Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for January 2013

Had to postpone a treatment today
Hated to do it with only 7 remaining but I got hit with full blown Thrush last night. I had a twinge of a Thrush thought about two days ago and started a Flucononsol (sp?) regime just in case and I'm lucky I did. It was ugly last night but much improved this morning. I still don't think I can keep the mask down through the…
Hiya from pascotty
Hi fellow dx. Just want to say hi and let you know that I'm still doing great and loving life. Dx 2009 right tonsil scc and 1 lymph. 34 rads 3 cisplatin. finished treatment April 2010. Have all taste buds back. Saliva is still helped by chewing gum. Yes sugar free. Tinnitus still there but only notice it when I mention it.…
nasal prosthetics
If anyone one out there wears a nasal prothesis can they please tell me how they cope with blistering around the base of the nasal area
Hope For Those Struggling With Eating
I haven't posted in a while but I check in nearly every day. I wanted to post this great news-- Hubby ate THREE full meals today -- a Subway flatbread breakfast sandwich, beans, rice and chips at the Mexican restaurant, and two full plates tonight from the Chinese buffet. This is the first time he has eaten 3 meals in one…
Been away...trying to survive
Hey all...been a while since I posted.....I guess I was busy just trying to survive. I am 11 days out of TX. What a journey to get here......9 days in ICU...shingles...havent had food in my mouth for over 2 months, after 27 days of rads I freaked out and it took me 5or 6 days to get back in the saddle, lost 33 LBS and…
How do we help?.....
Good Morning, Many here are the caregivers for those of us battling this beast. They are the voice of the individual going through this journey. My thoughts and prayers are with them all and I cannot even begin to imagine what it is like for them to see their loved one go through this ordeal. Moreso, facing the fact that…
Care tips for long term Erbitux users
It looks like I will be continuing my palliative treatment of Metastatic Cancer with Erbitux. I have been on the drug for 23 weeks and am looking for advice from others who have been on Erbitux long term to combat all of the skin issues associated with the drug. The issues that bother me the most is severe cracked skin on…
My new Acronym
I just received the results of my every six week CT of my neck and chest. Instead of being NED, I am now being called NEMD. No evidence of Metastatic Disease. I am set to have my last treatment of my clinical trial on 1-28 of Carboplatin and Erbitux, and the continue on Erbitux every Monday for as long as it works.I guess…
CURE magazine
I came across a great resource for patients, caregivers and survivors while in my oncologist's office yesterday. You may have seen it, but just in case you haven't, it's C.U.R.E. Magazine (Cancer Understanding, Research and Education). You can get a free subscription at: www.curetoday.com The current issue has a great…
TPF - PF - induction chemo studies no more
During my warrior intel outings I dug hard into the whole induction chemo regime some are offered these days. What I found interesting was all the studies dried up around 2010-2011. I did wonder but had no idea at the time. The one key study I was looking for was the one that evaulated TPF sequential CRT vs CRT only. I did…
Just diagnosed
I am new to this site and this discussion group. For more than a year, I suffered from a chronic sore throat that included neck pain, stiff neck, eare pain, headaches and difficulty swallowing. Multiple tests including two ENT endoscopies, an upper GI endocsopy, a barium swallow test, a thyroid ultra-sound and allergy…
Web chat on HPV/Head and neck cancer
Hello everyone, Saw this on cancerquest. It will be on January 24th at 12:00 p.m. A Dr. Mark El-Derry of the Emery Winship Cancer Institute will be having an online web chat about HPV and H/N cancer. Sounds like there will be a chance for asking questions and getting them answered. The link is below…
something that I don look forward too!
Good Day all.. hope all are fine!.. well i am here to inform that my dad cancer is back and now he going for his 2nd line treatment with single agent of drug Taxotere. the latest scan show all the tumour in his lung / liver has grown both close to 4cm. And there some new spot.. in 2005, he was dignose with head and neck…
R.I.P. Vikeman10
H & N Forum, Per Coleen Sewick’s post on their CaringBridge site, Randy Sewick (Vikeman10) passed away Saturday morning. He made many hopeful posts here very recently and for those who have or haven’t read his Journal entries he was a gifted writer. My prayers go out to his family. Matt
Home... Not a hotel, really in our house!
I was just reading the lastest news here, while laying in bed, listening to Dan snore lightly, and realized I forgot to post we are home! it was a long day yesterday. The doctors talked with the insurance company, and the sent the scripts to the pharmacy, where 4 of 8 were rejected! How do these companies reject via…
sore throat and canker sore been two weeks of rad and 1 chemo so far still have 4 1/2 weeks to go fo
Hello, just new here and actually my husband is the one diagnose of cancer at the base of the tongue, actually we really dont know how he get it, he dont smoke and drink but one time he had a lump of his right side of his neck and since then he went check up. until confirmed it was malignant cancer stage 3. he's dont with…
Post from Crispee1974 - Jaw Replacement for Mom
I'm reprinting a post from today from Crispee1974, so it doesn't get lost in the shuffle (it started as a reply to an old post): my mother is having jaw replacement surgery New she has had head and neck cancer for 4 years now, they said it started from her tonsils. she had a lump at the base of her neck but left alone…
Nine treatments, eleven days or 232 hours (but who's counting)
I'm trying really hard not to fall into the trap that in that 232 hours (calculated from 6:00 PM today) I will be finished and I'll finally feel better. I know it's not true, if fact I'm sure I'm going to feel a whole lot worse. But, I WILL BE FINISHED WITH THE RADS AND THE CHEMO. No more early morning rush hour trips down…
KINCK IN THE ROAD - INFECTION
Update by Beverly's husband and sister: Saturday night, January 12, Bev's right eye ruptured at the lower portion of the incision sight. It had swollen Friday after radiation with infectious fluids and ruptured late Saturday night. Dr. Showalter came to our house Sunday night and took a sample for the lab, put in a wick to…
I don't want to be a widow
I have hesitated to write this, but it is on my mind so often. I follow three caring bridge pages and as of today, David is the only one still alive. First BarefootBob and now Randy. As I read the final journal entries from the spouses I just hope I can have the grace and love for my husband to be able to speak so…
Nick
There use to be a kid on here, Nick & some numbers, I've wondered a lot how hes doing...He doctored at The James in Columbus, Ohio, which is where I go....anyone remember Him or know how He is?
ZESTING
Anyone have info on eating outer layers of citrus fruits for cancer?
Treatment plan finalized!
This past Thursday my MO presented by case to the Tumor Board. I asked to attend and was really impressed that around 16 doctors (lost count) were all positioned around the long table and the projector was going through the key PET-CT scan. There was much discussion, questions asked, options reviewed, but at the end the…
I missed you guys
Sorry I haven't been posting much lately or joining conversations. I have been reading people's posts, but I just haven't had it in me to reply. My life is so complicated and I often find myself just surviving the days. David hasn't made a whole lot of progress, which leaves me doing all the chores and paying bills. He…
Scandi Shakes?
Having a very hard time finding this- is it sold over the counter? Have been to local pharmacies and grocery stores- they don't sell it. Tried a local medical supply store as well. Ordered online and they said 2 month back log. Any recommendations where to buy? Can you buy this stuff over the counter?
Sore tongue for how long?
Finished radiation 4 weeks ago. Tongue has huge white patch and even apple juice burns. Still have a lot of pain. How long before things start to get better after radiation? All I can do is drink Boost Plus. Can't swallow anything else. Seems like things are worse now than when in treatment. What have others experienced?
Free Iso Source Vanilla Formula/Sacramento
I have 2 cases of unopened Iso Source vanilla formula free for the taking. This is to be used with the feeding tube. I live in Sacramento. If you are interested and can come pick it up, feel free to private messege me through this board. Thank you! Joan Thompson
PET/CT
Hello all, Hubby had PET/CT and separate Ct at MDA yesterday. We were supposed to go for bloodwork and onc appt. today, but it has been changed to the 28th. This will follow the lung biopsy scheduled on the 23rd. A "chemo chair" has been reserved for him on the 28th in case the onc wants to start infusions. He has no port…
Energy Level
Hello, I'm 9 weeks post radiation and chemo. I'm feeling much better than I was. Able to have to quality time in my days now. I never was a person with a lot of energy before cancer. I seem to get more tired more easily now and think maybe I'm expecting too much from myself. It's easy to try and go back to the amount of…
Life after Cancer!
Good Positive story!!! :) http://shine.yahoo.com/secrets-to-your-success-20120120/secrets-success-kristen-trattner-200500932.html

Head and Neck Cancer

Discussion List