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Head and Neck Cancer

Archives for July 2012

Change of voice before chemo/rad treatment
Hello everybody! I've beed reading your discussions for a couple of month now - since my Dad was diagnosed, and now I've decided to join you. I apologize in advance for spelling and language because I write you from Europe - country Slovenia (former member of Yugoslavia). In Slovenia there are almost no discussion boards…
Non Keratinizing Carcinoma
My husband was diagnosed of Nasopharengeal Carcinoma and we dont know yet the stage we are still waiting for the MRI Results before the treatment to start. Can somebody tell me what are the preparation needed before he start his treatment and what to expect during his treatment. I am really so worried/
Checking in
I officially have one chemo and 11 rads left. Still doing pretty good thanks to PEG and daily IV hydration. No mouth sores, sore throat or rad burns. Skin on neck is nice and "tan" but no pain or anything. A little anxious about how the next 4-6 weeks will round out but I need to learn to take things one day at a time. My…
Picture
Does anyone know how to post a profile picture from an iPad?
Taste buds...let us track when we all get them
I am 3 weeks and have no sign of any taste yet. Anyone else has any tastte back? Those who are done, could you share your exp with tastte? Is there any specific one that comes back? You simply keep trying to taste things everyday? There are a few of us out from treatment, it would be great to write our expriences as we get…
Let The Healing Begin!
At 830 this morning Dale rang the bell, officially completing his cancer treatment. The plaque next to the brass bell reads: Ring the bell Three times well It's toll to clearly say My treatments done This course is run And I am on my way. My sister sent me a YouTube video of Donna Summer's disco hit "Ring My Bell." Wish I…
4 weeks done with rads and even more impatient
So in 1 day I'll be 4 weeks out and I'm more impatient than ever! I want to eat real food so badly. I am able to eat some things and taste is returning mostly. I can eat yogurt but it makes the junk in my throat worse. But it's calories so I do it. I eat pudding, same thing. Avocado, eggs, cream of wheat and oatmeal. Just…
First neck massage, what does everyone think
Everyone (you know who you are), Recently my radiation oncologist mentioned my neck was getting a little thick (my words) and that I should hit the rehabilitation center for a neck massage. Well, I had my first visit was today, it was very nice almost put me to sleep. It all seemed so simple, massaging the lymphatic…
I'm in the single digits for radiation treatments!!!
As of today, I am down to 9 radiation treatments.Yesterday they told me I would start getting a "bolus" of extra radiation to the area of my scar for the remaining treatments so I should expect for my skin to get more red. So far I have not really had any problems with my skin, I look like I have spent the last 5 weeks…
PET SCAN
Just letting you all know that I go for my 1st post treatment PET in the morning. Its been 3months since I finished Rads so tomorrow is the day. With the good grace of God, everything will be fine. God bless Tonsil dad, Dan.
Just starting out on this journey and a bit scared
Well, last Friday the ENT doc said I have the big C. WOW! Now what? I am having a CT scan today. The doctor took a needle biopsy on Fri and the results came in, positive, today. They canceled my hospital OR visit for another biopsy tomorrow. That's good news. The doctor said now a board will meet to discuss my treatment.…
Scoped today, for the first time since mid-May!
I was last scoped during treatment, but when I visited my radiation oncologist today, he scoped me again. He said, as far as he could see, there was no evidence of disease and I was cancer free! I have my PET scan in mid-August, which of course is more detailed, but that was still good to hear. He also said my upper vocal…
MOJO ~ Tribute
As a tribute to MOJO.... I'm changing my avatar to a photo of my beloved Ebony whom we lost a few years ago. A dog with attitude, she was one of the best, she was my buddy, my girl and my best friend. Even though it's been a few years now, she is still in my heart and I often think of her daily. Though she is gone in body,…
WEIGHT LOSS DUE TO RADIATION
MUSCLE LOSS DUE TO RADIATION. FOUR YRS AGO I HAD RADIATION ON MY NECK, PRIOR TO GETTING THE RADIATION I WEIGHED 215 7 WEEKS LATER I WAS 170 AND HAVE ONLY GAINED 12 LBS, INCLUDING MUSCLE. I CAN'T FIND OUT WHY EVEN FROM THE DOCTORS PLS REVERT
Swallow Test?
Hubby only has 2 more rads! But, he continues to have trouble with gagging to the point of throwing up. At his appointment today, chemo doc said he was not bouncing back as well as she had hoped after his 6 day hospital stay. BP was low, heart rate up, signs of dehydration despite a bag or two of fluid every day for 6 days…
Neck Cramps
3.5 years ago I had radical on right side only. I was a fair success. I still can use my shoulder, arm, no facial draw. Allthough I do get an occasional twitch on my right side of my face. My problem is I have developed cramps in my neck now. Started out it was just a saliva gland that was trying to work, now I'm getting…
Today is Tues
so its time for me to have another bout of pneumonia - 5th in 18 months and I'm 100% feeding and meds with my g-tube. Has to be something they can do. Just aggrevated and venting - life really is good. Denny
Noncancer question - insect bite
About 9 weeks ago a small insect looking bite appeared on my leg between my knee and ankle. It did not itch or hurt. It looked like a tiny vampire got me. It was kinda brown looking. After about three weeks two tiny water blisters appeared and then I got a large red patch all around it and my leg started hurting. I went to…
PEG placement-pain
My mom had a PEG placed yesterday... she is in the worst pain! They gave her morphine; however, only makes her sleepy. She can't lay down flat in bed. Has to sit in a recliner and complains of pain anytime she moves/breaths in. She also is given norco. Did anyone else have this kind of pain??
negrosis
Has anyone had this? My husband completed his treatment 7 months ago and seemed to be healing fine. The he had one of his blood vessions burst. Doctors went in and found a hole. Tissue was not healing. They are now butting him into some sort of oxygen chamber for 90 minutes a day for 30 days. They are hoping it will…
Terminology Help !?!?
Hey all, I have checked the "superthread" and have tried to google the term with no avail.... When the doctor told me that 54 nodes were removed during dissection and the Pathology came back w/ only 2 showing signs of cancer. He used the term "non-esoteric" i believe??? Either way he said that these particular nodes were…
ADCC
Well I should have a better idea if my disease is stable or advanced today. NED would be very welcomed but not necessarilly in the cards for this crap. I have been very positive until this am...dreading to hear the out come of these tests. I was told the last visit in April, the cancer was still there...rads didn't…
Off topic....it's about my dog........
My MoJo has been steadily going downhill with Degenerative Myelopathy for the last few months, but in the last 3 weeks he's started falling, and he has to really think in order to negotiate two small steps to get up on our deck. Degenerative Myelopathy, for those who have never heard of it, is a disease where a dog loses…
New to forum help for pain
Hello to all I am new to the forum, but have followed different cancer forums on and off for the past couple years. I just finished Erbitux and 7 weeks of radiation, so am on my way to recovery. Will have scans in a few months and hope for the best then. Having a lot of pain from the radiation, and it has made skin around…
25 Year Survivor!
We went to my husband's family reunion last Saturday and I found out that one of his cousin's had Tonsil cancer 25 years ago. Skiff will like this, he originally delayed his surgery because of fishing season. He had tonsils removed and neck dissection. Radiation. He deals with after effects but he does eat spicy food now.…
help me
I had my surgery on january 31st of this year,its now July my Radation ended in April and I stilln hurt I cant eat still on protein shakes cant talk right my mouth is always dry and i just hurt all over is anyone else going thru this anyone
Would you like to be on a prayer list? UPDATED 05-24-13
UPDATE: 5-22-13 Still at it! Just updating to let you all know you are not forgotten! ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Hi all. You all know me well enough by now to (hopefully) know where I stand on religious views (I never do like that word religious). :)…
I got a job!
Hi all: Basketcase checking in here! Well, I finally got a job! Praise the Lord! I got on at Jo-Ann's Craft Store. I start Aug. 5. It's from 9 p.m. to 5:30 a.m. until Sept. 7. They are going to be remodeling the store and they were hiring a crew for overnite; but when that's finished they'll be hiring seasonal help and…
LiveStrong Survivorship Plan
I didn't know this existed, but it's a great resource! You input info about yourself, your diagnosis and your treatment, and it generates a custom plan with notes on what and when to check for side effects and other physical effects. I wanted to share it in case it helps anyone else. http://www.livestrongcareplan.org/
When does only moving forward starts?
After a very tough two weeks after rads were finished, i had started to feel better for last 2-3 days. Everything has turned back since last night, dont know why. Coughing/ hecking is back. No matter what i drinnk (milk, smoothie, butter milk, water), throat feels dry in 10 mins and i start with a dry cough that hurts my…

Head and Neck Cancer

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