told me that he can feel a lump on the side of his neck. I am not certain if it is the same one he had before or a new one. I do…
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mask and on going treatment. Aug 23 2013
I had my mask made and fitted today. Wow... they really do fit tight I couldn't open my mouth more than fraction and it pressed on my neck scar. But after a few minutes it was OK. Didn't care to be fastened down. They CT scanned me in it and put a blue dye in my vein. I had a small tottoo on my chest. Then they let me go.…
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another biopsy scheduled
So, it was squamous cell carcinoma of the lip a few weeks ago which was completely removed (according to the perky twelve year old nurse). I let Jim go to ONE appointment without me because I had spinal fusion surgery - just ONE appointment, mind you - and he ends up having a special scan because something looks suspicious…
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First Chemo Treatment
Yea! So far so good. 5 more treatments of chemo. with MDA PCC proticol. It was great knowing we r finally shrinking and killing the beast. He is feeling fine right now. Actually better than me! Taking his N/V med as ordered. Next treatment in one week. Today we will get on our routine of neck and mouth excersises, in…
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all of a sudden i am suppose to be the expert
in the last two weeks two of my peers at work have been diagnosed with different types of cancer. i am glad to give my personel experiance lessons but they have differant cancers. i referred them to this web site and gave them encouragement. it is kind of wierd because they are looking at me as there inspiration, and while…
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This is what i've been doing with me for 4 yrs
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Good news/Bad news
Ok, Good news first... Dad had an appt today and the doctor did a scope. He said that dad's cancerous polyps in the sinus cavity are gone! We are so thrilled with this news, I feel some relief hearing this! Thank God! Please keep him in your prayers as we are still trying to get him eating food now and taking more liquids…
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I have a tx plan
Another 3 days at Mayo this week and I am set to go back next Mon-Fri for SBRT high dose precicison radiation. They consulted with MDAnderson and neither saw an advantage with proton therapy over SBRT. With proton therapy, it targets the tumor and stops but there isn't much in the way of studies on long term yet to look…
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Squamous Cell of Neck area Has Invaded Lung
Four years ago my husband was diagnosed with Squamous Cell Cancer to th neck muscle. A biopsy and surgery, radiation therapy and chemo regiment. A year later a bump appeared on scar line. Squamous cell was diagnosed and more surgery , radiation and chemo. Pet scan a year later revealed hot spot on left tonsil. surgery was…
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Interesting theory regarding 'high oxygen and low sugar'
After reading this article at the following link, I thought the part of the theory about 'high oxygen and low sugar' as cancer inhibitors was interesting. Link: http://tinyurl.com/kyptrr7
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Something to Thank God for.
About three Months ago I had to get a tooth pulled and you know with me it is a major event. The doctor would only pull the tooth while I was under and in a Surgery center just in case the tooth or Jaw broke and he would have to go in and drill the tooth out of my mouth. The other problem if you remember is I can’t open my…
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Not cancer related.........we have a new family member.....
Decided that I need more to do now that I'm retired (and my old horse is also retired).....so today we brought this girl home. She's a Tennessee Walking horse....the only "ride" for old ladies....nice and smooth . Greg named her Reba, since my other horse is named Waylon....trying to keep it country....LOL. I guess this…
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Checking in!
Hey guys, summer is over :( ! I still go to the lake house on weekends but last week full week there for this summer! Next year should be different since we are planning to move to Orefield Pa. Sometime in June! Very excited for Faith and I to start our new chapter with Chris. Praying disability comes through, i need to…
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The RECHARGE Low Carbohydrate Diet Trial for Metastatic Cancer
Says study completed. http://www.clinicaltrials.gov/ct2/show/NCT00444054 http://clinical-trials.findthedata.org/l/62109/The-RECHARGE-Low-Carbohydrate-Diet-Trial-for-Metastatic-Cancer…
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Metastatic Melanoma
Just found out that my cancer has spread to my lungs. It's very early and very small. 10mm x 7 mm. I thought it was all over. I have been cancer free for four years. It started on top of my head. Very small, very shallow. Dr said "nothing to worry about." Two years later it was very small and about two inches over. This…
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Time flies! Can you believe...
I finished rads 2 months ago??? It seems like yesterday that I was so sick and didn't think I'd make it those last 6 treatments. Thanks to PEGgy, y'all supporting me and urging me to fight, The Lord for giving me strength and my family and friends showing me all kinds of love...I did it. I am now PEG-free, eating well,…
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Lung scan
Some of you may remember that in September of 2012 they found a small cancerous nodule in my left lung. They removed it in October 2012, went back for checkup in March 2013 and all seemed well except for a small uncalcified nodule (it was there in 2012), it was not cancerous but they wanted to keep am eye on it given that…
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Taste, Swallowing
Hi, I just came back from my 8 weel checkup and I am all good. I finished 6 weeks of radiation and six sessions of chemo Nov 15 2012. I still am not able to taste sweet. My doctor said it takes about 18 months to get back to my new normal. I strongly suggest that any one with some dry mouth watch what they eat; one can…
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magic mouthwash question
My parents were wondering if dad should not use the magic mouthwash after trtmnts. Does anyone know if this is ok to use still? He's 3 weeks post trtmnt... any thoughts? I think he thought just to use this for pain!
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Rob Update
I am happy to say Rob is doing very well. Some taste has come back. He says that he would rather have saliva than taste. Time i tell him, just give it time. He no longer is napping in the day although I can hold the couch down pretty well on the weekend. We also joked that he should be a barcalounger tester and I a couch…
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MMmmmmmm!!
I tried wine a little while back and it was a definite no no! It was like drinking rubbing alcohol and burnt the hell out of my mouth. Today was one of those beautiful summer days that begs for a beer so I picked up some when I did the shopping. I figured worst case Marcia will drink it and use it for cooking. I'm a huge…
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from diagnosis to treatment time
my husband was diagonsed with stage 4a tonsil hpv cancer. Biopsy done on july 26 2013. Went to radiation oncologists on followin friday aug 2 and medical oncologists. Petscan done on moday aug 12. Bone biopsy done aug 16th as there was hotspots there and lungs. Is this time frame acceptable. Last week dentist and…
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So I am back with updates and what I have been going through.
SO I think my last post was talking about some of the symptoms I was having and the surgery that followed. But in case I didn't I will give a little breakdown. In Feb I had mt tonsiles removed and my adnoys. My ENT (who I hate, and that is the nice way of saying that) said he got everything and all margins were clear.…