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Vivacious couple (Not exactly)
Last night I realized what a sight David and I are right now. He is lying back in one recliner looking pitiful and I am lying back in the other one with my legs propped up. I am trying to take care of him as he is still recovering from the BOT surgery, while trying to rest enough since I am dead tired do to the pregnancy.…
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Saliva pills and vital stim therapy
Hello to all I have been keeping posted by reading everyone's posts but have not posted in a while. We have been going down to north Carolina for The tread procedure and subsequent dilations in our quest to eat again. So far I am happy to say dad is drinking, chugging water down!!! Eating speg. By the spoonfull. Foods that…
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Well my time has come
I will be going in on Wednesday Oct 3rd to get my 1st CT scan. Yes I have said before in other blogs that Im dealing with Scanxiety that we all talk about, I was blessed to get thru this battle in pretty good shape. As some of you know since my wife posted this information way back when I started treatment in a blog that I…
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Scar Tissue!
Just got the call from the doctor. Scar Tissue! Woo-hoo. I can live with that, not 'c' just a gift! I still need a specialist and will need surgery, I can deal with that. Thank you for prayers and well wishes.
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Boy, the last three days were a surprise
As I've been recalling I have just started Induction Chemo. Had my first treatment last tuesday and took the pump off on Friday. Since then, everything has been way downhill. Seems I have a bad case, but a very normal set of side effects. Turns out all the anti-naseau drugs they have been giving me tied me up with a bad…
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DID NOT THINK THE GOOD TIMES WOULD END SO SOON
Hi and hope you are all doing well. I was riding the high horse last week with my Carboplatin, Erbitux and 5FU manpurse along for the ride. Not one side effect as of Friday Night as I was watching my STL Cardinals rout the Nationals 12-2. Did the whole party box, yelled and screamed and high fived and had a great time.…
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Called in sooner for dx update
Hey everyone, Wasn't suppose to go in til Nov., for PET scan....got a call from Masonic this a.m. and wanting me in for a CT guided biopsy of my lung. I was more than a bit taken aback. The tumor board had finally met, and sorted through all of my past records, scans and re-did the pathology. Seems they want to reclassify…
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Saliva and Sore Lips
I had radiation and chemo for cancer of the larynx about 17 months ago and am doing pretty well. I just wondered if anyone has figured out any way to generate saliva? I still don't have any so have to keep water by my side all the time. I do use stopper's 4 at night when my mouth is the dryest. I don't seem to have…
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Pacific Northwest Laryngectomy Conference
I was privileged to attend the PNWLC held at Oregon Health and Sciences University (OHSU). Over the next couple of days I will be relating some of the insights gained: The biggest insight was the extremely proficient use of the electro larynx by many of the patients. The speech was loud and clear. Up to this point, I…
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Peg tube supplies and cans of Abbott free
Please see my earlier post "free tube feeding". Would love to send these supplies free to someone who is still on peg. Robin
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Head and neck
Hi My husband had surgery in may 2012, has gone thru chemo and radiation and has finished his treatment . It's been 3weeks after treatment and he has this excessive mucus and coughing that worries me, he also has pain on his cheek and muscle which was pull from his chest to jaw. His head is tilted to one side and I've…