Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for May 2013

Couldn't Resist :)
I saw this article today on MSN and just had to share. I apologize in advance if it offends anyone. I just found it to be quite amusing and interesting whether it's true or not. Regardless, I'm thinking some preventative therapy might be in order ;) http://now.msn.com/squeezing-breasts-can-stop-cancer "T"
A Success Story
We need a good story and I was lucky enough to stumble over one the other day. I was listening to Desert Island Discs, a BBC radio show available as a podcast. The weekly guest gets to name 7 songs that he’d take with him to a desert island plus a book and a luxury. In between the musical selections, the guest talks about…
Ding, Ding, Ding
of the bell. Done with all the crap, now on to heal. He is real tired and sore but ready to start climbing the hill soon. Thank you for everyone here. Your thoughts, prayers and suggestions got us through this. Sandy
Scared- please read
I know that I may be a little out of line here since I myself was not diagnosed with cancer. However, about a month ago my dad was diagnosed with a "highly treatable" cancer in his sinus cavity and the doctors found the same type of cancer in one of his lymph nodes. My family has had a really hard time accepting this and I…
It's the little things!
Y'all may think I'm goofy, but I am so thankful for the "little things" lately. I ate oatmeal this morning. Oatmeal. Without my mouth burning on fire, choking, gagging or having to spit 75 times. I am SO excited! I only had to use my magic mouthwash TWO times yesterday. I had no pain except later in the day. Today I am…
tonsilectomy no neck disection
My husband ron had a left tonsilectomy and that is how we found our he had scc and then pet scan shows activity in 1 node. I read on here and most ppl have had neck disections, am concerned , should he had had one? Is this the norm or are we missing something? janet
Sprits down
Thank you all for information the other day . Today my spirits are down I am having so much pain with these blisters in my mouth. the lidocaine doesn't work that well i just want to eat I am so tired of this I know it's only been 3 months but 3 years ago I had 2 brain surgerys and only took a short time to recover I guess…
Update on teeth
Thanks Pat, John, "T", Matt, and Tom for your thoughts and comments. I went to the dentist today, and need to update the info. I jumped to conclusions based on my fatalism, and misdiagnosed my condition. Though 4 years past treatment, and after following no respectable flouride regimen, my teeth are in good shape according…
Update
Hi Folks, Yesterday, May 29th, was 5 weeks post treatment and the best I've felt in a very long time :) I've had a few small steps backward here and again but I've definitely turned the corner and there are more steps forward than backward these days. I went back to work part time (11-3pm) late last week and it's great to…
Ignore. Hit the key twice
Oops!
Don't neglect fouride--test results in
Hello, as promised, back with a report and brief cautionary tale--Hal (65now) The good news is I'm now Hal65. As Hal61 I paid little attention to the posts championing flouride trays and application. The reasons for that are myriad but the m main ones were a lack of attention to that treatment by my docs--was never…
Finished Treatment Now What?
Finished treatment on April 19th 30X rad with no chemo! Now the waiting game and it is driving me crazy! Had more of a bad reaction to the Ativan was put on during treatment and am finally getting a couple of hours of sleep at night! How does one deal with the waiting game that will be a part of our life from now on? Go…
MRI results NED
Hi Guys, I would like to shout to the world that my husband was CURED in Jesus Name. He was diagnosed July 2012 and finished his treatment on January 2013. He suffered from pneumonia on Feb and Mar 2013 and undergo an emergency tracheostomy. At first I thought his life will be ended then but I didnt let my worries overcome…
CRT - 3-2-1-done
3 days to go before I change to post-treatment status. It's been quite a journey with some bumpy road still to come but I have my next milestone set a month out where I hope to see most of the dusty road in the rear view mirror. Most days on my blog I report out various factors being currently or recently been managed. The…
A Year After Treatment
One year ago tomorrow, Hubby started treatment for stage 3 tonsil cancer. 35 rads, 2 cisplatin (supposed to have been 3 but he was too ill for the final dose). While I prefer to look forward instead of back, I can't help but think back on this last year. A year ago we were anxious and scared. It didn't take long for…
Sweetheart Diagnosed; Wants to "Go It Alone"
Hi thanks for this wonderful resource. My boyfriend of 5 years, 53 years old, was diagnosed with "throat cancer", perhaps stage 1/2 in the past month. Stage 1 for size of tumor at base of tongue, potentially stage 2 because a few lymph nodes lit up on PET Scan. He is not forthcoming with any more details and previously…
Opposite of dry mouth problem
Sorry for all of the posts/questions lately. I'm new to this site and learning SO much! I wish I had found y'all earlier :) I read so many people have dry mouth issues. I have the opposite. I have too much spit. It's flowing ALL the time. I drool or spit constantly. I drool in my sleep and have thought seriously about…
Recovery
HI this is my first time on here . I finished treatment feb 23 2013,I have had every side effect that one can get. My question is when can I expect the blisters to go away so I can get rid of my feeding tube. Now I also have extreme dry mouth any suggestions on how to ease the dry mouth .thanks Susan
I did it folks
Hey friends, i ended my speech therapy yesterday! It was happy and sad Lena my therapist was such a supportive soul and i will be sad not to see her 4 times a week. But its time for me to be a big girl and push on on my own. So i finished at puree level and not many different ones at that. My bithday is coming June 4 and i…
Tim6003 in Daytona beach w no Internet! Drat!!
For those that know me well, know that me and this company "smart" phone dont get along!! I find myself in Daytona Beach checking on my mom w no Internet service at her house and for reasons I will spare only for sake of time I am not too sure about leaving mom alone just yet due dementia dementia issues that seem lot have…
PET scan results... need a hug!
I got a call while I was in a team playtest at work, so I couldn't answer. When I got the message, it was from the H&N specialist with the results of the PET scan. He said it was basically negative but showed some uptake in the nasopharangeal area. He asked me to come in and so he can examine me again to check it out. At…
husband getting mask made in the am, any helpful hints
hello, ron is going in the am to get his mask made for the radiation treatments. any helpful hints to prepare for or ask them for? thankyou janet
Hair loss with rads?
I was wondering if it was common to lose hair when having radiation treatments? I've noticed just in the last couple of days, when I take a shower and wash my hair, I end up with a small handful. Also when I brush it out. My mom had radiation for breast cancer and her hair thinned out a little bit, but I'm wondering with…
Post treatment questions BOT HPV 16 dx
Hi all I just finished my last rad treatment on 4/29/2013 along with my 3 chemo (cisplatin) treatments as well. BOT HPV related cancer was diagnoses. My question is when to expect taste buds to come back as I cannot taste sweets, some sour foods but most foods taste like paste and bland. Sore throat is mostly gone away…
soreness a year after finishing radiation?
Hey friends! On June 11th it will be a year since I rang the bell. I noticed this morning that I am really sore under my tongue which is where I first started feeling soreness during radiation. That is where the tumor was so I guess where the most Rads were concentrated. Is it normal to have soreness out of the blue this…
Scanxiety...
I've seen two doctors after moving from SF to the LA area. One was a general oncologist, who I figured I didn't need to see and yep, I totally didn't need to see him. I guess I had to pay him a visit, though, to enter the UCLA system for post-treatment surveillance by a H&N specialist. At any rate, he didn't do much of…
Hey guys
Sorry I've been absent for a while, phew it's been crazy! All is good on the health front so that's good, it's just life in general that has me so busy. I'm a Pre School teacher and for a whileni was so busy with getting everything ready for our Mother's Day Tea and then my older son is a senior in High School and with…
2nd round of chemo tomorrow and I don't want to go
Tomorrow is my 2nd round (of 3 rounds total) of chemotherapy. I don't want to go. I didn't care the first time I had to have it, but now I do. I don't want to have to get up early in the morning. I don't want the line inserted into my arm. I don't want to sit there bored for hours. I don't want to feel sick for the next…
No more treatment, now what?
My brother in law has opted not to have radiation or chemotherapy for his head/neck cancer. He has three large tumors, one on each side of his neck and one in the front. He is very tired, gets dizzy easy and is popping morphine like crazy. Wondering if anyone had any similar experience. I am trying to figure out what to…
Elderly and Treatment
Hello, My Mom's biopsy is scheduled for tomorrow at 10:30 a.m. Central. She's 84 years old and is more than mild cognitive impairment (she still knows everyone and if you only see her for a few minutes, depending on her current state, she can seem completely out of it or almost normal). Over the last couple of weeks, I've…

Head and Neck Cancer

Discussion List