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new here
Hi, im Alan and i have been reading a lot of these messages over the past week and finally decided to join. Lots of wonderful advice and encouragement. I need all i can get. I'm stage 3 SCC base of tongue, only one tennis ball size node, none others affected but no primary was found. Tomorrow is #15 rad treatment with 15…
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Adenoid Cystic Carcinoma Right Submandibular Gland
Hi all. My name is Luke and I was just diagnosed with ACC and I am looking for others with this type of cancer. I have been reading lots of your stories and you all seem so informed. I am scheduled for selective neck disection 11/12/2012 and rad treatment after. There is so much info (not much positive) out their that it…
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Some symptoms I have a question on. ?
Hello All. I wanted to ask a question if I may? I think I have been doing great. I finished rads on January 20, 2012 and all of my scans and monthly scopes / finger exams have come back normal / NED. I have been out cutting wood (to the tune of four cords now. A cord of wood is 4ft deep, 4ft tall and 8ft long) ....I feel…
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Neuropathy is getting worse....
at least in my hands. Does this just continue to get worse, or does it peak and then start fading away? It's hard hanging onto something, and nearly impossible to pick up small things...like I'd have a hell of a time picking a dime off a hardwood floor. Makes it hard to write, and even put on mascara...At first it was just…
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Just starting
I am going to be starting a combination of chemo and radiation in a couple weeks. Doing chemo once a week and radiation 5 days a week. They suggested that I put in a PET tube. I am having mixed emotion on if that's a good idea or not. Any advice would be appreciated. I started juicing to get used to that, and in my opinion…
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calling all amateur Oncologists (or even real ones if any are hanging around)
Ok, just to recap I'm SCC BOT Stage 1 w/n2c. Just finished Induction round 2 and all pain, swelling and visual (throat scope) of tumor negative. So, the gold standard treatment is (if no surgery) Induction Chemo followed by 35 RADs w/wo more chemo. So, here's my question, surely there have been other protocols tested.…
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Great survival story from Stage IV rare H&N
Hello my H&N family! This was posted on facebook (one of the two H&N groups I belong to). She gave me permission to post here since she is not on this site. Her name is Lyn Challands. I hope it encourages someone!!! :) Tim +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Not sure if I…
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HPV+ ???
When I asked my dr if my tonsil cancer was HPV+, she said that there is "varying degrees" of HPV+. Apparently, some came back positive and some negative. Has anyone else tested not completely positive for HPV??? What does this mean?? Dr. said that there are trials out there right now but not enough data to prove that lower…
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JUST CHECKING IN
Hi everybody just wanted to check in i have been doing good back to work since September running my landscaping company and i am very happy to be at work,working out and enjoying time with my family lawn maintenance is starting to slow down so i'll have more time at home woo hoo so far the scans have come back good ct went…
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Brachytherapy
I underwent IMRT and Erbatux in May-June-July and the pain went away in June and returned mid September. They did an MRI and biopsy verifying live cancer cells. They did a PET/CT scan and the tumor is there, but has not spread. Now, I've had a Med Port installed and they commenced Wednesday to start TPF chemo:…
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Brachytherapy
I underwent IMRT and Erbatux in May-June-July and the pain went away in June and returned mid September. They did an MRI and biopsy verifying live cancer cells. They did a PET/CT scan and the tumor is there, but has not spread. Now, I've had a Med Port installed and they commenced Wednesday to start TPF chemo:…
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Just finished 2nd round of Induction-food question
I'm in my second rest period and all of a sudden, meat in any form turns my stomach in knots and, tastes like crap. Ever happen to anyone else? Thanks, Joe
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Ear pain during tx is intensifying..
Has anyone experienced ear pain (sometimes both) during tx? He had some pain before even starting tx and now it's getting worse. Mostly effects the side that is getting radiation. It hurts so bad when he has to cough up the mucus, he plugs both his ears to help with the pain. He's mentioned this to the team at the hospital…
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Bleeding from the mouth after chemo treatment
I usually get my chemo treatment on Tuesday, by Friday I am suctioning out blood from my mouth. Does anyone else have this problem. I have a peg tube, i cant take anything by mouth.
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Bleeding from the mouth after chemo treatment
I usually get me chemo treatment on Tuesday, by Friday I am suctioning out blood from my mouth. Does anyone else have this problem. I have a peg tube, i cant take anything by mouth.
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Nausea
My husband received second dose of Cisplatin on Thursday along with the usual antimemitics(Amend, steroids, fluids) and then Zofran and Ativan for at home. With his first dose of chemo he did fairly well but this time is very nauseated and unable to eat or drink anything of consequence since yesterday. He had fluid…
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Shooting pains on left side of head
I have completed my first 5 days of treatment. 1 chemo and 5 radiations down so far for left tonsil cancer. I am having shooting pains to the left side of my head which is the treatment side. Tylenol does not seem to help. Anyone else have this? Of course, I am freaked out that maybe I have cancer of the brain in addition…
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It's been one year
Gosh, this year has flown by, of course, several months I was pretty well stoned and really didn't care about time:) I can now say, I'm 1 year out and with the blessings of God, doing real good. November 2,2011, at the James in Columbus Ohio,my awesome team of surgeons used the di vinci robot to remove my epiglottis, I was…
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Catching up
Haven't been on the board for awhile so thought I would catch up. I had to take a break after two fellow travelers passed on. Jim is doing great. Doctors are anazed. Jim's new oncologist gave him less than a year to live which devestaed us. We haven't told the family. We then decided to try the Barley Max and carrot juice…
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Metasize Squamous Cell in the lymph node in neck - radation 15 days not able to eat anything
I am deseperate and looking for any suggestions. My husband has finished chemotherapy and is now undergoing 38 rounds of radation on the throat and neck. he has lost 70lbs in over 4 weeks and is refusing to eat anything. Says everything taste horrible and is refusing to eat. the doctor does not want to do a feeding tube…
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Round Three
First, you cry. Then, eat ice cream. Now I'm ready to fight. Doctor called about 5 p.m. Biopsy is positive for cancer. He (and team) want to be aggressive, and I am in agreement. I have the appointment with the opthamologist tomorrow afternoon, another appt with vascular surgeon (skin flap) Tuesday and pre op and probably…
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Ok...about this tube removal....
After FINALLY getting the two Dr.'s to communicate in the way that made them each happy, I finally got my appointment to get my tube removed. They gave me my choice...to have anithesia when they pull it out (no driving no work for the rest of the day)...OR, just suck it up and have them pull it without anything....I chose…
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Going home
Today has been one of those very weird days. It started out with gagging and dry heaves at 5:00 am. At 9 we had a room full of doctors discussing our new treatment plan. They have decided to give David a nausea patch and then several other nausea medications. He still will have roxycet and they are increasing his Zoloft.…
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Happy
Last Tuesday, I had a cat scan to determine if the spot on my lung ( since November 2011 ) has changed any. Went for discussion today, my lung Dr. says the spot is exactly the same, no growth or change...I don't have to go back for 6 months and that will be an xray. He also admitted He may have jumped the gun on dx of…
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Tongue Cancer Returns - Male / Age 52 - Treatment options?
My dad is currently 52 years old and two years ago he was diagnosed with small N1M10 on his left side of tongue (Stage 1 – squamous cell carcinoma). At that point he was treated with Radiation (33 times - tongue and neck area). Since then he has been in recovery stage, however he has always had discomfort in his tongue. At…
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PET scan clear....but....
Bugger. 11mm hotspot on left lung. Anyone else had similar misfortune?
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Help with Cancer Needs After a Natural Disaster
Hi Folks...wanted to share this information: Frequently Asked Questions for Cancer Patients and Their Caregivers Even during major weather events, the American Cancer Society is there to offer patient services and programs. People in areas affected by storms who need American Cancer Society services should call our…
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My 89 yr old Dad
WE will soon be helping our Dad make decisions on treatment and I may be coming back here to ask opinions of all you wonderful survivors. My Dad's health is good. Very active driving, mall walking, bowling, grocery shopping, bowling, laundry, some yard work, getting meals ready with my Mom (who is doing well with CHF but…
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Scans today
Hey all ! Will be on my way shortly to the U of M. I'm excited to get these over and done with to get there uptake on where I'm at. They started out being my second opinion, and now are my primary onco's. I was looking through paper work for insurance purposes...and my other medical onc has passed me on permanently.…
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Newaround here...
Hi, My name is Kylie- I live in Maumelle, Arkansas (just north of Little Rock) and I was diagnosed with a stage 3 Sarcoma in my right maxillary sinus on June 29, 2012. I feel blessed that several circumstances came together and I was seen by the Chairman of the department of otolaryngology- head and neck surgery-at the…