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thrush
what does thrush look like? is it white sores? does it get on the gums and jaws? if this is thrush, what can i use to ease the pain and get rid of it? thanks for any advice. God bless, dj
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thrush
sorry
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Dad Update Oncologist visit
Dad saw the oncologist today. It was not good and not bad. As far as the spot they saw on his lung at rehab, the oncologist knew nothing about it. Told me he did not see anything on the CT that he ordered a couple of weeks before that. He wants to wait for another 4 weeks and then rescan. If he appears stronger and…
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With your permission
I will continue to be in the NED clan for now, no CT or Pet scan but did see the Onc/and ENT today,, she sent the fire hose down my nose and all looks good, gained 7lbs so the icecream is working. Just wanted to say thanks to all for prayers that I know we all do for our friends on this site and I have grabed a few of…
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Asking For Prayers, Please
My husband has taken a turn for the worse. I am in ICU with him & a nurse has brought me this computer to use. At 10 AM, he was wanting to get off the blood machine & get on with rehab. By noon, when I arrived, he had spiked a 104 fever & been moved to ICU. They think he vomited & aspirated. He is now semi-conscious & has…
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PLAN B FINALIZED
I have a final plan. I'm moving to Austin Wednesday and got into a clinical trial using a standard line drug Taxophere, combined with a 50/50 chance of getting another drug, or just a bag full of sugar water. I get the drug once every 3 weeks and scanned every 6 weeks. I am going through a group called Texas Oncology, Dr…
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5 appts today, 2 patient updates
Today Dan saw both his ENT Surgeons, and his oncologist-- all raving reviews of his weight gain (still holding his 20 lb gain at 160, and TPN is only 5 nights a week now! Everyone is happy. He also got a surprise visit from his dietician, and she too is thrilled to see him, and also a little concerned like me that as the…
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PET scan coverage... and hello!
I was thinking of posting a check-in over the weekend, and was reminded just now when I got the call that my insurance (Blue Shield) doesn't cover PET scans for surveillance for head and neck cancer, after the first post-treatment scan. I think the doctor is trying to find a way around it, but I'm overdue and I don't want…
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Shaving after radiation
It’s been 1 month since my husband done with his radiation treatment and he really hates electric razor and wants to go back regulate shaving. When does he can shave regularly? Any advice will be helpful. Thanks Hetal
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h&n phonebook
if u would like to b n the h&n phonebook, pls. send ur info to skiffin. send him the following: patient name, caregiver, relationship to patient, location, phone number. God bless, dj
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Bone Disease / cancer due to Radiation
Has anyone had any issues - side effects with their bones as a result of their cancer treatments? I ask as 5 years ago I had radation to my sinus / neck for Esthesionueroblastoma. Over the past 16 months my alkaline phosphatase levels (found in blood tests) are increasing and are in the "High" levels. Over the past 8…
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Monday is not such a bad day...
That's right, Monday is not such a bad day. I had my 5 week re-visit with the ENT surgeon who performed by second neck dissection in late March and was told that I was healing "fantastically" and that my tongue (site of the primary tumor) and throat were clean, clear and normal in all respects, and she said again "No…
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So sad and lost and overwhelmed
Dad has been home two weeks and it has been a true rollercoaster. He seems so much worse then he did in rehab. He will only stay up and hour or two at the most when therapy is not there. He will work really hard for the therapist and they say how great he is doing, but when they leave it is nothing. At times he seems…
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NJ Shore is awesome another example of wonderful CSN folks
I had a wonderful conversation with Kari tonight. She is an awesome friend and wonderful listener. A wonderful example of the CSN family I have found here. I was very sad this weekend, but in our conversation I found a few moments of laughter I want to thank her for. One thing I wanted everyone to know is that even if you…
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Lidocaine Viscous
Rob is in a severe amount of pain. He is taking only liquid Vicodin and it takes the edge off for about 2 hours. He just does not want to drink because it hurts so bad. This man was in tears today and he doesn't cry, ever. Wondering if anyone has used Lidocaine orally and did it help to numb enough to eat. We will be…
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Very nervous
Hi everyone - it's coming up on 5 months post treatment and I just found a bulge in my groin area- at first I thought it has to be a hernia- going to general practitioner next Friday. But then I realized the last time I saw a lump I thought it was a swollen gland. I am making myself nuts. I am praying its not C
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Alternate medicine
Today I had a friend of the family call to discuss "alternative medicine" vs radiation treatment. By the time I got off the phone I was in tears- do people think I want to see my husband go through all this treatment and Get so ill ?Do they not think we haven't thought and researched through everything out there? What do I…
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A New Contraption Has Been Added Into The Mix
I think I'm learning way more about medicine than I ever wanted to know. Not really. Some of it is scary, but interesting. Hubby's Nephrologist was called in because the Lasix is not doing a good job of removing fluid. In order to deter further kidney damage, a central line was put in hubby's neck that connects to a…
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Doing well
Hi to all, I thought it would be nice to share some good news. I'm almost 6 months post rad and doing well. Saw three of my doctors in the past week or so, and they are all happy with my progress. My ability to taste is much better. It still fades while eating, but it should only get better in time. I'm getting used to my…
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Another Week: Treatment Goes On
Had yet another of my weekly trips to Seattle Cancer Care Alliance (SCCA), my home away from home. I also had an extra trip of Wednesday for a CT Scan. I saw the medical oncologist, himself, (rather than his PA). I see the medical oncologist about once every three weeks. The report of the CT was not back, but the MO reads…
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Paralyzed by Fear - NO MORE = NED - UPDATED
When he told me it was NED it was almost like I couldn't hear him. For some reason, like never before in my life, (my service in the Army, my years of racing sports cars, the CT just 6 weeks prior, asking my wife to marry me :I, this one test got the best of me and for the life of me I can't say why. I'm very grateful to…
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Still here..
Hi all, I am still reading as many posts as possible, but during work hours.. you all know the drill. We have been super busy trying to get our kitchen finished, pool open, now we mow weekly.. and getting ready for surgery next Friday, but wanted you to know I think about you all every day, and can't wait til next week, I…
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Mucositis, throat cancer, fever
Stage 1 vocal cord cancer, being treated with radiation only, 28 treatments. 22 treatments in, my husband spiked a fever of 101, coinciding with very think mucus in his throat which causes him to cough and hack, especially after laying down. They checked him out at the ER twice, and found no infection or known virus. The…
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I'm Sorry, But I'm Just So Sad
I think the reality of my hubby's situation has just hit me real hard tonight. He sleeps fitfully as I sit by his bedside, mostly mumbling parts of drugged dreams. He can't sit up to urinate, so I hold the urinal for him as he lays. When awake, he is coherent. He sees what the near future holds. Social Services called…
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Jim & I scan results???
Jim & Deb....just checking in on your scan results and see how all is going ...... not that you have to share of course....just letting you know you are being thought of and prayed for.... Tim
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Scan Today, Results Next Week
Hubby got his scan today. ENT said significant thickening and hardness in his neck on both sides, moreso on the left. Palpation and visual good but he said he didn't want to tell us not to worry about the rapid change in his neck without a CT scan. He said possible it is result of radiation but did not want to take any…
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Sensitive to Cold Drinks
Hi all, Rob just finished Rad #10 and he has lost all taste. A little fast we thought but everyone is different. He is complaining of a sore spot on side of tongue although radiation is tonsil, I am sure this is normal also Is sensitivity to cold drinks a problem? He has never really been sensitive to hot of cold foods and…
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Just to say HEY
I just wanted to jump in here and say hey to all my CSN family. I know I have not posted in a while and feel bad when I think back to all the folks that responded to my post. Please be aware I read most every post and pray daily for all of you. Im so glad to know that some of the regulars are still offering their advice…
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3 weeks
It has been three weeks since David died. I had one big melt down today. I was completing paperwork for an upcoming doctor appointment and they asked for my emergency contact. OMG I didn't have one. I called David's mom in tears and she told me to put her down. This is really a rough ride. Thanks to all my CSN friends for…
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Cisplatin Overdose
"Phew" feel like I have just been through a washing machine and the dryer. Just over 2 weeks ago I had the first dose of Cisplatin followed by wearing a pump (with Cisplatin) for 5 days, the doc thought I was strong enough. I was supposed to have something to boost my white blood cells as well which was forgotten, that put…