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Now the big problem is the pain.
Hi Friends, Chris' mouth pain seems to be getting worse. He does the magic mouthwash, lidocane, oxycodone and has a Fentanyl(poor spelling I know) patch. Swishes with the baking soda water too. Does it get worse after the treatment is done? He finished all last Wednesday. thanks
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Random canker sores 6 months after tx
Hi All! Hope you are all enjoying your Memorial Day weekend with the ones you love! I'm just wondering if anyone has experienced random canker sores or even cold sores after tx? Kreg has had these appearing in the last couple weeks. They have appeared in the inside of his cheek and his tongue. He doesn't see his ENT until…
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Happy Memorial Day!
Hope you all are able to relax and enjoy this Memorial Day. Take a moment to think of and thank all of those who have given so much to make us FREE! I toast you all with my large glass of Ensure :) Hope you all have a blessed day! No rad treatment today for me, the office is closed! Yippee!!!!!
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Mucoepidermoid Carcinoma
Those two words ROCKED my world back in January. I ignored what my dentist said was an abscess tooth and ended up having a 4cm tumor IN my lower left jaw. They did surgery (5 hours) on March 6th to remove a large portion of my jaw and the tumor. I had drainage tubes, feeding tube, 50 staples, IVs everywhere they could find…
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3.5 years and counting
I have an anniversary coming up and thought I would post some of what has been going on in my life. I go in for my check up on Tuesday. It will be 3.5 years to the day of the dreaded biopsy. My wife created this account and was an all around life saver during this tough time. I hope to have another good check up. My "new…
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Emotional about body changes
Hello, Tonight I looked at the side of my neck with a mirror to see what other people see. I felt kind of shocked at how deep the crease is under my jaw. Added to that the swelling I still have under my jaw (surgery was Aug. 2012) and long scars. I've been struggling to feel comfortable with the loss of part of my tongue,…
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White patches on my tongue... Cancer?
Hi everyone, I'm obviously new here. My name is Megan and I'm 23 years old. I'm definitely a bit of a hypochondriac and I suffer from severe anxiety and hypothyroidism. About a month ago, I got a small white spot on the right side of my tongue. A couple days later, I got two more white spots on the same side. The one most…
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New to this, Husband just diagnosed with stage 3 left tonsil cancer
Hello, New to this , electronically challenged, but will try. My husband ron was diagnosed a few weeks ago with left tonsil stage 3 cancer. He had a left tonsilectomy and pathology put it as squamous cell carcinoma. His ENT set him up with a day full of appts with oncologists and radiologists. He was seen by his dentist…
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Back to normal
Happy Memorial Day weekend everyone! I hope everyone gets to drink an extra insure as we watch our relatives goble down burgers, hot dogs and steaks, just as I will. Actually I am just being a little sarcastic as this use to be one of my favorite weekends. I read a lot of posts by others and I hear a lot about returning to…
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Base of tongue squamous cell carcinoma
I’m new to this, recently April 3 2013 PET scan said base of tongue squamous cell carcinoma. I get my feeding tube next Tuesday and start treatment 5/30/13. I’ m scared. I supposed to have 7 weeks of radiation and 3 chemotherapy’s. Everything I read says chemo kills more then it cures. Is there an alternative to chemo?…
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any ideas to fight (UPDATE)TO MANAGE THE PAIN & MUCUS foam and abundant mucus coming up?
Now the big problems are the pain and mucus Hi friends, you were so wonderfully helpful and supportive last time :-) my hubby just finished 7 wks Rad & 3 chemo. Unable to eat or swallow ANYTHING. On PEG. Treating Thrush, and is suffering from mouth/tongue/throat pain...What is really getting him is the mucus and foam…
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cant open mouth
Hi yep Im new here,Getting frusterated cant seem to get an answer from my doctors about how much Im going to be able to open my mouth.Had surgery march 15 2013 Had Squamous cancer in my cheek ,also had lymph glands removed.tonsels.two teeth and a flap put in my mouth made from my arm o ya and a skin graft from my leg to…
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I'm new here, Hello everyone
Hi, My name is Janice. I was told last May 2012, I had mucoepidermoid carcinoma primary sight unknown. Well, this May they found the primary sight, the base of my tongue. I'm told this is a rare cancer and having it in the tongue area is almost unheard of. I went to the tumor board last Friday to discuss my case. According…
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Husband Diagnosed with recurrent Nasopharyngeal Carcionma
My husband was diagnosed with Nasopharyngeal Carcionma 4 years ago it has returned in the same spot. The ENT basically gave him a year and a half to live and told him that he cannot do radiation again. Is this true? He said it would melt this spine. I am devastted he's 50 years old and I don't know what to do. The cancer…
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Questions
For those who finished tx before me. Just finished Rad 3 days ago. When will the mucos stop? where is it coming from? Should I be concerned with a little blood coming out. I tried to eat old fashion oat meal. After gagging, choking and spitting, I spit some blood out. Needless to say I have eaten solid food the whole time…
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Quasi-Almost-Semi-Old-Timer checking in
Hi ya Kids! Long time, no see......................haven't been on in quite some time, so thought I'd pop in and see how everyone is doing and say Hi.............................Hi! Sorry to see so many newbies on-board. Even more sad to see some going into battle again and the passing of some of the other good folks -…
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My dad just diagnosed
Heyas I am from Australia and my dad has just been diagnosed 4 weeks ago with a Squamous cell carcinoma in one of the lymph nodes in his neck. It was removed 3 weeks ago along with 40 other lymph nodes in the area. tests come back showing it as only the one lymph node as being cancerous though. so thats good news. It…
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Crisis averted
With all of the recent dental talk, I got very concerned when one of my top teeth started to bleed allot when I brushed. It was not the normal sensative gum bleeding. Having read posts about shards of bone, I could see something small and hard at the gum line that I could not floss or brush out. After 2 weeks of worry, I…
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Nasopharyngeal cancer
Hi everyone .. 8 days ago my dad start the chemotherapy he feel all these pain in bone but he had pain in his stomach he vomiting after eating so we gave him IV fluids but he still vomiting (green colour) and he had pain in his stomach !! Is this normal
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Hi friends
Hi everyone. It seems like the days are flying by and I am not getting too much accomplished. I have started getting out of the house some. Tomorrow my mother and brother in law and I are going to the cemetery. It will be my first visit there since David's death. I still miss him and find I wish I could hear his voice. I…
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SCC skin
Just found out today that I have a small area of scc on my back, doc said pretty common, pretty small, he is going to have a dermatologist remove it in a week or so. Something about me and C, seems to like me. Denis
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Hello Again
Hi All. I appreciate everyone who responded to my first post a while back. My brother will not start his treatment until next Monday (May 27). He went to have his tube in but there was a bit of miscommunication on his need for a driver, so now that is scheduled for this Friday. I have been faithfully reading posts, and I…
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finding my new normal
I've been in a crazy place in my mind lately, wondering if I'd ever find myself back to a normal of any kind. I haven't been in for the CT of the lung yet, had to reschedual. (just a re-check on surgery site) But I was very surprised to hear from my onc's that my next PET/CT won't be until Nov. I started laughing and…
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the trival side of taste or not
Fellow taste buds, Miracle fruit, miracle berry, miraculous berry, sweet berry whatever this stuff is called. Has anyone who has gone through radiation and had their taste buds zapped ever tried any of these? At about $1.50 each, they are not cheap and I only want to take a dive off the thrill diving board if there is…
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Just Feeling Out Of Synch
Hello All, Please know that I am here reading and watching over each & every one of you as you conquer the Beast. For many the battle is just beginning, whiile others mentor and help you through the perilous journey. I sometimes feel out of synch with the group as I cannot offer much in the way of constructive comments as…
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How many chances for chemo and radiation
Please give advise. I had chemo and radiation during the period March - June 2011 but the tongue cancer is back again. I asked the oncologist if it is possible to do chemo and radiation again and he recon that I had my chance! He said that I will either need to do surgery or die! Is it true that one gets only one chance to…
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caregiver rejection
I got home Friday night on day 3o of my boyfriends radiation treatment. I left that day before he rang the bell. The bell rang for me the night before in his fentanyl oxycodone police threat. We were 10 months in to the relationship, made the committment to take care of each other if we got sick, both been married and no…
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Last day
I am still real new to the site. However today I ring the bell. After six weeks and a day I am almost done. I never thought the Rad would be worse than the three surgeries/ICU. Go figure. The past weekend the cumlitive affect took hold. For those that have gone this was before a question (s). How long did the burn on the…
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Radiation-Single Digits
WE made it to single digits. 9 more to go. Rob is pretty beat up but taking it like a trooper We are almost there. He will be another survivor Sandy
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8 week post tx CT scan
I had my 8 week post treatment CT scan last monday. The results were not as good as we had hoped. Although the scan showed NED in my head and neck, it also showed 4 nodules in the upper lobe of my right lung. All four are less then a centimeter in size. I have not spoken to my doctor about this yet as the news was…