Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for January 2013

Has anybody Heard From
Mike aka Chefdaddy, I know Hondo kept in touch was just wondering. The last I heard his son had taken a turn. Any info would be appreciated. Thanks all Dave
The official half way mark!
Hello Warriors, Well, today is treatment 17 of 33 and Dad announced he couldn't really taste anything, but we are so happy he gained 1/10 of a pound from last week. Means he's "holding" and that alone is a miracle. Hair on the side of jaw and part of mustache is gone...no biggie. Skin still looks good, but he's slathers on…
How Long Has This Been Goin' On'
Remember that song by Ace? A question I posed in my first thread post, I'm posing to the group. Two part really. How long was it from the time you were first diagnosed until you began treatment? Also, from the time you got the mask and had the simulation done until the treatments started? I had my visits with the radiation…
question about traveling with fibersource.....I will be in Washington DC Friday the 18th - Thursday
So I will be traveling for over 8 days. My question is: Can I pick up my formula for my tube feeding IN Washington DC from a hospital? Is there some kind of travel program set up for tube feeders, to make travel easier? Otherwise I have to carry 34lbs worth of formula across the U.S. with me, along with my suction unit ,…
Out of the Mouth of ENTs
cometh I dont know, maybe he is just a slow healer?? But its NOT CANCER......................... Back to the beginning as I know it, I was in recovery but Diane said the Doc came and and told her she took multiple biobsys in different locations and theres no cancer Thank God, although she reviewed the cancer under glass…
Update on Dad
Hey everybody! I read you every day but I hardly find time to write something due to pretty busy weeks at work (I work in Finance dept. of City Municipality and it's this part of the year when Finance has the most work to do). My dad is now 4 months post treatment (for those who don't know: BOT cancer with lymph nodes,…
Off board for the past few weeks, but doing OK
Just checking in, I am almost 3 months post treatment and doing well. still only able to swallow thin liquids, and have wasted away to nearly nothing with the tube as my only source of nutrition. Even though I am tired most of the time I am contemplating a return to work (part time at first) because I reallly need the…
Off board for the past few weeks, but doing OK
Just checking in, I am almost 3 months post treatment and doing well. still only able to swallow thin liquids, and have wasted away to nearly nothing with the tube as my only source of nutrition. Even though I am tired most of the time I am contemplating a return to work (part time at first) because I reallly need the…
Rang that Bell!
Finally, Dan rang that bell this morning! And brought that mask upstairs in the hospital To his room where in being pushed in the wheel chair down the hall of oncology during rounds, he received a few atta boys and cheers. He is thrilled! Although the IV drugs finally caught up to his need for sleep, and that's all he's…
Happy New Year to all from a lately silent member
OK, well, since DrMary broke the silence with a posting about Vitamins and people ask about us, let me tell you. I have about a half hour before I have to pack up and go play hockey so that should give you an indication of how things are. First, for you new folks, I was HPV+ STC tonsil and lymph node. I am just past two…
Kicking off 2013 with some changes!
I decided a couple months ago that it was time for a reboot of sorts. I had trouble feeling like myself again after the treatments ended in June. It was a combination of a lot of things: the tiredness, the side effects, reduction in the size of the company I worked for (and a corresponding huge change in my…
Still struggling after 3 years in remission
Today I am officially in remission for 3 years after having stage 4 cancer in my maxillary sinus on the left side of my face and had 30 sessions of radiation after major surgery. I was just at the doctor a week ago and everything looks goand but I'm still struggling a lot with all the repercussions after my surgeries,…
Gentlemen, are you tired all the time?
I have been suffering from fatigue for years. I've been taking levothyroxine to combat my low thyroid levels and even that hasn't helped. Sometimes it is all I can do to drag myself up out of the chair to get going. I've been using 5 Hour Energy to get me going at times but I really don't want to rely on that. I was…
Catching Up
Been a while since I have been on the board. We have had an eventful end to 2012. We had to move out of the home we bought last July to a rental due to unsafe mold. We do not like to sue people so gave the seller an option to return our money, which they did just before Christmas. We are now in the process of buying…
ENT Visit
Saw my ENT yesterday , scopef throat, looked inside mouth , felt neck , checked ears..all looks great... So I'm saying to myself , surely he will say I can come back in 6 months, instead of every 6 weeks ...nada 3 month return ... But heck that's better than 6 weeks. Next major appointment is my rad doc in march.
Not Good New for Best Friend's Husband
Hi all: Steve (best friend's Beki's husband) had his broncospy yesterday and it is cancer after all and 4 lymph nodes involved are also cancerous. The preliminary diagnosis is adenenocarcinoma. However they feel it is contained in just the one lung and will have brain scan later this week to make sure it has not spread…
Pay up front?
I was due for radiation and chemo tomorrow 1/15/2013. The chemo people called to say they will require $1700 prepay up front for first week and $290 per week after that for Erbitux (about 7 visits). Up to that point I have had 6 operations and 11 teeth extracted along with many visits to various doctors at $40 per visit…
Neck Cramps
Hello all! I haven't been in the forums in a looong time, but I know it's a great resource to turn to. Here goes. My hubby has severe, debilitating cramps in his neck that come on quickly and seemingly at random. He was diagnosed with neck cancer in May of 2011, had 12 rounds of chemo and 37 rounds of radiation that ended…
STG II tonsil cancer-surgery completed, mostly healed.. radiation starts tomorrow..
Lucky to get this cancer out fairly early but need the radiation to complete the treatments.. Looks like 7 weeks @ 5 daily treatments is fairly normal. However, I am only getting my right side treated with radiation. Expecting week 3 to be beginnings of the pain and sore throat but hoping not to need the PEG. and grand…
In the hospital
Well, he finally told the doctor today, he feels weak and can't keep up. With one rad left for tomorrow. Dans done really well, but he needs some help across the finish line. He's sleeping with the meds, they are working on getting his meds realigned, hydrating him, and getting the pain level down from an eight. Maybe we…
Bump in the road
This has been a long and slow recovery. I am half way done with radiation and yes, chemo this time. Sunday, very early in the morning, my surgery site (eye area) was beginning to ooze. Got some medical help later in the day--doctor took a culture to send to lab, antibiotic and opened up the area a bit for more drainage.…
Need a recommendation for a juicer
Hi and hope all is well. I've decided to start juicing and need a recommendation(s) for type of machine, and best buy for the $$'s. don't think I need a commercial food grade model, but not looking for one that will shoit crap quickly. Thanks Mike
Need some help and advice
Hey guys, I need some help with something. This is kinda of a long story but here goes. Dad has been doing pretty good up until New Years. A couple of days before the fell in the middle of the night. Thanks goodness he was not hurt and did not hit his head, but he did not seem to know what was going on. All that day he…
Taste and saliva
Hello, I know there have been posts on this already but I wanted to start a new thread. So my story, I am 23 years old and have head and neck cancer. I have to do 35 rounds of radiation, which I am on number 19 and 9 weekly doses of chemo, on 6 I believe and then 3 more monthly doses of chemo. Shortly after starting…
Relay For Life....Smashing Out Cancer! ~ PHOTOS
Our Relay For Life's Biggest Fundraiser
Getting CSN system well
Here is what I have done so far to get a hot cattle prod to the right place on the right person to get this site running well and getting the lost messages restored. I found the following contacts within the ACS IT organization. Jay Ferro - CIO Gabriel Lewis - Director Enterprise Data Center Keith Weller - VP…
Loving people I've never met...
To my amazing Warriors and fellow Caregivers, I have read so many posts and can't explain how full my heart feels just knowing you are all "out there" but close-by. Truly, I have never met a more grounded, determined, compassionate group of people in my life and I am so glad I can call you mine. My hopes? Wishes? Prayers?…
Transoral Laser Micro Surgery
Has anyone ever had this and what was your results? After almost six years my cancer has returned in the pharynx area of my throat. They are telling me that I am a candidate for this type operation. I will be visiting a large cancer treatment hospital in my state on January 23rd to consult with the surgeon on this.
Head and Throat Oncologist in Ft. Worth, TX?????
Hi everyone, My dad is needing to find an oncologist that specializes in head and throat cancer that is located in the Ft. Worth area. If you know of anyone good could you please let me know. He is needing to begin radiation treatments and has not been referred to an oncologist yet. I just feel like he should have had a…
About to begin the Journey
Hello everyone. I'm new to the forum. Glad to have found you all! I'm 53. I've been diagnosed with Metastatic Squamous Cell Carcinoma of the Head and Neck with an unknown primary. The current diagnosis/classification is Tx N2b, MO stage IV. The cancer is in the lymph nodes on the left side of my neck and has spread to…

Head and Neck Cancer

Discussion List