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Ringing the Bell and other things.
Hi Folks, A BIG THANK YOU to ellamenno, Joe, P and Helen for asking about what's going on as well as a BIG THANK YOU to EVERYONE for your encouragement and support. Today I rang the bell! 6 chemos and 30 radiation treatments officially ended at approximately 8:35am Wednesday April 24th, 2013. Here's a pic of Marcia and I…
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How's Letumwork doing?
Just thinking about you. Hope you're doing well. Halfway? We are still right behind you. Helen
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Things are progressing
Well folks been some happenings around here in the last week or so. The big item is that I had my G-Tube and Port removed. More of a psychological than physical change. It just felt so damn good to have my body back to where it was before all this started, although much thinner and almost no muscle. It's almost hard to…
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Fishmanpa...
Haven't seen you post for a couple of days. Just want to let you know you're being thought of prayed for. I know things are probably rather rough for you at the moment. One foot in front of the other. You can do this!!
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1st post fear with upcoming pet
Three years ago my husband had swollen glands on the left side of his neck. A trip to our family physician resulted in a week of antiobiotic which did nothing. He was then referred to a local ENT. A biopsy was done whitch were inconclusive. Then surgery was done to biopsy. Area and some surrounding tissue proved to be do…
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Tired of being a widow
OK I wish I could say I am doing better with my loss than I am. I miss David, hell I miss people. You know other than the neighbor across the way and my mother-in-law not one person has come to check on me. People will make plans with me and then bail in the morning with lame excuses. I feel so alone and unloved. What is…
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I Feel Like A Really Bad Soap Opera
Hubby's stay at home was a very short one. Our son had styed until about 8, & I had to call him back at 10 to move his dad to the commode. He is absolute dead weight & our son could barely do it. I had noticed a considerable swelling throughout his whole body when I brought him home, but he wanted home so badly. When he…
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Help with dentures
Hello everyone. my mother just finished her chemo and radiation for throat cancer. She had to have the rest of her teeth removed before they would start the treatments. Now she needs help paying for the dentures. She has medicare but they do not pay for anything. Does anyone know of places that might help her out? thanks…
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simple pleasures and smiles
Hello everyone ! We've had a few hard knocks on site but also alot of very good outcomes. I was on the site accoi....and alot of folks there are fighting hard to beat back this dx. We've lost a strong warrior there also. Prayers are very welcomed for fellow warriors. Words just don't seem like enough....my heart breaks for…
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One Year Ago
Tomorrow is the anniversary of when Hubby was first diagnosed with tonsil cancer. Seems like so long ago and seems like only yesterday at the same time. He has had one cancer free scan, that was in October. Next appointment is Friday and we expect more scans. Scanxiety set in early. Hubby noticed a knot in his neck about…
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One Year Ago
Tomorrow is the anniversary of when Hubby was first diagnosed with tonsil cancer. Seems like so long ago and seems like only yesterday at the same time. He has had one cancer free scan, that was in October. Next appointment is Friday and we expect more scans. Scanxiety set in early. Hubby noticed a knot in his neck about…
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ok so...
Hi everyone, Just thought id tell you where I am at today, after mealtime therapy(which they have become) of oatmeal and chocolate pudding, we scheduled my next swallow study for May 7 @ 8am followed by 9am therapy to discuss video. If all goes well I will be incorporating eating meals @ home into treatment and possibly…
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ugh was told margins were not clear
It's me again, "first IDC now SCC" I had my follow up after surgery appt today. My surgeon told me my margins weren't clear on two place on my lip. One being close to surface, the other inside. She said she was going to talk to my team tonight at the tumor board meeting and is hopng my rad onc thinks he can kill the rest…
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Kent Cass...Clean PET/CT
Just wanted to post a quick bit of news.... Kent sent me an email... He just had a PET/CT and is still clean, kicking and pushing forward.... BELIEVE, John
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feeling sorry for myself
Hello, I'm new here but after reading some posts I finally realise I'm not alone. I had been cancer free since last June (Uvula) but just found out that the big C's back with a vengeance. So now I need my soft palate removed and replaced with grafts from my forearm and due to a necrosis of my jaw my teeth will probably…
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Kinda Personal (as in sex)
We were told by the Medical Oncology dept, that from time chemo is given and for 48 hours after infusion, we should not be kissing, sharing drinks, etc. because of the possible chemo being expelled through saliva, urine, etc. Now here is the question, should we use barrier type protection if we choose to get intimate? I…
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appitite
sharon, does ur husband have an appitite? does food taste right to him? does food sometimes get stuck in his throat? can he eat anything he wants? i still have no appitite and food doesnt' taste right. it still gets stuck in my throat too. does any of this get back to normal? thank u 4 ur help w/my questions. God bless, dj
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New Here
Hello all. I have been coming to this board since February of this year after my husband was diagnosed with unk primary involving a lymph node in his neck. Since that time, he has had surgery to remove the node while taking out 23 extra for a sample. Those were all negative. I remember thinking at the time how wonderful…
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Vivian
I finally just caught up with my weekend emails and saw that there was a caring bridge post in your journal. I just wanted to tell you that you amaze me......for so many reasons! That's all :-) I know God has something special planned for you, I just know it. With love, Billie
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Tonsil cancer
Thanks for all the support that I found here! Such a bless ! My husband finished the treatment of chemo and radiation for stage 3 HPV. Tonsil cancer .It was tough but he was having a good recovery , gaining some weight , he lost 45 pounds during treatment but now after almost 4 months he is in a terrible pain in the ears…
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Floride or not?
Please give an opinion if we should use the floride trays or not? Heard good and bad things. Radiation to the neck for 8 weeks. Thank you.
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Scan Coming Need Pryers
Jim has a CT scan scheduled for tomorrow, Monday. He had told the oncologist no more scans or treatment but we and the oncologist are curious as to why he has no symptoms of the matastis cancer to his lungs. The oncologist had given him less than a year to live last June because there were numerous nodes that tested…
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New Member
Hi All, I am a new member based in Singapore introducing myself. I have however been through the discussions and am impressed with the wealth of information and also empathy and caring that shines though. My story in a nutshell was that I was diagnosed with a SCC on the left side of my tongue in early Jan this year. A…
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Wouldn't You Know It!
Now, I am sick. Started with the achy krap & fever yesterday afternoon. I left the hospital immediately and came home & went to bed. Alternated between fever, chills and dizziness all night. Drinking OJ right now. I really don't need this. Hubby may come home on Monday with IV antibiotic, so I must get better. He had more…
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Chief Daddy Mike
Mike is having a very hard time dealing with the death of his Son please continue to keep him in your thoughts and Prayer. We all go through a lot in dealing with cancer, but having to deal with your own cancer at the same time dealing with your only Son’s cancer it more then a person can bear. He is a wonderful guy and…
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I wish
that this was the home for esophogeal cancer too. My friends father in law was just diagnosed and I told them all about CSN but then when I went to check out that forum it wasnt nearly as helpful, friendly and resourceful as ours. Billie
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Tired Still - Second Question Hope That's OK
I am 4 months and two weeks our from my last readitaion and checmo (unknown primary); I still get very tired easily. I can do about 4 hours works then have to rest or nap. Some days a little more work some a little less. I find it very hard to get up anything before 9. I know I have some depression, but also just phyical…
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Hoarse Voice - How Long Does It Last? - Really Got Scared Today
I am four months and about two weeks out form my last radiation and chemo. My voice is hoarse and started getting that way about a month after treatment stopped. It is not really getting any better. Mouth is very dry I think like most of us. Had a check up with my oncologist and he said, almost in passing, it could be a…
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Steroid Side Effects
I wanted to share what happened this week concerning what has been determined as a side effect from steroids. I was given three drugs to help control nausea from the chemo. Ondansetron, Dexamethason and Prochlorper (breakthrough nausea). Dexamethason and Prochlorper are steroids. I was also given Emend during infusion with…
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A very hard night
I am having a very tough night. I got the death certificate for David today and just got our wedding pictures developed yesterday. I miss David so much. My heart hurts. Sometimes I feel like it is going to be ok, but tonight is not one of those nights. Please pray for me.