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isn't cancer until they say it is
Jim has a place on his lip that has to looked at immediately. I can only say 1) I am not a doctor but 2) it looks suspiciously like the some of the things we have been warned to watch for. Asking for prayers. *And I don't know about anyone else but I can't adjust the font size today.
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through to the other side
Hi everyone, I haven't posted in a while and wanted to thank you for your support and to report good news about my friend. Although I had no idea about his treatment or care, I learned via the grapevine that he's NED - and I saw him Friday at a work function! We spoke briefly, and then we spoke on the phone later that day.…
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Vivian
Hello My Friends, I am still lurking in the shadows, silently cheering each of you forward. The days are long and the nights are longer, but I am still putting one foot in front of the other. My son has decided to sell his place and he & my grandson will be moving in with me later this year. I know he's putting his life…
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Skiffin16 ~ Presence or Lack Of...
Hi all, just wanted to let you know that I'm alive and OK... It's just been a rough week or two personally... My sister Colleen that many of you have known has her own battles going on with cancer..., isn't doing so well. She went to a hospice a few days ago, last Dx with more than likely having only a few months left. But…
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Hi Everybody .....sure do miss you all ..UPDATED ENT Visit
Hello all .... I know this may sound corny ..but I sure do miss "yapping" and seeing all your posts. I so wish I could get caught up. UPDATE: As many of you know, I have mom in my care right now trying to figure out where to go and what to do for her detiorated state of mind (moderate dementia is the word the neurologist…
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Feeling good
I just want to tell everyone that might be starting on this journey or just finishing treatment that I will be 7 months out of treatment in a few weeks and that I am finally starting get my taste back and my life is finally beginning to get back to normal('whatever that means) so hang in there and listen to your doctors…
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Today I Celebrate
It’s sobering how we can go through such an ordeal and come out the other side with war wounds we thought unimaginable prior to our battle allowing us to call ourselves survivors. The people on the staged TV series don’t have a clue in the true meaning of becoming a survivor. Two months prior to being told I had cancer I…
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My computer or this site?
Am I the only one who has been fighting getting in here the last 3 days? I tend to blame my computer more often than not, but it's not having problems at any other sites....and....it may be my provider, too.....they've been known to have problems with optic-fiber lines and say nothing nor notify a soul of what's going on. p
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Suggestions for reducing mucus?
Hubby is 8 weeks post-treatment and improving. However, the mconstant still constant (although changing in viscosity and taste), so he can't tolerate taking anything but water by mouth. Not on pain meds, so only issue is mucus. he is using NutraSal constantly plus Mucinex twice daily. Any suggestions for anything else that…
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Necrosis
I am looking for information (any) reguarding necrosis of the mandibul. four years after tooth extraction it appears to be on the lower jaw bone. i have not had a problem till now. any information on how they treated it would be helpful. thanks john history.... SCC in neck with 38 rad. treatments, chemo, radical neck…
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Chemo option left up to us - 1 week to decide
Hi everyone. My dad was diagnosed with SCC Stage 4 T1N2bM0 back on June 3rd. He had surgery to remove what they thought was a benign cyst. Come to find out it was cancerous, the primary was in the tonsil and it had spread to 3 lymph nodes. His margins were clear and there was no extracapsular spread. We are definitely…
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Radiation, DONE
31 radiation sessions later, my husband is done. He was very lucky that he only had to have one side of the neck radiated, so his side effects were very limited. He will go in for a scope in a month, then every 3 months for the next year. I cannot begin to express how much you all helped me ( us) throughout this past 6…
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9 weeks after radiation therapy..
Hello, I've had chemo and 35 sessions of radiotherapy which finished 9 weeks ago, and i am still unable to eat. How long will I have to wait til I'm able to eat food again??? Any advice also for a quicker road to recovery?
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Office Visit Tongue Biopsy
Went to my 3 month appt expecting NED but getting a tongue biopsy instead. It was my first visit without my wife as she had to stay home with our daughter who wasn't feeling well. As soon as my doc started pokling around in my mouth I knew he saw something he didn't like. A small little legion was visible on the lower left…
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Debbie Downers and Negative Nellies...
Whew..I have encountered some very bitter, negative and downright depressing people lately. I've been easing back into working half days (with my handy dandy spit bag in hand) and of course have gotten some attention from people who did not know I'd had surgery, treatment or cancer in general. Here are a few of my…
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Cardiologist Visit
No vent about the doc and the tests he has me scheduled for , in fact he was in the room with me less than 10 minutes , his PA spent more time with me than he did... My vent is, and maybe I'm being a little over sensative ; the PA was asking me about the chemo drugs and radiation treatments I had , she the asked what the…
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Neck Dissection
Hello all, My husband’s 3 month pat scan came positive and both ENT and oncologist suggested Neck Dissection surgery. I have read about it here but not sure how it's worked and ENT was also talking about removing neck muscles and I am not sure if I am comfortable with that. Any suggestions and experience would be helpful.…
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Delayed Onset Neuropathy?
I'm 9 weeks post Tx. two weeks ago I started getting nerve pain in my upper body from my head to my chest and arms. It's as if my skin is over sensitive, much the way my neck felt for weeks after my selective neck dissection. Touching my skin is painful but not in a deep tissue way. It's more like painful over-stimulation…
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Sleepless in NY
I go in for my double hernia operation 6 am tomorrow morning. Its been a tough week - gout acted up for the first time in 15 years and I couldn't walk, although they now have a pill that cuts right through all the inflammation and that's almost a done deal. Just a little antsy about going under the knife again.they tell me…
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Survivor checking in at one year mark
I just filled in rollcall and realized exactly one year ago, i finished my radition on june 27th. When i was going thru treatment I really liked to read about feedback from patients who have gone thru same. I am doing really well, here is a update: 1. My energy level is alomost back to what it was before 2. My weight is…
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Disability and transition back to work
Hello friends,I live in California,Ive been off work for one year my temp disability has ran out.......my doc says Im ready for work....at times i do feel ready...but most of the time,i dont im recovering from stage 4 Patroid Cancer 33 rounds of radation,and a Eyelid operation,because my left eye would not close...I DRIVE…
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my daddy has passes
26 March 2013 1710 my beloved Daddy has passed away. He will be missed. I love u Daddy.
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day 1, 2hours in.
Ok here goes. Starting my first day of chemo with 3 types. Cisplatin, taxotere and 5fu. Looks like a long day in the chair with wonderful wife by my side im ready I think. just a little Nervous for the most part. Tony
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rons progress
been a tough ride so far first week was a tough one, mondays are long days starting with rads then labs and oncology appt and radiologist appt then 4 hours of chemo. first chemo was hell, fatigue set in immediately and was very tough week. second week was slightly better but by tuesday pm hit the wall of fatigue and…
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NED!!
NED!! CAT SCAN IS CLEAR! Dr. says everything looks great. Will have another one in 6 months. Saw both the Radiation Oncologist and the Medical Oncologist today and they were both very pleased with how I am doing. Going out to eat soon with a few of the friends who stood beside me and cheered me on thru out this journey. I…
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Feedback from radiation done TWICE : (
I am 43 (and a man sorry no profile pic) and have gone through photon radiation at 25 for squamous cell carcinoma of the nasopharynx and then proton therapy for the same cancer at 39. I also went through chemo for hodgkins. I was wondering if anyone has had trouble with your soft pallet. Mine does not work now so I have to…
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Been to hospital about tongue...
Well I've just had my appointment. I was seen by two oral surgeons. The first said he couldn't feel anything so went and got his consultant, who had a feel too. He said he COULD feel a lump but said he wasn't worried and told me he thought it was a tonsil. Apparently they increase and decrease in size now and again. He…
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The date is coming and I am getting quite anxious
Hi again to all of you, I am feeling quite anxious as the date of my biopsy is July 2nd. I have to go for pre-op tomorrow and I am so scared they'll find something else. I read the horror stories of finding lung cancer while doing an x-ray for something else. For some reason, this scares the "poop" out of me. My ear pain…
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Almost a Year from Rad
I guess I am a survivor of Squamis cell on the back of my tongue. I went through surgery Last year May and had a tumor along with 2/3 of my tongue removed. They also removed my limthnodes form left side of my neck. After a couple months of healing I went through 40 rad treatments. The oral mucus got so bad I could not…
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For those with swallow issues
Hey guys and gals, if you have or had issues and webt through any treatment for Dysphagia, when do you know to try harder things? I am so bored with diet would live some tips! thanks, Rachel