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Head and Neck Cancer

Archives for May 2013

Our Final Time Together
We laid my husband to rest today with a simple, but elegant graveside service. Our friends are few in number but are true friends. My daughter was able to lay a single rose on her grandmother's grave as my parents' plots and ours are side by side. She and my mother were very close. In time we will heal from the loss of the…
Post laryngeal cancer symptoms
Hi. I live in Sydney, Australia. I was diagnosed with squeamous cell carcinoma on my right vocal cord in 2005. It was in a very primary stage and was treated successfully with 6 weeks of radiation therapy. Although the treatment and immediate post-treatment period was very uncomfortable, my recovery was fairly complete…
Busy month !
Received a call from my Dad tonite. My Uncle passed away quietly with his family around him. He had that mesophelioma. Not sure of the spelling. So will be heading north on Thursday to be with the family. We also have a few baby showers, wedding showers, and birthdays this month. Life all around us hunh ? Was in to my…
kari any update
has anyone heard from Kari? just wondering how her recovery is going. dj
Chest Xray once a yr.....that's all we get after tx.
After Kreg spoke with his Oncologist at U of M he too(along with ENT), stated that he is only recommending Chest Xray once a yr. No CT or PETs in his future. Their reasoning of this seems a bit disturbing to me, but Kreg is fine with it. Simply said, they do not want to put anymore radiation(in CT's and PET's) into him…
You can be fabulous even if you don't feel or look that way!
Yesterday, we had to head down to Johns Hopkins for a follow-up. Firstly, they had to take out the safety buttons from my PEG implant. That was a piece of cake. Then we met with the nutritionalist and went over the game plan again and how I was doing. After we got the hang of it and found the right flow rate, it's been…
Been Very Very Sick
The root cause was high calcium due to excessive supplementation. (I was following doctor's orders.) Ca levevels went from too low to dangerously high in a couple of weeks. Altered Ca levels and had 8 hours of fluids IV, and things are getting under control. However the ride was a rough one. Fell once. Could hardly…
My family is smothering me
Ok I have complained multiple times that I didn't get any support when David was sick. Now today my family is smothering me. Everyone wants me to spend my anniversary with them. Well you know I dont want to. I will be spending that day with the Gabbards. That is where I want to be. When I try to explain then they want me…
Pathology Report
I saw my ENT that did my surgery last Tuesday this morning . Got the news I expected that the Lymph Gland that I could feel was SCC . The good news is that the other two that he removed were not Cancer ! I will be going to MDAnderson in Houston in the next 2 or 3 weeks to see what if any treatments they recommend. So I…
Swallow Study Tomorrow
Hey Everyone, On such a sad morning since I just found out about Wolfen, I feel bad asking for prayers and pocket tucks. I have my another Swallow Study for 8am tomorrow and a therapy session right afterwards to develop a plan to begin eating at home both by mouth and tube depending on how study goes and how I tolerate it…
First scan results today
Hi All, It's been awhile since I've posted but I do read. I had my 90 day post tx scan(MRI brain and mandible\jaw area) last Monday and today I have a 3:00pm with my onc doctor to go over results. I did not sleep at all last night. I have never felt this kind of anxiety in my life. I never call in to work sick, but I did…
My Cherokee Irishman Has Gone Home
All My Friends, With the help of the wonderful Hospice group, my Ron was transported to our home Saturday at 2:30 PM. Robert & I rode with him. It was expected that he would expire shortly afterward. However, he managed to hang on until 9:10 AM Sunday. There was no struggle, only my own. He woke as the vent was removed,…
After two weeks of treatment -
I'm feeling more tired today than I expected. I was hoping I would "bounce back" this weekend more than I have. I finished 2 weeks plus a day of radiation on Friday. My mouth is drier and my throat has periods of pain, but not too bad so far. I'm already tired of being sick and tired and still 5 weeks to go. I'm getting…
Dental Impants post radiation
After completing radiation in early 2007 I started to have issues about a year later with facial swelling and random fevers. After many trips to the ER and Oncologist, I found out it was was due to my teeth. Before I started radiation I had never had a cavity. After treatment, I saw my dentist every three months like I was…
Sun Sensitivity
DX with BOT in March of last year, induction chemo, chemo/rads (finished July 5 of 2012) surgery x 2 for remnant issues, the second from false positives. I was told during radiation 'training' that I would need to stay out of the sun for up to a year post treatments. During a re-visit after the skin on my neck healed, I…
Help- In Treatment - Dry Mouth
I hope you can help. My husband is receiving Chemo(Cisplatin) and Radiation for a mass on the base of his tongue. He is struggling terribly with a disgusting taste in his mouth and lack of saliva, he's nauseus and he constantly is bringing up a foamy substance. They just put in a feeding tube because he cant even tollerate…
Tongue burning and cut
Hi to all my dad is one and a half years out from chemo and radiation for tonsil and recently began complaining abut a burning tongue and if I look at it it has lines like cuts in it and he says it burns when he eats how can I help him with this? Anyone have suggestions how to clear this up? It is effecting this eating…
Bladder pain since having chemo and radiation for squamous cell carcinoma in lymph nodes of neck
Has anyone developed bladder pain during chemo and radiation for squamous cell carcinoma of the lymph nodes in the neck. Just about finished with chemo and radiation and the pain in the bladder has developed. Really, this pain has been there during most of the treatment. I am not eating or drinking anything by mouth. Had a…
Thank You All So Much For Your Prayers & Healing Thoughts
I will sleep very little, if at all, tonight. I made the decision today to have my beloved husband removed from life support systems at noon tomorrow. His condition has rapidly deteriorated over the last two days. The ventilator is now completely breathing for him and the pacemaker has taken over 100%. He is in a drugged…
l-glutamine experiences?
As I start designing and mixing new blenderized drinks the topic of glutamine comes up and I'm wondering what experiences you had using it as a supplement during radiation treatment to help rebuilding those blasted throat areas. Here are four links from the Superthreads -- it must have been a pretty common point of…
Rads - update: CROSSED 1/2 WAY
I just finished three full weeks of daily rads and overall feeling pretty good. I am on weekly chemo as well (carboplatin 150) but my MO inidicated and I can confirm the side effects from the chemo dosing is minimal if at all. All side effects are radiation based which to date really is come down to soreness/pain in the…
Hypothyroidism
Have been have digestive problems lately, mostly constipation and a little nausea. Saw the Gastro doctor yesterday at Penn State Hershey. She did the usual stuff, pressing around the tummy, listening to bowel sounds etc. She said I have a hiatial hernia but that is not the reason for the digestive problems. Had blood…
Very sad to report Charm from OCF has passed
I know there are folks here who also check OCF but really sad to report Charm has lost his battle with Cancer. http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=164514&page=3
Thinking of Wolfen and Family
Just to let you know that I am thinking of you and praying for your Husband , you, and your Family .
Kari update. NJSHORE
I just got a text from Dan. Kari did great and is in recovery. She got out of surgery at 3:10 and the nurse said everything went smoothly. I was very happy to get report and wanted to share it.
Kari
Just want you to know That I said a prayer for you and that I am thinking about you . We are all waiting to hear good news from you. Peggy
Has Anyone Here Used Hydrocodone (APAP) In Order To Control Pain ?
Hello all ! I was just wondering if anyone found it effective. Thanks, Dennis
Good news on 1st pet fears after treatment
i am happy to report all clear today on husband's 1st pet scan after treatment . Thanks and God Bless each and everyone for your prayers and positive comments! You are the best ! We will definitely get a good night's sleep tonight! Laura
Q for those who used Amifostine/Ethyol
To those who have used Amifostine/Ethyol, I am on my third day of it and getting very nauseous and weak. I am taking both Zofran and Compazine to counteract the nausea but I still don't feel very good. My question is whether my body will adapt and the side effects of Amifostine will lessen, or is this as good as it will…
A question concerning couples and cancer
I hope I am not offending anyone, but I was wondering since a cancer diagnosis changes the normal in everyday life, how does a couple going through it keep intimacy, romance and love making somewhat normal though this all. I read about care givers and how wonderful you all are and how you must put so many things asside for…

Head and Neck Cancer

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