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Head and Neck Cancer

Archives for June 2013

when to start l-glutamine , and what is best schedule for tonsil cancer and rads
hello again, have been gathering a list from everyone who have been so kind and helpful. just not so sure how to schedule things to help in preventing mouth sores. when and how often on the l glutamine powder, what about the salt water rinses? and I am hearing about mugard and not sure where to get it for ron. He starts…
Long Term Survivors
Would love to hear from survivors past the five and even ten year mark...I know that there are people out there but would love to hear from them. Just starting the journey and need encouragment that this thing can be beat! Thanks!
Getting Sleep During the Night
Am just not able to get over 4 hours a night of sleep after 8 weeks since i completed treatment...anyone have any ideas?
Just checking in
Good morning, I have not posted much at all as still getting settled in from my move from STL to Austin Tx. I'm sitting at the treatment center waiting for my bloodwork to come back so I can hopefully start my second seventy three week dose of Taxotere. I have my next scan coming on June 21 or June 24. 21 is my B Day and…
Dad's 1st chemo yesterday, rad begins wednesday
Hey everyone, You have all been so supportive so I thought I would update everyone on my dad. He made it through yesterday's treatment okay. After 6 hours no nausea or tiredness. He was out mowing the new land yesterday and today he is doing some errands and working on the new place as well. I know pretty much everyone has…
Advice, Help, Newbe
Hi. I am new here. It's been a rough two months. I had a tumor removed from my thigh, came back benign and I was elated. In the time it took to have the tumor removed from my thigh, I found two masses on the BACK of my neck, and once everything was done and settled with the thigh tumor, I went and had the neck masses…
Jim Kelly
Hall of Fame QB of the Buffalo Bills joins our club. http://espn.go.com/nfl/story/_/id/9336790/ex-buffalo-bills-qb-jim-kelly-battling-cancer-jaw "T"
Question about metastic to lungs
As most of you know jim's tongue cancer spread to his lungs. He has numerous nodes in both lungs with the largest, 1.75 cm, in the left. Over the weekend he started having some pain under the left arm. This morning he came home from fishing very weak. He was in pain but now the pain is also in the left lower chest. He says…
Get a look at what Michael Douglas is saying about his disease..
At least he's trying to get the conversation going. J. LONDON (AP) — Actor Michael Douglas says that his throat cancer was caused by a virus he contracted by performing oral sex on women. The Guardian newspaper published an interview Monday in which Douglas blamed cunnilingus for the grave malady that was diagnosed in…
My brother's Journey Finally Begins
Hi All. It seems like ages ago that I first came aboard. My brother is finally starting his treatment tomorrow. I have been keeping up with all of your journeys. His spirits are up and he is ready for the battle. I had mentioned before that he hasn't been reading about any possible side-effects because he thought he just…
Getting the All Clear
Friends, When have you been told you will get the "all clear" if there is such a thing in regards to cancer? I was told major milestone at year one all clear and then at year three most would say you are out of the woods. Most reoccurances happen within the first year so after that survival odds go way up. Just wondering…
Another free gift
Hi folks, About a week after I came home after treatment, I developed symptoms and eventually a full blown case of gout on my left foot (joint of my big toe). Anyone who has dealt with gout knows how painful it is. I had a bout of it about 5 years ago and while it was painful, it paled in comparison to this attack. When I…
Squamous Carcinoma -- in jaw bone (Left posterior -- mandibular segment)
I'm new here, so happy to have this outlet and place for information! My almost 70-year old father has just been disgnosed with the above subject cancer. We met with his Specialist in Austin, TX (Dr. Scholl) last week and was told her will have 1/2 of his jaw removed and replaced with his fibula leg bone; with follow-up…
muco epidermoid carcinoma and childhood cancer
My 7yr old daughter was diagnosed with muco epidermoid carcinoma of the parotid gland. She had her parotid gland removed 1 yr ago and completed 33 radiation treatments. It was stage 2(intermediate.) I have heard alot of people say that she's at a higher risk for leukemia and other major health issues. I was just wondering…
in the dark
Hi, Thank you to everyone here for sharing your experiences. I've been reading posts and have learned much about head and neck cancers, and feel better for the knowledge. This doesn't help me understand why a friend from work told me in early April he has Stage IV throat cancer, and won't let me support him. Maybe my…
Feeding tube and still throwing up
Hi all ny nmae is Ron and i was diagonosed with the right tonsil cancer and 1 lymph node infected. I am a non smoker never have they say it was causd by the HPV virius and said this was very curable. In my 6th week i hadn't eaten anything for almost 2weeks so I had the feeding tube placed so far it seems to be a bust My…
radiation masks
These scare me and I haven't even seen dad's. Right now it's just late and I'm having a hard time trying to stay positive at the moment bc my thoughts just consume me. Please tell me about radiation... the side effects most common and what not of you would. Thanks for everyone's support so far. I guess I'm just having a…
Create a PEGless club profile?
Not sure when to declare myself officially PEGless but I feel good enough and far enough along to step out there and say I won't be getting one. PEG is such an emotional topic and not many elect or will themselves through treatment without a PEG, but many would probably be interested in seeing a common profile for those…
Missed everyone
I have missed everyone greatly. My son graduated high school and my daughter graduated college. I am so glad to have that over with, but I missed having David by my side. My mother-in-law went with me and that helped quite a bit. I still miss David, but I am trying to start living life again. I have been thinking so much…
Financial security
Good news - went for a beautiful ride ( in my classic vette) upstate NY today to see my financial adviser - he said I can't die because I don't have enough money( guess I don't have to worry about next pet scan). The bad news is I don't have enough money to retire - talk about being between a rock and a hard place. I am…
Back from MDA
Well we got home yesterday about 3:30 and at 6:30 the MDA Doctor's PA called and they want me to come back for a Needle Biopsy with an Ultrasound. The two Doctors that I saw on Wed. said that they saw something on the other side of my neck in the CT scan that they did on Tuesday, and they noticed it in an older PET scan…
Does anyone know about radiative pill?
My dad is experiencing new and different feelings since he has finished up his radiation treatments in March. He has been complaining about his skin hurting and he is very sensitive to anyone touching him and of course he is very very tired. He is also loosing weight even tho he is drinking his ensure and eating soft…
Little Change
Not much has changed. I get two weeks of Taxole and Erbitux followed by 1 week of Erbitux. I get two rounds of this then I get one week off (no IV meds at all). FATIGUE is HUGE. I will have to rest even after composing this little update. Just getting the food/liquids/ and meds down is more than a full time occupation.…
ASCO: HPV-Oral Cancer Won't Threaten Spouses
CHICAGO -- Oropharyngeal cancers that arise from human papillomavirus (HPV) are no more likely to spread to a domestic partner than to the general population, an observational study showed. ASCO: HPV-Oral Cancer Won't Threaten Spouses Interesting read for those that have discussed this topic before: Best, John
Food for Thought...
OK, back by popular demand..., LOL. I know there are many here that only dream of the food they used to eat..., many in various stages of taste and saliva recovery. I was there with you a while back..., recording every food channel out there, slobbering imaginary drool... A sip of water with every bite of tasteless food,…

Head and Neck Cancer

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