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Head and Neck Cancer

Archives for May 2013

End of Scanxiety -- NED Again!
Doc just called and the knot in hubby's neck is likely scar tissue from radiation and latest CT scan shows NO EVIDENCE OF DISEASE! This scan came 6 months after post-tx PET last October. Knew the 6-month scan was coming but had not expected the new "knot" in his neck discovered about 4 weeks before the scheduled 6-mth…
It has been four weeks
Today marks four weeks since David's passing. I got a call today and his disability was approved (lol). I am having such a hard time being alone. I want to be in the safety of marriage. This really sucks. Sorry I don't feel like I can be real anywhere else. Everyone is watching and I don't feel like if I said what I really…
My Heart Is Breaking
My daughter & son-in-law arrived about 8 this morning. We met with the Pulmonologist & the Pallative Care team. The chances for my husband's recovery are slim to none. Too many systems are failing at once. If he is to stay on the ventilator, he will eventually have a trach & live in a nursing facility, which I know he…
4 Month PET Scan after glossectomy
Saw both surgeons today. They scoped Chuck and thought everything looked good. Ordered a PET Scan on May 8th. Kinda worried (oaky not kinda of, extremely). We have been one of those people where this only happens to 1% of the people going thru this. Chuck has been that 1%. I just want this PET scan to show nothing. We have…
If this is as good as it gets
it's good enough for me! Just returned from my visit to Stanford. Tuesday, microvascular surgeon--he was happy with healing, would like to do some clean-up work but elective--I choose no surgery for the time being. Dr. Sunwoo, H&N surgeon poked and prodded and poked some more, he thinks sinus problem is due to radiation,…
ENT Visit Was Good - Thanks for Good Wishes and Prayers
Thanks to all for your wishes and payers. The ENT doctor said all looks good. Normal to have hoarse voice for a year to forever. Always great to get a "things look good" information, but then we, or at least I aways think what about next visit. Gets better after a little time passes. I suppose if we thought about it all…
New here and possibly some type of oral cancer
Hello, First, I would like to say that I have read many of your stories and I think you are very couragous. I admire your strenght and only hope I have half as much as you all do. My story start in mid-March when I started feeling pain on my tongue. Other than swollen papillas on the right side, I can't see anything else…
in treatment & struggling with my attitude
I'm about two weeks into radiation, looking at 5 more with chemo along the way. I'm really struggling with fears and negativity about the treatment. When I was diagnosed my oncologist was very up-beat and positive about my chances for cure. Along the way, as I was staged E3 and had a health stumble, the docs have been very…
SNUC-my dad newly diagnosed. Advice please!
Hello everyone my name is Tiffamy Tarango. My dad was recently diagnosed with SNUC on April 25,2013 post biopsy results. he is going to be treated UT Southwestern in Dallas tx. We met with the oncologist yesterday and he is at at stage 2 with no lymph node involvement. The tumor is large in his frontal sinuses, ethmoid…
Anyone else on weekly pallitive Erbitux?
Hi!! I was diagnosed with inoperatable neck tumor, Stage 4 Terminal...it's where my brain stem and spinal cord come together and 1mm away from internal jugular vein...it had spread to my Lymph nodes and lungs in Jan...on March 5th 2012 I started high dosage of 5FU, carboplatin and erbitux...the 5fu and carboplatin were…
Sorry for my absence
Hey everyone, i thought I had Couple of bad days the I came back and saw some dear to us back to fighting hard again. I didn't want anyone to think I forgot them. first I got a new iPhone, it was time to upgrade and all this talk of FaceTime I wanted to play, but I had to reload everything except contacts so sine I am…
All My Special Friends
Your many prayers are working. Hubby was more alert today and understands partly whats going on. He's frustrated not being able to talk with the ventilator. Tried writing, but not good. Our son can interpret want he wants much better than I. He understands that our daughter is on her way & asks for her. The Nephrologist…
ENT Visit - A Prayer Would Help
I am still stuggling with a hoarse voice and my chemo doc saying a week ago it could be a tumor. Thanks for all of your replies to my post about my doc's off the cuff comment about a tumor. I think he thought; not likely, but just his style. Anyway that and my continuing hoarse voice four and a half months out of treatment…
Unknown Primary
my husbands pathology from his tonsillectomy came back and it was negative. So, we have joined the rest of you that have a dx of "unknown primary". I understand the radiation field will be a bit different but was told the amount will be pretty much the same - 6 wks. I don't know if this includes any chemo- we will meet…

Head and Neck Cancer

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