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Swimming
Hey guys and gals, not getting straight answer from drs. Can you swim in Public Community Pool Club Pool, it is choleranted? I usaually go to one during week with daughter in summer and my boyfriends cabin at the lake on weekends, they were matter of fact about no lake with Peg Tube, but all not sure on swimming pool? What…
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prostate biopsy
Well tomorrow is another biopsy, this time my prostate, doctor said that it's a pretty nasty procedure, apparently the prostate is a wicked bleeder, just what I need now that I take blood thinners, have not taken them since last Monday so hope things stay normal. very apprehensive about this, my dad and my brother both had…
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Keeping everything in perspective
i had a bad day at work yesterday - actually made a mistake - had to hear a lot of cap from a lot of people . A year ago I would have thought that this was the worst thing that could have ever happened. I would have had someone's head even though it was actually a team mistake. Instead I accepted the responsibility and…
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Stage IV Head and Neck Cancer
My brother in law has two large tumors on both sides of his neck along with growth in the front. Radical surgery in Nov 2012 removed a very large mass in his throat, however, it has all grown back. The chemo did not work and they put off radiation because of a fistula from the surgery. Now he is starting radiation tomorrow…
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How to make eating easier?
Hello, I am new to the board. I am currently undergoing radiation and chemotherapy treatment for a head/neck malignancy. This has resulted in dry mouth and some lost of taste. I taste sweet things the best and they go down the easiest. The major problem I have is that it is difficult for me to eat anything other than…
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My Feet Are Always Cold
After radiation treatments and chemotherapy for nasopharyngeal carcinoma, my feet are always cold. My roomate will be sweating because he is hot, but my feet are COLD! They even feel icy cold to the touch. Anybody have this ever happen?
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shoulder tingle
I know it is probably normal rad side effects but has anyone had tingling (like when hand falls asleep but worse) in their shoulder, arm and chest? Jim gets it in his upper back sometimes as well but mostly left shoulder and upper arm. Oncologist wasn't sure. Debbie
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oops doubled it
I know it is probably normal rad side effects but has anyone had tingling (like when hand falls asleep but worse) in their shoulder, arm and chest? Jim gets it in his upper back sometimes as well but mostly left shoulder and upper arm. Oncologist wasn't sure. Debbie
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Introduction
Introduction Hello All. I am here to desperately try to get a handle on my dear brother's tonsil cancer. Unlike all of you, he cannot tell me exactly what he has. I suppose his attitude is good, as he says, "What does it matter?" He doesn't know the stage, but the tumor is T1 and it has gotten into his nodes, but he…
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Just Dropping By To Say Hello
Dropping by to say hello to all you wonderful people. You haved saved my sanity on many a night. Robert & I have been keeping quite busy just sorting through the many things that have accumulated here over the last 40 years. Some items have been donated and many items will be sold over the next few months to make ends meet…
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Clicked the Switch
Ok, in the last four days life has changed for me. I went to see my Med Onc last Tuesday complaining of a real sore throat and food getting stuck every time on the right side of my throat. Both he and my ENT are sure it is just swelling but it was tough for me to buy into and I just couldn't eat. I'm on 6 insures a day and…
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New to chemo just got pump off
What should I expect?
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Great News For A Change!
Don't post that often, but do come to this sight often. I have been the sole caretaker to my hubby who was diagnosed almost a year and a half ago with Stage IV BOT cancer with lymph node involvement. Docs told us tumor was too large and close to his voicebox to operate first. So they did chemo and radiation. Thought all…
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Eating solid foods
* I was diagnosed with Stage 3 BOT Cancer in 8/12 The tumor was large and it had my epiglotis (sp) stuck in the "up" position. Prior to treatment I was able to finish to the whole swallowing test (not great results, but could swallow) Had 7 weeks of radiation and 3 chemo treatments. Finished treatment in 11/12 Had PetScan…
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teeth problems
I had radiation to thraot 35 times and chemo 3, after going on 4 years out, i have lost 2 back teeth to radiation and had them removed, now I have 4 upper and a lower same area that the top of the tooth is decaying deeply, I am full dissability, but I heard that my medicare part b might help if they can prove that it was…
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Tenderness in Neck after tx
Hi Folks, I hope you are all doing well. Kreg is doing well at 6 months out of tx. Eating, drinking, and his taste are all coming back. The question of the day is, has anyone had any tenderness around the neck where the lymph node was affected? He never had surgery, just rads and chemo. He noticed this feeling just…
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Winding up week 4
Those of you following my posts over the past couple of weeks know that I have a tendency to obsess about the negative. Well somehow I've turned that around. I think it came when I got a chance to actually see the scans of my neck showing the tumor and the treatment plan. I feel much more confident that things are going to…
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Pumakitty Dad up-date
Hi everyone I am sorry to report that Kathy Dad passed away today at 4pm. Please keep Kathy and her Family in your prayers Hondo
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Infected G Tube?
Rob got his feeding tube last thursday. Last night while taking off the bandage I noticed what I think to be pus. He calle the doc and some oozing is normal but I am not sure pus is considered normal. Did anyone else have any puss with there tube? He has no redness of the skin around it. and no temperature. Maybe I am just…
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Ending Swallowing Therapy
Hey guys and gals, Today at therapy my therapist Lena said that i have reached all her goals and there is nothing more she can bring to the table. I am afraid to cut the strings though. I always try harder stuff with her and feel safer when shes there. She is on vacation next week and was already scheduled for week of 30th…
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Timeline question
Today marks 1 year that I rang the bell...that memory still brings tears to my eyes. My question is where the reference point in time is for figuring milestones like 18 months and five years. I have heard it is at dx, was it when I had my surgery or was it the day I finished tx?
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Back again
That Cisplatin seems to knock me around. The first dose put me in hospital for 2 weeks, the second time around the doc managed to control my white blood cells better and only had to stay in hospital for 1 week (just out now). Thankfully with the Erbitux, radiation cisplatin etc. my treatments are over, now is the time to…
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Vivian???
Vivian, You've been on my mind a lot lately, how are you? It is my hope that you are doing well in the healing process. Please if you have a minute, drop us a little line to let us know how you are doing. XO Billie
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Still in treatment
Just joined the board yesterday. Guess I posted yesterday in the wrong place who knows. I was diagnosed with Squamos cell carcinoma HPV-16 Tonsil and neck, on Feb 8, 2013. I've had three surgeries and have five radiation treatments left. Couldn't do Chemo because of a solitary kidney. They took 25 nodes and 1 salivary…
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Checking In
Hi all: Basketcase checking in finally!. A lot has been going on. Y'all know about my best friend's house fire and losing her 95 year old father in the fire and her husband Steve undergoing lung ca treatment. Well, they have demolished the old house and getting ready to build the new one. Steve has finished chemo and rads…
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Cisplatin v. Centuxmab
I am recentlydiagnosed tonsil/BOT SCC primary with secondary lymph nodes of side neck,stager IVaI I have the chance to participate in a clinical study, RTOG 1016 testing centuxmab v. Cisplatin. Has anyone participated already, and if show what were results? Thanks for anyinsight provided, Jerry
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Today's dose of irreverence - Cancer Cliche's; post em if you've got em!
After my LONG AND COURAGEOUS BATTLE with Head Neck cancer, I am learning to deal with my NEW NORMAL. The fact that people are LIFTING ME IN PRAYER has helped me to become a SURVIVOR. Sometimes I feel a lump and fear a cancer recurrence, but I tell myself IT AIN'T CANCER TILL SOMEONE TELLS ME IT'S CANCER. Every day I LIVE…
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And so we begin.....
My husband had his radiation mask made today- radiation starts tomorrow, one side of the neck x 5 wks. This forum has been such a blessing For me- a reminder that you all have pushed through and so can we. So much courage here. Thank you.
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Teeth problems after radiation treatment
I have been reading on line about teeth pulling after radiation treatments and am scared to death about what I am reading!. I am 40 months out of radiation treatments. One of my teeth is now at the point of needing to be extracted. Prior to the radiation treatments I requested that I have my teeth pulled knowing that there…
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my dental issues PLEASE HELP
dx: 8/09 laryngel cancer tx: 35 radiation tmnts recurrence: 2/12 tx: total laryngectomy 2/28/12 i've been reading "more dental stuff" and getting more scared the more i read. my teeth have all moved and i bite my tounge EVERYTIME i eat. plus i have a sore on my gum and my mouth is pretty sore. due to these problems i went…